Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 ---> Blessings be with you on THursday and everyday Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 ---> Blessings be with you on THursday and everyday Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 ---> Blessings be with you on THursday and everyday Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Sending you good luck for your surgery on Thursday. We'll all be thinking about you and wishing you the best results possible. Here's another coincidence....I just received an email from Sara Hinkley at the Cholangiocarcinoma Foundation, which I never knew existed. I checked out their website, and they have a lot of valuable information on cholangiocarcinoma that might be of help to you. If you're interested, their address is www.cholangiocarcinoma.org Sending prayers your way. Ricky PSC 2003 Back from meeting with the surgeon... I'm back... It is definitely cancer, and they think it is cholangiocarcinoma. But it is not in the ducts -- that they can tell. Regards, Colleen ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Sending you good luck for your surgery on Thursday. We'll all be thinking about you and wishing you the best results possible. Here's another coincidence....I just received an email from Sara Hinkley at the Cholangiocarcinoma Foundation, which I never knew existed. I checked out their website, and they have a lot of valuable information on cholangiocarcinoma that might be of help to you. If you're interested, their address is www.cholangiocarcinoma.org Sending prayers your way. Ricky PSC 2003 Back from meeting with the surgeon... I'm back... It is definitely cancer, and they think it is cholangiocarcinoma. But it is not in the ducts -- that they can tell. Regards, Colleen ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Sending you good luck for your surgery on Thursday. We'll all be thinking about you and wishing you the best results possible. Here's another coincidence....I just received an email from Sara Hinkley at the Cholangiocarcinoma Foundation, which I never knew existed. I checked out their website, and they have a lot of valuable information on cholangiocarcinoma that might be of help to you. If you're interested, their address is www.cholangiocarcinoma.org Sending prayers your way. Ricky PSC 2003 Back from meeting with the surgeon... I'm back... It is definitely cancer, and they think it is cholangiocarcinoma. But it is not in the ducts -- that they can tell. Regards, Colleen ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Colleen, I wish you the very best in your surgery. It is so nice to have a doctor you feel comfortable with. It makes it a little better. I am surprised that the doctor recommended dairy for your liver. Do you know why? Should people with PSC be drinking milk or eating more dairy in general. I will be thinking & praying for you on the 21st. Lori A. "Aggressively Pursuing Solutions To Your Real Estate Needs!" First Weber Group Cell: 1507 E. Sunset Drive Waukesha, WI 53189 LoriUSA@... www.Lori.FirstWeber.com Back from meeting with the surgeon... I'm back...It is definitely cancer, and they think it is cholangiocarcinoma. But it is not in the ducts -- that they can tell. They are going to be operating on my on Thursday the 21st. Would you believe that there is another patient with the same condition and needing the same surgery? They scheduled him for a resection of the right lobe, and he backed out. Dr. Hertl left the surgery booked, thinking that I might take it. I guess there are no coincidences.SInce the tumor is pressing on a poral vein, and I have an enlarged lymph node just outside my liver, the big concern is if seed cancer cells have gotten into my blood stream and taken root elsewhere. He told me that I will likely loose 8-10 pounds (I weigh 120 pounds as it is) from the surgery and that I need to make eating and gaining weight my job. He told me that lots of dairy will be key in regrowing my liver. I must say that he was a wonderfully warm and kind man. I've not met many Bavarians with good senses of humor! I feel very good about having him perform the surgery, and that my care will be excellent. The lady who did my pre-admission EKG gave me a hug today! I must say that everyone there has been super-kind and helpful.That is about all I can think of now. I will be in touch and perhaps I can set up an email blast or one of those patient care websites to keep you all updated.Regards,Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Colleen, I wish you the very best in your surgery. It is so nice to have a doctor you feel comfortable with. It makes it a little better. I am surprised that the doctor recommended dairy for your liver. Do you know why? Should people with PSC be drinking milk or eating more dairy in general. I will be thinking & praying for you on the 21st. Lori A. "Aggressively Pursuing Solutions To Your Real Estate Needs!" First Weber Group Cell: 1507 E. Sunset Drive Waukesha, WI 53189 LoriUSA@... www.Lori.FirstWeber.com Back from meeting with the surgeon... I'm back...It is definitely cancer, and they think it is cholangiocarcinoma. But it is not in the ducts -- that they can tell. They are going to be operating on my on Thursday the 21st. Would you believe that there is another patient with the same condition and needing the same surgery? They scheduled him for a resection of the right lobe, and he backed out. Dr. Hertl left the surgery booked, thinking that I might take it. I guess there are no coincidences.SInce the tumor is pressing on a poral vein, and I have an enlarged lymph node just outside my liver, the big concern is if seed cancer cells have gotten into my blood stream and taken root elsewhere. He told me that I will likely loose 8-10 pounds (I weigh 120 pounds as it is) from the surgery and that I need to make eating and gaining weight my job. He told me that lots of dairy will be key in regrowing my liver. I must say that he was a wonderfully warm and kind man. I've not met many Bavarians with good senses of humor! I feel very good about having him perform the surgery, and that my care will be excellent. The lady who did my pre-admission EKG gave me a hug today! I must say that everyone there has been super-kind and helpful.That is about all I can think of now. I will be in touch and perhaps I can set up an email blast or one of those patient care websites to keep you all updated.Regards,Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Colleen, I wish you the very best in your surgery. It is so nice to have a doctor you feel comfortable with. It makes it a little