Re: Taking my mommy with me!

[Guest guest]

Very awesome. LeeAlso -- my mom told me that if I need to go to Mayo for them to try another ERCP on me, she will pay for the flight out and go with me! How awesome is my mom?Colleen

[Guest guest]

I just wish my mom were able to go. I'm single, so I have my brother or sister-in-law with me when I see the hepatologist.Marie

To: From: cgkueter@...Date: Wed, 14 May 2008 20:26:22 +0000Subject: Taking my mommy with me!

My husband can't go to my f/u appointment next week, and I really want to have another set

of ears in the room with me for my appointment with Dr. Pratt, so my mom is going with me.

I feel a tad silly, at 40, bringing my mommy, but I figure if I miss anything, hopefully she will

catch it. And she knows the drill, as she used to be very involved with my UC appointments

when I was underage.

Also -- my mom told me that if I need to go to Mayo for them to try another ERCP on me,

she will pay for the flight out and go with me! How awesome is my mom?

Colleen

With Windows Live for mobile, your contacts travel with you. Connect on the go.

[Guest guest]

I just wish my mom were able to go. I'm single, so I have my brother or sister-in-law with me when I see the hepatologist.Marie

To: From: cgkueter@...Date: Wed, 14 May 2008 20:26:22 +0000Subject: Taking my mommy with me!

My husband can't go to my f/u appointment next week, and I really want to have another set

of ears in the room with me for my appointment with Dr. Pratt, so my mom is going with me.

I feel a tad silly, at 40, bringing my mommy, but I figure if I miss anything, hopefully she will

catch it. And she knows the drill, as she used to be very involved with my UC appointments

when I was underage.

Also -- my mom told me that if I need to go to Mayo for them to try another ERCP on me,

she will pay for the flight out and go with me! How awesome is my mom?

Colleen

With Windows Live for mobile, your contacts travel with you. Connect on the go.

[Guest guest]

And yes - your Mom is awesome!Marie

To: From: cgkueter@...Date: Wed, 14 May 2008 20:26:22 +0000Subject: Taking my mommy with me!

My husband can't go to my f/u appointment next week, and I really want to have another set

of ears in the room with me for my appointment with Dr. Pratt, so my mom is going with me.

I feel a tad silly, at 40, bringing my mommy, but I figure if I miss anything, hopefully she will

catch it. And she knows the drill, as she used to be very involved with my UC appointments

when I was underage.

Also -- my mom told me that if I need to go to Mayo for them to try another ERCP on me,

she will pay for the flight out and go with me! How awesome is my mom?

Colleen

With Windows Live for mobile, your contacts travel with you. Connect on the go.

[Guest guest]

And yes - your Mom is awesome!Marie

To: From: cgkueter@...Date: Wed, 14 May 2008 20:26:22 +0000Subject: Taking my mommy with me!

My husband can't go to my f/u appointment next week, and I really want to have another set

of ears in the room with me for my appointment with Dr. Pratt, so my mom is going with me.

I feel a tad silly, at 40, bringing my mommy, but I figure if I miss anything, hopefully she will

catch it. And she knows the drill, as she used to be very involved with my UC appointments

when I was underage.

Also -- my mom told me that if I need to go to Mayo for them to try another ERCP on me,

she will pay for the flight out and go with me! How awesome is my mom?

Colleen

With Windows Live for mobile, your contacts travel with you. Connect on the go.

[Guest guest]

No matter how old you are, doctors should know better than to mess

with a mom! She sounds great!

BTW, my husband always had to go with me to appointments since the

damage to my ears from the gentamicin was enough to prevent me from

driving for well over a year. He'd sit quietly with me in the exam

room calmly reading a copy of any legal newspaper with a malpractice

headline. Hee hee.

Penny

-- In , " Colleen Garvey Kueter "

wrote:

>

>

> Also -- my mom told me that if I need to go to Mayo for them to try

another ERCP on me,

> she will pay for the flight out and go with me! How awesome is my mom?

>

> Colleen

>

[Guest guest]

No matter how old you are, doctors should know better than to mess

with a mom! She sounds great!

BTW, my husband always had to go with me to appointments since the

damage to my ears from the gentamicin was enough to prevent me from

driving for well over a year. He'd sit quietly with me in the exam

room calmly reading a copy of any legal newspaper with a malpractice

headline. Hee hee.

Penny

-- In , " Colleen Garvey Kueter "

wrote:

>

>

> Also -- my mom told me that if I need to go to Mayo for them to try

another ERCP on me,

> she will pay for the flight out and go with me! How awesome is my mom?

