Re: What is a chloangitis attack?

September 19, 2008

Hi , in regards to below question, we often wonder the same thing. Why does Cholangitis attack happen? What caused it? How do you know it is an attack? And, I have yet to come to really understand it. I feel for you as my son has had the same tests and the same type of attack out of nowhere. One minute he was fine and the next, his GGT was in the 900's.with intense RUQ pain. It is sad that your little girl has to go thru this at such an early age. Poor little one. Howeve, we did get thru it and the Urso has prevented our Tyler from having any other attacks for about 1.5 years now. I have felt much relief and support thru PSC support. I am sure everyone is wishing for the best for your daughter, as we are.

Stevie OStos (mother to tyler age 10 -PSC, UC and osteoporosis)

and McKenna age 6

I have read that you can have a chloangitis attack but I'm not sure what that is. And are there certain foods to avoid if your suffering from this disease?

September 19, 2008

Cholangitis is inflamation of the bile ducts. Here are some of what

seems to be the most common symptoms of a cholangitis attack. That have

been posted by some people in earlier post. They do not all have to be

present, but if a fever is than a call to the doctor or trip to the ER

is in order.

pain in the right upper quarter of the abdomen

fever

chills

jaundice - yellowing of the skin and eyes.

low blood pressure

lethargy

decreased level of alertness

Some people also report the RUQ pain that radiates around to the back,

in addition to dark (cola colored) urine, pale stools and extreme

nausea.

Many of us have found that following a low fat diet is helpful, also

staying well hydrated.

As far as what causes the attack and preventing them, These attacks are

caused by bacteria getting stuck in the bile ducts due to strictures or

blockage caused by PSC or sometimes it is caused by what is often call

sludge.

Generally it seems we are at the mercy of the disease. I am sure

someone will answer with a more details, but this is the basics.

PSC 5/07 Listed

September 19, 2008

,Great description. I'm saving this e-mail.Marie

To: From: heartrn45@...Date: Sat, 20 Sep 2008 00:49:02 +0000Subject: Re: What is a chloangitis attack?

Cholangitis is inflamation of the bile ducts. Here are some of what

seems to be the most common symptoms of a cholangitis attack. That have

been posted by some people in earlier post. They do not all have to be

present, but if a fever is than a call to the doctor or trip to the ER

is in order.

pain in the right upper quarter of the abdomen

fever

chills

jaundice - yellowing of the skin and eyes.

low blood pressure

lethargy

decreased level of alertness

Some people also report the RUQ pain that radiates around to the back,

in addition to dark (cola colored) urine, pale stools and extreme

nausea.

Many of us have found that following a low fat diet is helpful, also

staying well hydrated.

As far as what causes the attack and preventing them, These attacks are

caused by bacteria getting stuck in the bile ducts due to strictures or

blockage caused by PSC or sometimes it is caused by what is often call

sludge.

Generally it seems we are at the mercy of the disease. I am sure

someone will answer with a more details, but this is the basics.

PSC 5/07 Listed

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September 20, 2008

Stevie,

When you mention Urso are you referring to Ursodiol? My dauhgter was

just put on this medication as well as Sulfasaylazine. They are also

talking about putting her on Imuran. This is all so new to me I am

having a hard time not panicking!

>

> Hi , in regards to below question, we often wonder the same

thing.

> Why does Cholangitis attack happen? What caused it? How do you

know it is

> an attack? And, I have yet to come to really understand it. I

feel for

> you as my son has had the same tests and the same type of attack

out of

> nowhere. One minute he was fine and the next, his GGT was in the

> 900's.with intense RUQ pain. It is sad that your little girl has

to go

> thru this at such an early age. Poor little one. Howeve, we did

get thru

> it and the Urso has prevented our Tyler from having any other

attacks for

> about 1.5 years now. I have felt much relief and support thru PSC

> support. I am sure everyone is wishing for the best for your

daughter,

> as we are.

>

> Stevie OStos (mother to tyler age 10 -PSC, UC and osteoporosis)

> and McKenna age 6

>

> I have read that you can have a chloangitis attack but I'm not sure

what

> that is. And are there certain foods to avoid if your suffering

from this

> disease?

>

September 20, 2008

Hi ,

A classic cholangitis attack for me is fever above 101.00 F with

chills. If I get both of those symptoms, I head straight to the

nearest ER and treat it like a cholangitis attack until proven

otherwise. I personally have never had URQ pain or jaundice or any

of the other symptoms that can go along with it, but I always get a

sense of general 'unwell-ness'. Several times I've had some mental

confusion to accompany the fever and chills.

Genevieve

UC 1983, J-Pouch 1999, PSC 12/07

> I have read that you can have a chloangitis attack but I'm not sure

what that is. And are there certain foods to avoid if your suffering

from this disease?

>

September 21, 2008

That is Exactly what I went through.. Also some constipation goes

with that. If you take Lactolose it will keep you from having one.

Great question and a perfect answer. GOD bless the PSC group.. You

are all in my prayers. Ken Son of Barb..

>

> Hi ,

>

> A classic cholangitis attack for me is fever above 101.00 F with

> chills. If I get both of those symptoms, I head straight to the

> nearest ER and treat it like a cholangitis attack until proven

> otherwise. I personally have never had URQ pain or jaundice or any

> of the other symptoms that can go along with it, but I always get a

> sense of general 'unwell-ness'. Several times I've had some mental

> confusion to accompany the fever and chills.

>

> Genevieve

> UC 1983, J-Pouch 1999, PSC 12/07

>

> > I have read that you can have a chloangitis attack but I'm not sure

> what that is. And are there certain foods to avoid if your suffering

> from this disease?

> >

>

September 23, 2008

Curious, how do they treat the attack?

September 23, 2008

Curious, how do they treat the attack?

September 23, 2008

Curious, how do they treat the attack?

September 23, 2008

Hi , yes it was Ursodil or Actigal (generic I believe). It helps with bile flow. They say cholangitis is because the bile ducts get blocked and I guess the Urso pushes the sludge thru to help with avoiding attacks. Along with it Tyler takes Azacol for his UC and he did take prednisone but he became dependent on them and his body could not adjust to being off of them so he would constantly have bloody stools every time we tried to decrease the steroids which is why he now gets Remicade infusions every 8 weeks and is off the prednisone all together. He was on 6MP for a while and Allu purinol too but nothing worked for the UC until the Remicade. So far, since the Urso his liver functiin tests have been good and no attacks since. They say the Remicade helps with the PSC too. Not sure if this is helpful but feel free to ask anything anytime. I know it is very hard...

At Your Service,

Stevie Lynn Gedgaudas

Customer Care Manager

Apple Vacations

101 Northwest Point Blvd.

Elk Grove Village, IL 60007

sgedgaud@...

" monteirowendy "

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09/20/2008 04:03 PM