Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Sher Sometime back I did a bit of research and found an interesting study done in New Mexico. Roughly 15% of the death certificates were prepared correctly per the International Classification of Diseases and US guidelines. My mother died as a result of a stroke which resulted from years of arterial issues but the cause of death which was technically correct was " respiratory failure. " She did stop breathing after being removed from life support in a comatose state. The indirect causes are rarely listed correctly. Furthermore even if they are, its complicated. PF caused by drugs, inhalation of hemicals, radiation, or other external agents is listed in an entirely different area of the classifications from other PF. So, there is no such thing as accurate numbers on causes of deaths. They are all very rough estimates. What if you have an autoimmune causing PF which in turn leads to PH? Or Diabetes related death caused by diabetes which resulted from prednisone used for treating PF? > > From: Sher Bauman bofus (AT) wbcable (DOT) net> > Subject: A little correction > To: Breathe-Support@ yahoogroups. com > Date: Monday, October 13, 2008, 3:46 PM > > > The pictures Jack sent are of his GRANDdaughters. ..not daughters. Sure pretty at any rate... > > > MamaSher, age 70. IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Sher Sometime back I did a bit of research and found an interesting study done in New Mexico. Roughly 15% of the death certificates were prepared correctly per the International Classification of Diseases and US guidelines. My mother died as a result of a stroke which resulted from years of arterial issues but the cause of death which was technically correct was " respiratory failure. " She did stop breathing after being removed from life support in a comatose state. The indirect causes are rarely listed correctly. Furthermore even if they are, its complicated. PF caused by drugs, inhalation of hemicals, radiation, or other external agents is listed in an entirely different area of the classifications from other PF. So, there is no such thing as accurate numbers on causes of deaths. They are all very rough estimates. What if you have an autoimmune causing PF which in turn leads to PH? Or Diabetes related death caused by diabetes which resulted from prednisone used for treating PF? > > From: Sher Bauman bofus (AT) wbcable (DOT) net> > Subject: A little correction > To: Breathe-Support@ yahoogroups. com > Date: Monday, October 13, 2008, 3:46 PM > > > The pictures Jack sent are of his GRANDdaughters. ..not daughters. Sure pretty at any rate... > > > MamaSher, age 70. IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Bruce, The other thing I was thinking was there can be a huge gap between what is on the actualy death certificate and what the family chooses to include in the obituary. Families can have a variety of reasons for not giving specific cause of death information in a published obituary. They might view it as a privacy issue. Mae's family did include a request for donations to the PF Foundation which is a pretty powerful statement of what contributed to hear death. Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 A little correction> To: Breathe-Support@ yahoogroups. com> Date: Monday, October 13, 2008, 3:46 PM>>> The pictures Jack sent are of his GRANDdaughters. ..not daughters.Sure pretty at any rate...>>> MamaSher, age 70. IPF 3-06, OR.> Nasturtiums> Don't fret about tomorrow, God is already there!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Bruce, The other thing I was thinking was there can be a huge gap between what is on the actualy death certificate and what the family chooses to include in the obituary. Families can have a variety of reasons for not giving specific cause of death information in a published obituary. They might view it as a privacy issue. Mae's family did include a request for donations to the PF Foundation which is a pretty powerful statement of what contributed to hear death. Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 A little correction> To: Breathe-Support@ yahoogroups. com> Date: Monday, October 13, 2008, 3:46 PM>>> The pictures Jack sent are of his GRANDdaughters. ..not daughters.Sure pretty at any rate...>>> MamaSher, age 70. IPF 3-06, OR.> Nasturtiums> Don't fret about tomorrow, God is already there!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Bruce, The other thing I was thinking was there can be a huge gap between what is on the actualy death certificate and what the family chooses to include in the obituary. Families can have a variety of reasons for not giving specific cause of death information in a published obituary. They might view it as a privacy issue. Mae's family did include a request for donations to the PF Foundation which is a pretty powerful statement of what contributed to hear death. Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 A little correction> To: Breathe-Support@ yahoogroups. com> Date: Monday, October 13, 2008, 3:46 PM>>> The pictures Jack sent are of his GRANDdaughters. ..not daughters.Sure pretty at any rate...