Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 I am not sure if anyone has ever asked this. But I was diagnosed this summer with PSC. And have always been a support of blood donation. Now that I have been diagnosed does that disqualify me from donating blood now??? I have had 2 cholangitis attacks so far but no other issues yet. Beth B Thornton, CO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 I've been advised not to donate blood - not due to PSC but due to meds I take for UC. My hemoglobin count is low normal anyway, which would preclude me from donating. I haven't donated for about 20 years as a result. Arne 57 - UC 1977 - PSC 2000 Alive and well in Minnesota From: [mailto: ] On Behalf Of b_brandel58 ....Now that I have been diagnosed does that disqualify me from donating blood now??? I have had 2 cholangitis attacks so far but no other issues yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Sadly, about 25 years ago (I'm 53 now), my specialist told me that Iwas destined to be the type of person who receives blood donations (due to medications and generally poor and/or complicated health issues), not the type who could donate the blood myself. And it proved right; I've had multiple transfusions in the last 15 years, all for low crit (anemia, not enough iron in my bloodstream). I was disappointed that I wasn't able to help others, but have signed paperwork to donate my body to PSC research. At least I may be able to help others in the best way possible. And even though I'm an avid political animal (walking precincts every weekend, phone banks on weeknights), the only bumper stickers on my car are dedicated to promote donor awareness. Debbie in Seattle. PSC, stage 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Don't feel bad,,,,they would not let me donate blood simply because I was an RN working Labor and Delivery. Subject: Re:off topic questionTo: Date: Sunday, October 12, 2008, 3:33 PM Sadly, about 25 years ago (I'm 53 now), my specialist told me that Iwas destined to be the type of person who receives blood donations (due to medications and generally poor and/or complicated health issues), not the type who could donate the blood myself. And it proved right; I've had multiple transfusions in the last 15 years, all for low crit (anemia, not enough iron in my bloodstream) . I was disappointed that I wasn't able to help others, but have signed paperwork to donate my body to PSC research. At least I may be able to help others in the best way possible. And even though I'm an avid political animal (walking precincts every weekend, phone banks on weeknights), the only bumper stickers on my car are dedicated to promote donor awareness. Debbie in Seattle. PSC, stage 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Debbie, What did paperwork didn you sign to donate your body to PSC research? I would definitely be interested in doing that too, not that I'm planning on dying anytime soon. Thanks, Darcy have signed paperwork to donate my body to PSC research. At least I may be able to help others in the best way possible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Beth, I am also on blood thinners so I am no longer able to donate (with all the blood tests I've gone through I no longer fear needles). It may be still possible for you to donate. Check at your local blood clinic. Ian (52) PSC 89 I am not sure if anyone has ever asked this. But I was diagnosed this summer with PSC. And have always been a support of blood donation.Now that I have been diagnosed does that disqualify me from donating blood now??? I have had 2 cholangitis attacks so far but no other issues yet.Beth B Thornton, CO -- Ian Cribb P.Eng. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 I have never been able to donate blood because I had hepatitis when I was a teenager. Turns out it was hepatitis A. I still can't donate blood, but now there are probably multiple reasons why I can't donate. However, I can be an organ donor (to anyone who has had Hep A), so I am that. I doubt anyone would want my liver, but as I was told, if someone is waiting for an organ, near death, has had Hep A, then one of my organs may be considered as it would be better than death. And I do have a Donate Life bumper sticker on my car. Interestingly, I had someone try to run me off the road not too long ago. I couldn't figure it out, but then I remembered the bumper sticker. Not sure why someone would want to run me off the road because of that, but there are some people opposed to organ donations.Marie To: From: icribb@...Date: Sun, 12 Oct 2008 13:47:27 -0800Subject: Re: off topic question Beth, I am also on blood thinners so I am no longer able to donate (with all the blood tests I've gone through I no longer fear needles). It may be still possible for you to donate. Check at your local blood clinic. Ian (52) PSC 89 On 10/11/08, b_brandel58 <solarcheek (AT) msn (DOT) com> wrote: I am not sure if anyone has ever asked this. But I was diagnosed this summer with PSC. And have always been a support of blood donation.Now that I have been diagnosed does that disqualify me from donating blood now??? I have had 2 cholangitis attacks so far but no other issues yet.Beth B Thornton, CO -- Ian Cribb P.Eng. Stay up to date on your PC, the Web, and your mobile phone with Windows Live. See Now Quote Link to comment Share on other sites More sharing options...
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