Re: BETH--Advice: Problem solved!

[Guest guest]

Thank you all for your responses! But about four hours or so after I

posted about this, I ended up in the ER because the pain got so

severe. It started at work with a pretty nasty flare-up, and I made

the mistake of following some advice made without professional backing

(I know, a truly stupid move, but I was so frustrated at this point, I

didn't know what else to do) and pushed myself too hard bellydancing.

I ended up spending two hours in the ER, and got some lortab

(basically codeine and tylenol, lol) and a muscle relaxer and a letter

from the ER doc that says I needed two days off from work/school. So

I took the note to my boss and left my med. bracelet on and tried

again to explain more in depth what I have and why that means I need

to sit, and she agreed to give me a chair for friday and monday, but

that i need to take it up with the higher-ups if i still need a chair

for the new place (obviously, I do). I go talk to them on friday. It

sucks that this had to happen this way, since it was the most intense

pain I have ever felt, ever. I also called my doctor and basically

told her that my medication was not working, and I'm waiting to hear

back from them.

It sucks that it had to come to something this intense to make them

listen, moreso that something this debilitating has come between me

and the only real form of exercise I get anymore...but now I know

better, I guess. But again, thank you so much everyone! I really

needed to hear from some people who actually believes my pain and

understands what I'm going through. It's not fun to feel like you

have to fight the world alone about this, so having support is

wonderful

Happy Halloween!

Beth

>

>

> Hi Beth,

>

> I just read your post and what stands out to me and I am sure a lot of

> others is that there are still a lot of medical professionals out there

> that still think these symptoms are " in our heads " and that we just need

> to relax or whatever. All of us have problems that are not exactly the

> same, but have enough similarities that we can understand what the

> others are going through. It is very tough to have a doc not listen to

> you. I have been there and I am sure that everyone on this group has

> been there. Nobody likes to be in pain and nodoby likes to have pain

> with sex. I would try and call or go back and see this specialist again

> and just be honest about what is going on. Just because your symptoms

> have changed since you filled out the paperwork for the poll does not

> mean that they are not real. My symptoms change occasionally. All you

> can do is be honest and if you cannot get anywhere with this doctor,

> than go to another one. You have to keep trying until you find a doc

> that is compassionate and will listen to what is going on with you. It

> is very reasonable that you are having pelvic pain issues with standing

> for hours. Asking for a chair so you are not in pain and you can still

> continue to work and be comfortable is not unreasonable! Call your

> docs office and if they will not give you a note than request to go in

> and talk with the doctor. Good luck!

>

> Mindy

>