RE: chinese medicine

[Guest guest]

I'm sure the massage is probably okay. Doubt it will actually help, but it probably won't hurt. The herbs I would stay away from as some can cause liver toxicity. Certainly get the hepatologist to okay any herbs that are taken. As to the acupuncture, I would also stay away from that (since that is what my hepatologist said), I think because of all the puncture holes, which can lead to infections. Acupressure should be okay. Again, it may not help, but hopefully it won't hurt.As you've stated very well, we're vulnerable to charlatans since we have an incurable disease.My sister wants me to try alternative medicine, since she's not seeing results with regular medicine.Marie

To: From: rsassoon73@...Date: Thu, 29 May 2008 05:13:23 +0000Subject: chinese medicine

hello all.

my husband alex(psc 2006) recently saw someone who specializes in

chinese medicine. he wants to give him herbs,acupuncture and shiatsu

massage. has anyone in this group done any of this and found real

results- like strictures progression halted? i am very skeptical and

feel people with an incurable disease are in a vulnerable position to

try anything that might help. the dollar amount for these treatments

is pretty costly which of course we would spend if we really felt

these procedures would in fact be helpful.

rachel

E-mail for the greater good. Join the i’m Initiative from Microsoft.

[Guest guest]

,

Your husband is already using results of Chinese

medicine if he is taking Urso….

Ursodeoxycholic

acid, what we call “ursodiol,” is one of the bile acids produced by

the Chinese black bear and it has been used in the treatment of liver disease

for centuries. Nowadays, it is produced in the laboratory rather and not

extracted from bear gall bladders.

Http://www.marvistavet.com/html/body_ursodiol.html

Regards,

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of rachel

Sent: Thursday, May 29, 2008 07:13

To:

Subject: chinese

medicine

hello all.

my husband alex(psc 2006) recently saw someone who specializes in

chinese medicine. he wants to give him herbs,acupuncture and shiatsu

massage. has anyone in this group done any of this and found real

results- like strictures progression halted? i am very skeptical and

feel people with an incurable disease are in a vulnerable position to

try anything that might help. the dollar amount for these treatments

is pretty costly which of course we would spend if we really felt

these procedures would in fact be helpful.

rachel

[Guest guest]

,

Your husband is already using results of Chinese

medicine if he is taking Urso….

Ursodeoxycholic

acid, what we call “ursodiol,” is one of the bile acids produced by

the Chinese black bear and it has been used in the treatment of liver disease

for centuries. Nowadays, it is produced in the laboratory rather and not

extracted from bear gall bladders.

Http://www.marvistavet.com/html/body_ursodiol.html

Regards,

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of rachel

Sent: Thursday, May 29, 2008 07:13

To:

Subject: chinese

medicine

hello all.

my husband alex(psc 2006) recently saw someone who specializes in

chinese medicine. he wants to give him herbs,acupuncture and shiatsu

massage. has anyone in this group done any of this and found real

results- like strictures progression halted? i am very skeptical and

feel people with an incurable disease are in a vulnerable position to

try anything that might help. the dollar amount for these treatments

is pretty costly which of course we would spend if we really felt

these procedures would in fact be helpful.

rachel

[Guest guest]

,

Your husband is already using results of Chinese

medicine if he is taking Urso….

Ursodeoxycholic

acid, what we call “ursodiol,” is one of the bile acids produced by

the Chinese black bear and it has been used in the treatment of liver disease

for centuries. Nowadays, it is produced in the laboratory rather and not

extracted from bear gall bladders.

Http://www.marvistavet.com/html/body_ursodiol.html

Regards,

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of rachel

Sent: Thursday, May 29, 2008 07:13

To:

Subject: chinese

medicine

hello all.

my husband alex(psc 2006) recently saw someone who specializes in

chinese medicine. he wants to give him herbs,acupuncture and shiatsu

massage. has anyone in this group done any of this and found real

results- like strictures progression halted? i am very skeptical and

feel people with an incurable disease are in a vulnerable position to

try anything that might help. the dollar amount for these treatments

is pretty costly which of course we would spend if we really felt

these procedures would in fact be helpful.

rachel

[Guest guest]

One of the gals in my weekly knitting group is an acupuncturist and is one of

the

pleasantest, kindest people I have met. When we have a bit more money, I fully

plan on

trying a few rounds of acupuncture to see if it helps at all. While I haven't

heard of it

helping with PSC (since we are a " select " group to begin with), but I have heard

of people's

IBD improving with it.

