Re: Back From Recent Hospital Stay

[Guest guest]

Hi Janet,

My quality of life with a stent is a 180 degree turn-around from

without one! I have much more energy, nearly no itching, no jaundice,

and I function fairly normally--it's really been my saving grace, to be

stented. When I'm not stented my liver function decreases rapidly, I

get VERY yellow, and I can't peel myself from the couch because of the

fatigue.

I had significant pain for about a week after my first ERCP/stent

insertion. I suspect that this is because I had a sphincterotomy done

during that procedure. I have never had any trouble since then, and I

am continually re-stented every 6-10 weeks or so.

Genevieve

UC 1983, J-Pouch 1999, PSC 12/07

>

> Hi, everyone. The lurker, Janet from Jersey, here again and I'm

> back from my hospital stay.

>

> I do have a few questions for those you who have had stents for a

> number of years: How are you doing generally? Do you have severe,

> moderate or mild pain over time with the removal and insertion of

> numerous stents? Do you feel stenting has really helped you to live

> with PSC?

>

> Thanks

>