better. I am surprised that the doctor recommended dairy for your liver. Do you know why? Should people with PSC be drinking milk or eating more dairy in general. I will be thinking & praying for you on the 21st. Lori A. "Aggressively Pursuing Solutions To Your Real Estate Needs!" First Weber Group Cell: 1507 E. Sunset Drive Waukesha, WI 53189 LoriUSA@... www.Lori.FirstWeber.com Back from meeting with the surgeon... I'm back...It is definitely cancer, and they think it is cholangiocarcinoma. But it is not in the ducts -- that they can tell. They are going to be operating on my on Thursday the 21st. Would you believe that there is another patient with the same condition and needing the same surgery? They scheduled him for a resection of the right lobe, and he backed out. Dr. Hertl left the surgery booked, thinking that I might take it. I guess there are no coincidences.SInce the tumor is pressing on a poral vein, and I have an enlarged lymph node just outside my liver, the big concern is if seed cancer cells have gotten into my blood stream and taken root elsewhere. He told me that I will likely loose 8-10 pounds (I weigh 120 pounds as it is) from the surgery and that I need to make eating and gaining weight my job. He told me that lots of dairy will be key in regrowing my liver. I must say that he was a wonderfully warm and kind man. I've not met many Bavarians with good senses of humor! I feel very good about having him perform the surgery, and that my care will be excellent. The lady who did my pre-admission EKG gave me a hug today! I must say that everyone there has been super-kind and helpful.That is about all I can think of now. I will be in touch and perhaps I can set up an email blast or one of those patient care websites to keep you all updated.Regards,Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Dear Colleen,Please add my prayers to all the others you will be receiving.May the surgery go well and may you recover fully.We all care how you are doing.LeeI'm back...It is definitely cancer, and they think it is cholangiocarcinoma. But it is not in the ducts -- that they can tell. They are going to be operating on my on Thursday the 21st. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Our prayers will be with you, it sounds like you are in good hands. Please let us know If you set up a care site. Bettyann (SC) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Our prayers will be with you, it sounds like you are in good hands. Please let us know If you set up a care site. Bettyann (SC) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Colleen, I hope you feel the arms of this big PSC family wrapped around you this week and realize how much we will be pulling for you on Thursday. It is wonderful that you have found a caring physician you feel confidant in. Our prayers and thoughts are with you and we look forward to your updates and your recuperation. Tarheel Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Colleen, I hope you feel the arms of this big PSC family wrapped around you this week and realize how much we will be pulling for you on Thursday. It is wonderful that you have found a caring physician you feel confidant in. Our prayers and thoughts are with you and we look forward to your updates and your recuperation. Tarheel Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Colleen, We are thinking of you and send you all the love and hugs we have for Thursday and beyond! I'm happy to hear you are comfortable with the doctor, it makes a big difference. Take care, and know we are all thinking of you. - Severin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Colleen, We are thinking of you and send you all the love and hugs we have for Thursday and beyond! I'm happy to hear you are comfortable with the doctor, it makes a big difference. Take care, and know we are all thinking of you. - Severin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Colleen, We are thinking of you and send you all the love and hugs we have for Thursday and beyond! I'm happy to hear you are comfortable with the doctor, it makes a big difference. Take care, and know we are all thinking of you. - Severin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Hi Colleen, My thoughts are with you, especially on Thursday. I'm hoping it's not cholangiocarcinoma, since it's not in the ducts. I truly hope the cancer is confined to the liver area. Keep us posted as to your progress. Marie Get ideas on sharing photos from people like you. Find new ways to share. Get Ideas Here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Hi Colleen, My thoughts are with you, especially on Thursday. I'm hoping it's not cholangiocarcinoma, since it's not in the ducts. I truly hope the cancer is confined to the liver area. Keep us posted as to your progress. Marie Get ideas on sharing photos from people like you. Find new ways to share. Get Ideas Here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Hi Colleen, My thoughts are with you, especially on Thursday. I'm hoping it's not cholangiocarcinoma, since it's not in the ducts. I truly hope the cancer is confined to the liver area. Keep us posted as to your progress. Marie Get ideas on sharing photos from people like you. Find new ways to share. Get Ideas Here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Colleen, Thinking of you and sending lots of positive energy your way. Hope everything goes well for you and your family on Thursday. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Colleen, Thinking of you and sending lots of positive energy your way. Hope everything goes well for you and your family on Thursday. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Colleen, Thinking of you and sending lots of positive energy your way. Hope everything goes well for you and your family on Thursday. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Hi Colleen, Sorry I'm so late answerin,but I've been away. When I had my tx in Aug 02, the Dr told me he found a large "funky mass" on the side of my liver and when tested it contained a small, 2 to 3 cm HCC tumor inside. My tx was for PSC and no one had a clue as to the HCC, and it came out with my liver. Just want you to know that there could be many ways for this to come out. Our thoughts will be with you. Tim Long PS your sisters backyard is awesome, your Doc was probably just jealous he wasn't on tht water. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Our thoughts and prayers are with you. and Franson Quote Link to comment Share on other sites More sharing options...
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