>

> Colleen

>

[Guest guest]

>

> BTW, my husband always had to go with me to appointments since the

> damage to my ears from the gentamicin was enough to prevent me from

> driving for well over a year. He'd sit quietly with me in the exam

> room calmly reading a copy of any legal newspaper with a malpractice

> headline. Hee hee.

ROFL!!!!! Oh Penny, that's the best yet!!!!! I love it!!!

Regards,

Carolyn B. in SC

[Guest guest]

I just wanted to let you know that I am 31 years old, newly diagnosed. I have a husband who works alot in the summer, and with me on diability we need his money, SO my mom is ALWAYS my dr. partner. Moms know what to ask, and moms are worried like everyone else, and because this is newish to me, I kinda lose track of what the dr. is saying, sorry ADD, but also having my mom there gives peace of mind to those who worry, like my aunt, uncle, cousins, dad, grandpa, grandma....she pays attention and is able to update everyone more accurately. Yes this disease scares her, but it terrifies me, so I need a rock, and when my husband is working hard for our money, i have somelse to lean on. It is a mother's love, doesn't seem strange at all, it is a great idea.leedeubert wrote: Very awesome. Lee Also -- my mom told

me that if I need to go to Mayo for them to try another ERCP on me, she will pay for the flight out and go with me! How awesome is my mom?Colleen

[Guest guest]

Penny

My mom was a state representative for 8 years (4 terms) and ran unopposed for 3

of those 4

terms. She is the original 800 pound gorilla -- and everyone knows that old saw

about where

an 800 pound gorilla sits!

Colleen

>

He'd sit quietly with me in the exam

> room calmly reading a copy of any legal newspaper with a malpractice

> headline. Hee hee.

[Guest guest]

Penny

My mom was a state representative for 8 years (4 terms) and ran unopposed for 3

of those 4

terms. She is the original 800 pound gorilla -- and everyone knows that old saw

about where

an 800 pound gorilla sits!

Colleen

>

He'd sit quietly with me in the exam

> room calmly reading a copy of any legal newspaper with a malpractice

> headline. Hee hee.

[Guest guest]

My mom has really been a huge help. She and my stepfather (my dad passed away 10

years

ago) took care of our little ones when I had my biopsy. And I understand your

struggle -- we

are a family of four living on one income, plus whatever income I can earn

working part time

from home. I'm finding it so hard to do these days. Being a mom to young

children plus

feeling so run down from my PSC, plus attempting to earn some extra money --

it isn't easy

trying to keep all the plates spinning. I hate that part of this, as I used to

have more energy

than I knew what to do with. Feeling this tired makes me feel like such a loser

and like I am

letting everyone down. It is hard for me to admit that I just can't do it all

and keep myself

well.

Colleen

>

when my husband is working hard for our money, i have somelse to lean on.

[Guest guest]

My mom has really been a huge help. She and my stepfather (my dad passed away 10

years

ago) took care of our little ones when I had my biopsy. And I understand your

struggle -- we

are a family of four living on one income, plus whatever income I can earn

working part time

from home. I'm finding it so hard to do these days. Being a mom to young

children plus

feeling so run down from my PSC, plus attempting to earn some extra money --

it isn't easy

trying to keep all the plates spinning. I hate that part of this, as I used to

have more energy

than I knew what to do with. Feeling this tired makes me feel like such a loser

and like I am

letting everyone down. It is hard for me to admit that I just can't do it all

and keep myself

well.

Colleen

>

when my husband is working hard for our money, i have somelse to lean on.

[Guest guest]

This is extremely important to have an advocate with you. I've been fortunate to have my wife there for every (important) time. We're not always in a " condition " to understand/comprehend everything that's communicated; we're pretty hard on our caregivers as it is, but I (for one) am VERY appreciative!

Arne

56 - UC 1977 - PSC 2000

Alive and well in Minnesota

________________________________

From: [mailto: ] On Behalf Of Colleen Garvey Kueter

....I feel a tad silly, at 40, bringing my mommy, but I figure if I miss anything, hopefully she will

catch it...

[Guest guest]

This is extremely important to have an advocate with you. I've been fortunate to have my wife there for every (important) time. We're not always in a " condition " to understand/comprehend everything that's communicated; we're pretty hard on our caregivers as it is, but I (for one) am VERY appreciative!

Arne

56 - UC 1977 - PSC 2000

Alive and well in Minnesota

________________________________

From: [mailto: ] On Behalf Of Colleen Garvey Kueter

....I feel a tad silly, at 40, bringing my mommy, but I figure if I miss anything, hopefully she will

catch it...

[Guest guest]

Hi Tim,

We hope you realize how much we care for you….a special person

in our lives. All those wonderful things you said about us apply to and

you as well, but thanks so much.

Ricky and Don

I liked all your e-mails today Tim, but I

liked this one the best. And Kudos to Don Safer! Thanks for sharing this

information.