While it might not make strictures open back up, I figure it can likely help

with overall

health and improve symptoms like fatigue, which is the most bothersome one for

me.

I figure if TCM and acupuncture have been practiced for 2,000 years, there must

be

something worthwhile to it - they have a much longer track record than western

medicine!

I also respect the fact that they treat the entire person, rather than just

diseased body

parts. While I will not turn my back on western medicine, I think a

complementary

approach is best.

Would your husband be open to meditation? I have been doing a little here and

there and

need to take the time to commit to it. It helped me tremendously when I was

pregnant

with my son. I had four pregnancy losses, including a 17 week loss, between my

firstborn

and my last child and I was stressed beyond belief for the first half of Fritz'

PG. I started

doing hypnotherapy/meditation regularly for the second half and felt much more

in

control and centered. PSC makes me feel very out of control and victimized at

times.

Something like acupuncture and meditation can give a person the sense of getting

the

reins back in their hands -- at least you are trying to have an affect on your

health -- if

that is placebo effect, so be it -- it still makes me feel better!

Regards,

Colleen

[Guest guest]

One of the gals in my weekly knitting group is an acupuncturist and is one of

the

pleasantest, kindest people I have met. When we have a bit more money, I fully

plan on

trying a few rounds of acupuncture to see if it helps at all. While I haven't

heard of it

helping with PSC (since we are a " select " group to begin with), but I have heard

of people's

IBD improving with it.

While it might not make strictures open back up, I figure it can likely help

with overall

health and improve symptoms like fatigue, which is the most bothersome one for

me.

I figure if TCM and acupuncture have been practiced for 2,000 years, there must

be

something worthwhile to it - they have a much longer track record than western

medicine!

I also respect the fact that they treat the entire person, rather than just

diseased body

parts. While I will not turn my back on western medicine, I think a

complementary

approach is best.

Would your husband be open to meditation? I have been doing a little here and

there and

need to take the time to commit to it. It helped me tremendously when I was

pregnant

with my son. I had four pregnancy losses, including a 17 week loss, between my

firstborn

and my last child and I was stressed beyond belief for the first half of Fritz'

PG. I started

doing hypnotherapy/meditation regularly for the second half and felt much more

in

control and centered. PSC makes me feel very out of control and victimized at

times.

Something like acupuncture and meditation can give a person the sense of getting

the

reins back in their hands -- at least you are trying to have an affect on your

health -- if

that is placebo effect, so be it -- it still makes me feel better!

Regards,

Colleen

[Guest guest]

One of the gals in my weekly knitting group is an acupuncturist and is one of

the

pleasantest, kindest people I have met. When we have a bit more money, I fully

plan on

trying a few rounds of acupuncture to see if it helps at all. While I haven't

heard of it

helping with PSC (since we are a " select " group to begin with), but I have heard

of people's

IBD improving with it.

While it might not make strictures open back up, I figure it can likely help

with overall

health and improve symptoms like fatigue, which is the most bothersome one for

me.

I figure if TCM and acupuncture have been practiced for 2,000 years, there must

be

something worthwhile to it - they have a much longer track record than western

medicine!

I also respect the fact that they treat the entire person, rather than just

diseased body

parts. While I will not turn my back on western medicine, I think a

complementary

approach is best.

Would your husband be open to meditation? I have been doing a little here and

there and

need to take the time to commit to it. It helped me tremendously when I was

pregnant

with my son. I had four pregnancy losses, including a 17 week loss, between my

firstborn

and my last child and I was stressed beyond belief for the first half of Fritz'

PG. I started

doing hypnotherapy/meditation regularly for the second half and felt much more

in

control and centered. PSC makes me feel very out of control and victimized at

times.

Something like acupuncture and meditation can give a person the sense of getting

the

reins back in their hands -- at least you are trying to have an affect on your

health -- if

that is placebo effect, so be it -- it still makes me feel better!

Regards,

Colleen

[Guest guest]

Hi ,

My Dad saw a fairly well know Chinese Doctor for quite some time. Do to costs he stopped however if he had the money he would have continued. My Dad is doing very well being diagnosed in 1996 with little or no symptoms. Not sure if it was due to the treatment he had. We believe prayer is the main reason he is doing so well. He did not have anything but the acupuncture treatment since some of the other treatment is more of an eastern religion emphasized treatment.

Lori A.

