/Re:Life after VVS Surgery

[Guest guest]

yes, so did you have pain in/on your labial skin also? or just around

the opening? i've never looked into surgery too much, but now that i

only have pain in one spot (it used to be more generalized) it seems

like an option to keep open. i think what i've read is that surgery is

not helpful in dyesthetic or generalized vulvodynia, but can be

helpful for localized pain that only happens on contact.

i feel that i am somewhere in between---the pain is localized and

spontaneous (i.e. not just on contact), though it is much worse when

pressure is applied to the area.

what does dr. conway have to say about the long-term outcome of this

surgery? i don't know if it was the same procedure, and i'm sure it

was written a long time ago, but i read one article (from the vpf i

think) which said that the success rate dropped dramatically for

surgery after long-term follow up.

do you have any articles or links that describe the specific procedure?

i am SOOOOOOO HAPPY for you!

julie

>

> Hi ,

>

> It is strange - but pain - which ruled my life - is hard to describe

after

> the fact. I don't know what " certain " type of pain you mean. My original

> gyno - before he sent me to the vulvar specialist diagnosed me with VV,

> along with pudendal neuropathy. The specialist (Dr.

>

> - The " V " Book) diagnosed me with LS, which also

> " supposedly " causes pain. So I had pain from three different sources.

>

> My pain was all over the entire perineum/vulvar area. At times it looked

> inflamed to me, other times it didn't. It burned unbearably, itched

some of

> the time. I could NOT be touched anywhere in the entire area, but the 6

> 0'clock area was the worse. When I went for my pre-surgery LS check

up with

> Dr. , she said everything looked just as bad as ever. There was

> nothing more she could do for me as I had tried everything. I took

all the

> medications, topicals and huge amounts of narcotics she had

suggested. I

> even had a pain management doctor. She thought I was so bad that even a

> vestibulectomy would not help me. BUT, I did not listen to her - I

listened

> to the surgeon who was going to do my pudendal decompression surgery. He

> told me he could do the vestibulectomy at the same time, and I would be

> fine. I thought what did I have to lose - I did not think I could

get any

> worse. He was right - I did great.

>

> Does this answer your question?

>

> nne

>

> _____

>

> From: VulvarDisorders

> [mailto:VulvarDisorders ] On Behalf Of femifesto

> Sent: Monday, September 03, 2007 9:13 AM

> To: VulvarDisorders

> Subject: Re:Life after VVS Surgery

>

>

>

> perhaps you both could describe more specifically what type of pain

> you have/had? isn't it known to be more helpful for certain types of

pain?

>

> julie

>

> _,_._,___

>