Marie

To:

CC: weller@...

From: timwholey@...

Date: Thu, 15 May 2008 15:05:15 -0400

Subject: Re: Re: Taking my mommy with me!

How about taking Don Safer with you.......

Tarheel Tim

Windows

Live SkyDrive lets you share files with faraway friends. Start sharing.

[Guest guest]

Hi Tim,

We hope you realize how much we care for you….a special person

in our lives. All those wonderful things you said about us apply to and

you as well, but thanks so much.

Ricky and Don

I liked all your e-mails today Tim, but I

liked this one the best. And Kudos to Don Safer! Thanks for sharing this

information.

Marie

To:

CC: weller@...

From: timwholey@...

Date: Thu, 15 May 2008 15:05:15 -0400

Subject: Re: Re: Taking my mommy with me!

How about taking Don Safer with you.......

Tarheel Tim

Windows

Live SkyDrive lets you share files with faraway friends. Start sharing.

[Guest guest]

Hi Tim,

We hope you realize how much we care for you….a special person

in our lives. All those wonderful things you said about us apply to and

you as well, but thanks so much.

Ricky and Don

I liked all your e-mails today Tim, but I

liked this one the best. And Kudos to Don Safer! Thanks for sharing this

information.

Marie

To:

CC: weller@...

From: timwholey@...

Date: Thu, 15 May 2008 15:05:15 -0400

Subject: Re: Re: Taking my mommy with me!

How about taking Don Safer with you.......

Tarheel Tim

Windows

Live SkyDrive lets you share files with faraway friends. Start sharing.

[Guest guest]

Arne

I think this is why my mom offered to go with me -- not so much to advocate for

me (the

acorn doesn't fall far from the tree -- I can be a pain in the you-know-what!)

but to listen

to everything. I've definitely been compartmentalizing this and keeping Jens out

of the

loop. But that isn't going to work very well from here on out. Jens is going to

have to go

with me to some of these appointments so he knows my staus as well as I do. I

guess this

is where the " for better or worse " part of the vows kicks in.

Colleen

u/c 8/1984

psc 8/2000

>

> We're not

> always in a " condition " to understand/comprehend everything that's

> communicated; we're pretty hard on our caregivers as it is, but I (for one)

> am VERY appreciative!

[Guest guest]

Arne

I think this is why my mom offered to go with me -- not so much to advocate for

me (the

acorn doesn't fall far from the tree -- I can be a pain in the you-know-what!)

but to listen

to everything. I've definitely been compartmentalizing this and keeping Jens out

of the

loop. But that isn't going to work very well from here on out. Jens is going to

have to go

with me to some of these appointments so he knows my staus as well as I do. I

guess this

is where the " for better or worse " part of the vows kicks in.

Colleen

u/c 8/1984

psc 8/2000

>

> We're not

> always in a " condition " to understand/comprehend everything that's

> communicated; we're pretty hard on our caregivers as it is, but I (for one)

> am VERY appreciative!

[Guest guest]

Arne

I think this is why my mom offered to go with me -- not so much to advocate for

me (the

acorn doesn't fall far from the tree -- I can be a pain in the you-know-what!)

but to listen

to everything. I've definitely been compartmentalizing this and keeping Jens out

of the

loop. But that isn't going to work very well from here on out. Jens is going to

have to go

with me to some of these appointments so he knows my staus as well as I do. I

guess this

is where the " for better or worse " part of the vows kicks in.

Colleen

u/c 8/1984

psc 8/2000

>

> We're not

> always in a " condition " to understand/comprehend everything that's

> communicated; we're pretty hard on our caregivers as it is, but I (for one)

> am VERY appreciative!

[Guest guest]

>

> My husband can't go to my f/u appointment next week, and I really

want to have another set

> of ears in the room with me for my appointment with Dr. Pratt, so my

mom is going with me.

> I feel a tad silly, at 40, bringing my mommy, but I figure if I miss

anything, hopefully she will

> catch it. And she knows the drill, as she used to be very involved

with my UC appointments

> when I was underage.

>

> Also -- my mom told me that if I need to go to Mayo for them to try

another ERCP on me,

> she will pay for the flight out and go with me! How awesome is my mom?

>

> Colleen

>

My Mom went everywhere I went. To every app. to every ERCP,MRI,

Doctors app. She is the greatest!!! I am 34 and would not be here on

earth if it was not for her. I felt nothing but being blessed to have

her there.

She went through 2 liver transplants, comas, 3 months at hospital and

was there everyday. Being my caregiver she helped me keep track of

pills and was there everytime!! Don't feel silly feel blessed that

you too have a Mom that is willing to do everything with you. a good

support team is what you need. My prayers are with you. Ken