"Aggressively Pursuing Solutions To Your Real Estate Needs!"

First Weber Group

Cell:

1507 E. Sunset Drive

Waukesha, WI 53189

LoriUSA@...

www.Lori.FirstWeber.com

chinese medicine

hello all.my husband alex(psc 2006) recently saw someone who specializes inchinese medicine. he wants to give him herbs,acupuncture and shiatsumassage. has anyone in this group done any of this and found realresults- like strictures progression halted? i am very skeptical andfeel people with an incurable disease are in a vulnerable position totry anything that might help. the dollar amount for these treatmentsis pretty costly which of course we would spend if we really feltthese procedures would in fact be helpful.rachel

[Guest guest]

Hi ;

Please be extremely cautious in taking herbal products. The use of

herbal supplements is linked to many cases of liver damage and failure:

Estes JD, Stolpman D, Olyaei A, Corless CL, Ham JM, Schwartz JM, Orloff

SL. High prevalence of potentially hepatotoxic herbal supplement use in

patients with fulminant hepatic failure. Arch Surg. 2003 Aug;138(8):852-

8.

http://www.ncbi.nlm.nih.gov/pubmed/12912743

Schoepfer AM, Engel A, Fattinger K, Marbet UA, Criblez D, Reichen J,

Zimmermann A, Oneta CM. Herbal does not mean innocuous: ten cases of

severe hepatotoxicity associated with dietary supplements from

Herbalife products. J Hepatol. 2007 Oct;47(4):521-6. Epub 2007 Jul 24.

http://www.ncbi.nlm.nih.gov/pubmed/17692989

Of course, it all depends on what specific herb(s) are ingested.

Different herb species will be more damaging than others. Some may be

unharmful, or potentially beneficial (e.g. milk thistle). If the herbal

preparation does not contain a list of ingredients that can be

researched, then definitely don't take it.

Best regards.

Dave

(father of (23); PSC 07/03; UC 08/03)

[Guest guest]

Hi ;

Please be extremely cautious in taking herbal products. The use of

herbal supplements is linked to many cases of liver damage and failure:

Estes JD, Stolpman D, Olyaei A, Corless CL, Ham JM, Schwartz JM, Orloff

SL. High prevalence of potentially hepatotoxic herbal supplement use in

patients with fulminant hepatic failure. Arch Surg. 2003 Aug;138(8):852-

8.

http://www.ncbi.nlm.nih.gov/pubmed/12912743

Schoepfer AM, Engel A, Fattinger K, Marbet UA, Criblez D, Reichen J,

Zimmermann A, Oneta CM. Herbal does not mean innocuous: ten cases of

severe hepatotoxicity associated with dietary supplements from

Herbalife products. J Hepatol. 2007 Oct;47(4):521-6. Epub 2007 Jul 24.

http://www.ncbi.nlm.nih.gov/pubmed/17692989

Of course, it all depends on what specific herb(s) are ingested.

Different herb species will be more damaging than others. Some may be

unharmful, or potentially beneficial (e.g. milk thistle). If the herbal

preparation does not contain a list of ingredients that can be

researched, then definitely don't take it.

Best regards.

Dave

(father of (23); PSC 07/03; UC 08/03)

[Guest guest]

Hi ;

Please be extremely cautious in taking herbal products. The use of

herbal supplements is linked to many cases of liver damage and failure:

Estes JD, Stolpman D, Olyaei A, Corless CL, Ham JM, Schwartz JM, Orloff

SL. High prevalence of potentially hepatotoxic herbal supplement use in

patients with fulminant hepatic failure. Arch Surg. 2003 Aug;138(8):852-

8.

http://www.ncbi.nlm.nih.gov/pubmed/12912743

Schoepfer AM, Engel A, Fattinger K, Marbet UA, Criblez D, Reichen J,

Zimmermann A, Oneta CM. Herbal does not mean innocuous: ten cases of

severe hepatotoxicity associated with dietary supplements from

Herbalife products. J Hepatol. 2007 Oct;47(4):521-6. Epub 2007 Jul 24.

http://www.ncbi.nlm.nih.gov/pubmed/17692989

Of course, it all depends on what specific herb(s) are ingested.

Different herb species will be more damaging than others. Some may be

unharmful, or potentially beneficial (e.g. milk thistle). If the herbal

preparation does not contain a list of ingredients that can be

researched, then definitely don't take it.

Best regards.

Dave

(father of (23); PSC 07/03; UC 08/03)