Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Stacey , 22 Waterloo, Ontario (during school) and Sarnia, Ontario (during summer) Just graduated with an Honours bachelor of science in comuter science with a mathematics minor, going back next year for a general BSc in Math Have a 2.5 yr old nephew that I think of as my own Hypermobile type EDS resulting in chronic pain, depression, surgery and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hey - I was born and raised in Hermosa Beach. Wish I still lived there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Byrnes Seattle, Washington 3 kids - Me and my middle daughter (15) have a dx of hypermobile type. Chronic joint pain, muscle spasms, chronic fatigue. Oldest daughter (17) has many health issues - and I'm not so sure she shouldn't be included. Son (13) showing symptoms - joint pain. husband Tom - perfectly healthy. Spend all my time nursing my daughters and sleeping. 2 dogs. 1 cat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Just my neck of the woods... I'm in Hawthorne (Prairie and Rosecrans, if you remember where that is) and my husband was born and raised in Redondo Beach! (I was born and raised in Cerritos, not too far away, went to college in the valley and lived in Torrance and Long Beach for a few years each after school before moving to Hawthorne). I love living in Southern CA... can't beat the weather! Refresh my memory, where do you live now? > Hey - > I was born and raised in Hermosa Beach. > Wish I still lived there! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Just my neck of the woods... I'm in Hawthorne (Prairie and Rosecrans, if you remember where that is) and my husband was born and raised in Redondo Beach! (I was born and raised in Cerritos, not too far away, went to college in the valley and lived in Torrance and Long Beach for a few years each after school before moving to Hawthorne). I love living in Southern CA... can't beat the weather! Refresh my memory, where do you live now? > Hey - > I was born and raised in Hermosa Beach. > Wish I still lived there! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Just my neck of the woods... I'm in Hawthorne (Prairie and Rosecrans, if you remember where that is) and my husband was born and raised in Redondo Beach! (I was born and raised in Cerritos, not too far away, went to college in the valley and lived in Torrance and Long Beach for a few years each after school before moving to Hawthorne). I love living in Southern CA... can't beat the weather! Refresh my memory, where do you live now? > Hey - > I was born and raised in Hermosa Beach. > Wish I still lived there! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Doh! I just found your post stating you are in Seattle. Nevermind... > Refresh my memory, where do you live now? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Doh! I just found your post stating you are in Seattle. Nevermind... > Refresh my memory, where do you live now? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Doh! I just found your post stating you are in Seattle. Nevermind... > Refresh my memory, where do you live now? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Betty Cammack VEDS Mother of 2 boys (younger one - 13 passed away from VEDS May 2003) also have 17 year old and a wonderfully supportive husband Calgary Alberta Time for Intro's! > We've enjoyed some growth to our family and now is a great time to wave hello and share where we are from, what type of EDS we have and who we are! > > Jill > Mother of three great kiddies > Bolton, Ontario - Canada > Hypermobility type EDS > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Maggie Buckley Wife and Auntie Northern California - near San Francisco Hypermobility Type EDS One dog, a beagle named " Q " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Maggie Buckley Wife and Auntie Northern California - near San Francisco Hypermobility Type EDS One dog, a beagle named " Q " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi all -- Patti Melcher Southport, ME Vascular EDS 2 cats - Maizy and Abby Time for Intro's! We've enjoyed some growth to our family and now is a great time to wave hello and share where we are from, what type of EDS we have and who we are! Jill Mother of three great kiddies Bolton, Ontario - Canada Hypermobility type EDS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi there. I'm Onale Rupp from Traverse Bay Manitoba. I'm 30 and I have one of those horse-healthy husbands - Tom and two boys, Colton (4) and Liam (1.5). I'm a full time + mom and I work in the summer as a gardener. (when I can... I work for a friend of the family who is very understanding. It helps that he lives in Toronto and isn't here to monitor my work!!) I have EDS type 3 and suffer from major dislocations, subluxions, chronic pain, headaches, muscle spasms and tension. I'm scheduled to see a spinal surgeon in June to see if it's time to fuse my neck so my head won't fall off anymore. I am also undergoing tests for various gynecological problems including endometriosis. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Sharon Onyett Owned by Boo a 17 month old Norwegian Elkhound (SD/SDIT) Canberra, Australia HEDS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Sharon Onyett Owned by Boo a 17 month old Norwegian Elkhound (SD/SDIT) Canberra, Australia HEDS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Sharon Onyett Owned by Boo a 17 month old Norwegian Elkhound (SD/SDIT) Canberra, Australia HEDS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi, Sue here. Classical type with hypermobility EDS Niceville, Florida - near Destin on the Gulf of Mexico 56 years young! 4 kids, 8 grandchildren plus Sophie-our Miniature Schnauzer and Charlie, my Standard Poodle Service Dog -------------------------------------------------------------------------- Re: Time for Intro's! > Sharon Onyett > Owned by Boo a 17 month old Norwegian Elkhound (SD/SDIT) > Canberra, Australia > HEDS > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi, Sue here. Classical type with hypermobility EDS Niceville, Florida - near Destin on the Gulf of Mexico 56 years young! 4 kids, 8 grandchildren plus Sophie-our Miniature Schnauzer and Charlie, my Standard Poodle Service Dog -------------------------------------------------------------------------- Re: Time for Intro's! > Sharon Onyett > Owned by Boo a 17 month old Norwegian Elkhound (SD/SDIT) > Canberra, Australia > HEDS > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi, Sue here. Classical type with hypermobility EDS Niceville, Florida - near Destin on the Gulf of Mexico 56 years young! 