>>> MamaSher, age 70. IPF 3-06, OR.> Nasturtiums> Don't fret about tomorrow, God is already there!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 MB Its also one of the things that both the NIH and the Centers of Excellence are trying to collect information on and that is tracking those with PF through the rest of their lives to see what other conditions they contract and what ultimately leads to their death. There is still so little information and many of the assumptions turn out to be invalid. For instance, we all know that there are many of us with GERD/Acid Reflux. Most of us have been told how important it is with PF to keep the GERD controlled. Surely seems logical. Then, however, you see small studies that conclude morbidity of those with PF with GERD is no different than the general population. That doesn't mean quality of life though. So ultimately we use our best judgement based on what we know. I don't know if my GERD is under control or not but have simply been told to continue on 80 MG of Nexium. Why not a test to see if its under control? Well, the gastroenterologist feels there is too much damage to me having any more tubes or cameras or anything down my esophagus. Even something as simple as oxygen saturation levels. We all have been educated one way or another to know that below a certain level (generally 90% is used but some use 92% and some use 88%) can increase danger to our other organs. But, in reality what is the % or how long or how frequent or if the magic number is 90%, then is 95% better for us than 93%. > > > > From: Sher Bauman bofus (AT) wbcable (DOT) net> > > Subject: A little correction > > To: Breathe-Support@ yahoogroups. com > > Date: Monday, October 13, 2008, 3:46 PM > > > > > > The pictures Jack sent are of his GRANDdaughters. ..not daughters. > Sure pretty at any rate... > > > > > > MamaSher, age 70. IPF 3-06, OR. > > Nasturtiums > > Don't fret about tomorrow, God is already there! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 MB Its also one of the things that both the NIH and the Centers of Excellence are trying to collect information on and that is tracking those with PF through the rest of their lives to see what other conditions they contract and what ultimately leads to their death. There is still so little information and many of the assumptions turn out to be invalid. For instance, we all know that there are many of us with GERD/Acid Reflux. Most of us have been told how important it is with PF to keep the GERD controlled. Surely seems logical. Then, however, you see small studies that conclude morbidity of those with PF with GERD is no different than the general population. That doesn't mean quality of life though. So ultimately we use our best judgement based on what we know. I don't know if my GERD is under control or not but have simply been told to continue on 80 MG of Nexium. Why not a test to see if its under control? Well, the gastroenterologist feels there is too much damage to me having any more tubes or cameras or anything down my esophagus. Even something as simple as oxygen saturation levels. We all have been educated one way or another to know that below a certain level (generally 90% is used but some use 92% and some use 88%) can increase danger to our other organs. But, in reality what is the % or how long or how frequent or if the magic number is 90%, then is 95% better for us than 93%. > > > > From: Sher Bauman bofus (AT) wbcable (DOT) net> > > Subject: A little correction > > To: Breathe-Support@ yahoogroups. com > > Date: Monday, October 13, 2008, 3:46 PM > > > > > > The pictures Jack sent are of his GRANDdaughters. ..not daughters. > Sure pretty at any rate... > > > > > > MamaSher, age 70. IPF 3-06, OR. > > Nasturtiums > > Don't fret about tomorrow, God is already there! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 MB Its also one of the things that both the NIH and the Centers of Excellence are trying to collect information on and that is tracking those with PF through the rest of their lives to see what other conditions they contract and what ultimately leads to their death. There is still so little information and many of the assumptions turn out to be invalid. For instance, we all know that there are many of us with GERD/Acid Reflux. Most of us have been told how important it is with PF to keep the GERD controlled. Surely seems logical. Then, however, you see small studies that conclude morbidity of those with PF with GERD is no different than the general population. That doesn't mean quality of life though. So ultimately we use our best judgement based on what we know. I don't know if my GERD is under control or not but have simply been told to continue on 80 MG of Nexium. Why not a test to see if its under control? Well, the gastroenterologist feels there is too much damage to me having any more tubes or cameras or anything down my esophagus. Even something as simple as oxygen saturation levels. We all have been educated one way or another to know that below a certain level (generally 90% is used but some use 92% and some use 88%) can increase danger to our other organs. But, in reality what is the % or how long or how frequent or if the magic number is 90%, then is 95% better for us than 93%. > > > > From: Sher Bauman bofus (AT) wbcable (DOT) net> > > Subject: A little correction > > To: Breathe-Support@ yahoogroups. com > > Date: Monday, October 13, 2008, 3:46 PM > > > > > > The pictures Jack sent are of his GRANDdaughters. ..not daughters. > Sure pretty at any rate... > > > > > > MamaSher, age 70. IPF 3-06, OR. > > Nasturtiums > > Don't fret about tomorrow, God is already there! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Sher Well, I'm having no obituary so problem solved for me. lol > > > > From: Sher Bauman bofus (AT) wbcable (DOT) net> > > Subject: A little correction > > To: Breathe-Support@ yahoogroups. com > > Date: Monday, October 13, 2008, 3:46 PM > > > > > > The pictures Jack sent are of his GRANDdaughters. ..not daughters. > Sure pretty at any rate... > > > > > > MamaSher, age 70. IPF 3-06, OR. > > Nasturtiums > > Don't fret about tomorrow, God is already there! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Sher Because I'm strange....lol No, I just have no desire....no funeral, no obit. Just personal preference. Partying is allowed and endorsed however. > > > > > > From: Sher Bauman bofus (AT) wbcable (DOT) net> > > > Subject: A little correction > > > To: Breathe-Support@ yahoogroups. com > > > Date: Monday, October 13, 2008, 3:46 PM > > > > > > > > > The pictures Jack sent are of his GRANDdaughters. ..not daughters. > > Sure pretty at any rate... > > > > > > > > > MamaSher, age 70. IPF 3-06, OR. > > > Nasturtiums > > > Don't fret about tomorrow, God is already there! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 Thank you, Bruce. You are right. I am seeing a counselor.. mostly for depression. I haven't gone into my anger issue, but I can see that I must. I appreciate your understanding and response. Gale in TX IPF 10/06 A little > correction > > > > > To: Breathe-Support@ yahoogroups. > com > > > > > Date: Monday, October 13, 2008, 3:46 PM > > > > > > > > > > > > > > > > The pictures Jack > sent are of his GRANDdaughters. ..not > daughters. > > > > Sure > pretty at any rate... > > > > > > > > > > > > > > > > MamaSher, age 70. IPF 3-06, OR. > > > > > > Nasturtiums > > > > > Don't fret about tomorrow, God is already > there! > > > > > > > > > > > > > > > > McCain or Obama? Stay updated on coverage of the Presidential race while you browse - Download Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 Thank you, Bruce. You are right. I am seeing a counselor.. mostly for depression. I haven't gone into my anger issue, but I can see that I must. I appreciate your understanding and response. Gale in TX IPF 10/06 A little > correction > > > > > To: Breathe-Support@ yahoogroups. > com > > > > > Date: Monday, October 13, 2008, 3:46 PM > > > > > > > > > > > > > > > > The pictures Jack > sent are of his GRANDdaughters. ..not > daughters. > > > > Sure > pretty at any rate... > > > > > > > > > > > > > > > > MamaSher, age 70. IPF 3-06, OR. > > > > > > Nasturtiums > > > > > Don't fret about tomorrow, God is already > there! > > > > > > > > > > > > > > > > McCain or Obama? Stay updated on coverage of the Presidential race while you browse - Download Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 Gale Often what we believe is sadness is a mask for anger. Anger may be an underlying emotion of depression. However, we're taught that anger is a bad emotion. Sad isn't. I definitely found I covered anger with sadness. > > > > > > > > > > > > > > > > > From: Sher Bauman bofus (AT) wbcable (DOT) > > > net> > > > > > > > Subject: A little > > > correction > > > > > > > To: Breathe-Support@ yahoogroups. > > > com > > > > > > > Date: Monday, October 13, 2008, 3:46 PM > > > > > > > > > > > > > > > > > > > > > > > > The pictures Jack > > > sent are of his GRANDdaughters. ..not > > > daughters. > > > > > > Sure > > > pretty at any rate... > > > > > > > > > > > > > > > > > > > > > > > > MamaSher, age 70. IPF 3-06, OR. > > > > > > > > > > Nasturtiums > > > > > > > Don't fret about tomorrow, God is already > > > there! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2008 Report Share Posted October 19, 2008 Gale Often what we believe is sadness is a mask for anger. Anger may be an underlying emotion of depression. However, we're taught that anger is a bad emotion. Sad isn't. I definitely found I covered anger with sadness. > > > > > > > > > > > > > > > > > From: Sher Bauman bofus (AT) wbcable (DOT) > > > net> > > > > > > > Subject: A little > > > correction > > > > > > > To: Breathe-Support@ yahoogroups. > > > com > > > > > > > Date: Monday, October 13, 2008, 3:46 PM > > > > > > > > > > > > > > > > > > > > > > > > The pictures Jack > > > sent are of his GRANDdaughters. ..not > > > daughters. > > > > > > Sure > > > pretty at any rate... > > > > > > > > > > > > > > > > > > > > > > > > MamaSher, age 70. IPF 3-06, OR. > > > > > > > > > > Nasturtiums > > > > > > > Don't fret about tomorrow, God is already > > > there! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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