4 kids, 8 grandchildren plus Sophie-our Miniature Schnauzer and Charlie, my Standard Poodle Service Dog -------------------------------------------------------------------------- Re: Time for Intro's! > Sharon Onyett > Owned by Boo a 17 month old Norwegian Elkhound (SD/SDIT) > Canberra, Australia > HEDS > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi everyone, I am Lana Christensen, 53 years old, married, two grown children, one married, one not. I have a cock-a-poo, Bucky. I have Hypermobile EDS, IBS, Osteoporosis, Osteoarthritis, Fibromyalgia, Cervical Spinal Stenosis/Disk Disease, IBS, Migraines and allergies. I work full time at Girls and Boys Town as a secretary, and live in Omaha, Nebraska (app. 200,000 people). I am a 3rd degree Black Belt in Taekwondo and I can no longer perform Taekwondo, but I am able to teach it once a week. This list means the WORLD to me, and I've made such GREAT friends here! You all are indeed my FAMILY! Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Now I live near Seattle. My parent's house in Hermosa Beach was on 21st St, and was burned down by their 12 year old next door neighbor 3 years ago. They are too old to re-build, and didn't want to still live next door to that kid and his family, so they sold it. Made a fortune on it, lot with the burned house on it and all sold for about $690,000. They bought it a month before I was born in 1962 for $24,000. A builder bought the lot, and built an huge house on it and it sold for $1,750,000! It was really sad going to see that. I have dreams all the time that I still live there, in the old house. They bought a brand new house in Torrance, on Juniper Ave. It's really nice. Now, they are really close to all their doctors!!! hehe They also have a house in Cypress, where my sister now lives. I love LA too, and really miss the beach. My kids wish we still lived there too, epsecially . We went down there last summer, and everything is so different. But, we spent most of our time on the beach, and the kids got to go surfing. Except for , who got 2 blood patches when we were on vacation. So, I went to Mira Costa High School. Where did your husband go? After me and my husband got married, we rented an apartment in Redondo, on Rhuland. My sister lived in Redondo on Huntington for over 20 years, until she lost her job right after 9-11, and had to move into my parent's house in Cypress. I sure do miss LA. Especially the weather. It's really hard to be a Southern Calif girl living in Seattle. It rains all the time here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Now I live near Seattle. My parent's house in Hermosa Beach was on 21st St, and was burned down by their 12 year old next door neighbor 3 years ago. They are too old to re-build, and didn't want to still live next door to that kid and his family, so they sold it. Made a fortune on it, lot with the burned house on it and all sold for about $690,000. They bought it a month before I was born in 1962 for $24,000. A builder bought the lot, and built an huge house on it and it sold for $1,750,000! It was really sad going to see that. I have dreams all the time that I still live there, in the old house. They bought a brand new house in Torrance, on Juniper Ave. It's really nice. Now, they are really close to all their doctors!!! hehe They also have a house in Cypress, where my sister now lives. I love LA too, and really miss the beach. My kids wish we still lived there too, epsecially . We went down there last summer, and everything is so different. But, we spent most of our time on the beach, and the kids got to go surfing. Except for , who got 2 blood patches when we were on vacation. So, I went to Mira Costa High School. Where did your husband go? After me and my husband got married, we rented an apartment in Redondo, on Rhuland. My sister lived in Redondo on Huntington for over 20 years, until she lost her job right after 9-11, and had to move into my parent's house in Cypress. I sure do miss LA. Especially the weather. It's really hard to be a Southern Calif girl living in Seattle. It rains all the time here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 > We've enjoyed some growth to our family and now is a great time to wave hello and share where we are from, what type of EDS we have and who we are! hi all! i'm cindyh. 53 y/o-married for 35 years come oct!! we have three adult chidren(1 with eds) and two grandchildren-1 who has eds,too.) hubby and i live 30 minutes south of green bay,wisc. (or 2-1/2 hours north of milwaukee,wi.) our kids live all over, so if you live near these areas i'd love to stop in when we're visting. one will live in du bois, Pennsylvania starting next month. another lives in sothern wisc near the illinois state line. another lives on the boundary waters of the us/canadian border,near grand morais, minnesota. i have an untyped form of eds because i don't fit into any current classification due to nerve entrapements(from having eds.) i want to say hello to all the new people! been off the list for a month because of thumb surgery--the third in a year. and i'm tuckered out now! hope i get to know ya'll soon! cindy h wisc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Intro time? Name: Sharon Kay Status: Chronic lurker Diagnosis: EDS Hypermobile type, diagnosed in 1979. (my joints go out way more often than I do!) The rest of the usual stuff, bruising, fatigue, sleep disturbances, skin and internal organ involvement, enlarged aorta, etc... etc... Listmember for many years... it's a great place to be! " Legally disabled " 5 years ago, got my electric wheelchair 4 years ago. Several opportunities for me now, so I took advantage of some of them. Used to live in Hawaii (paradise with faults) but now reside in SW Wisconsin (scenic with seasons!). Going to school under Pell and Wisc Higher Education grants, surviving(sortof) on those grants, SSI, Section 8, and welfare. Recently appointed to the Housing Authority Advisory Board in the city of Platteville. Looking forward to graduating with a degree in programming and systems analysis, and another degree in microcomputer hardware/system software specialist by next Spring. I have 2 kids. (19) is a freshman at UW-Platteville. (17) is a junior at Platteville High School. So far, no EDS in either, although my daughter has the " symptoms " . Life goes on! And I, with it. Sharon Kay Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.