The natural history of small-duct PSC

[Guest guest]

There has been a lot of research done on breastfeeding lowering the risks of

children of

UC patients ever developing it. And long-term nursing (more than 12 months)

seems to be

key in this reduction. It was not an insignificant number either -- around 20%

reduction, I

believe. I nursed my kids for 15 months and 18 months, and this was one of my

motivations.

Don, there is a book out there called, " Statistics for Dummies. " My husband has

a copy --

perhaps I should have a look at it for exactly this reason!

Colleen

>

>

> All of us who are parents have this concernregarding heredity. I've

> felt like forcing my 40 year old son somehow to at least get a

> colonoscopy.

>

> An understanding of statistical methods would probably help us. When

> studies that include statistics are cited, perhaps a brief explanation

> could be given, in layman's term, if that is possible.

>

[Guest guest]

There has been a lot of research done on breastfeeding lowering the risks of

children of

UC patients ever developing it. And long-term nursing (more than 12 months)

seems to be

key in this reduction. It was not an insignificant number either -- around 20%

reduction, I

believe. I nursed my kids for 15 months and 18 months, and this was one of my

motivations.

Don, there is a book out there called, " Statistics for Dummies. " My husband has

a copy --

perhaps I should have a look at it for exactly this reason!

Colleen

>

>

> All of us who are parents have this concernregarding heredity. I've

> felt like forcing my 40 year old son somehow to at least get a

> colonoscopy.

>

> An understanding of statistical methods would probably help us. When

> studies that include statistics are cited, perhaps a brief explanation

> could be given, in layman's term, if that is possible.

>

[Guest guest]

I have heard something along these lines before as well. Someone once

told me that there was not one person with crohns that had been

breastfed. I didn't really believe that because I find absolutes hard

to believe. But I do know that I was not breastfed. Despite my

disbelief, I felt that breastfeeding (with all it's superpowers

regarding the digestive tract) was my only chance to try to prevent

any of this from happening to my kids. It was my motivator too.

I'd love to get info on any of these studies if anyone can dig them up!

Suzanna

< There has been a lot of research done on breastfeeding lowering the

risks of children of UC patients ever developing it. And long-term

nursing (more than 12 months) seems to be key in this reduction. It

was not an insignificant number either -- around 20% reduction, I

believe. I nursed my kids for 15 months and 18 months, and this was

one of my motivations. >

[Guest guest]

I have heard something along these lines before as well. Someone once

told me that there was not one person with crohns that had been

breastfed. I didn't really believe that because I find absolutes hard

to believe. But I do know that I was not breastfed. Despite my

disbelief, I felt that breastfeeding (with all it's superpowers

regarding the digestive tract) was my only chance to try to prevent

any of this from happening to my kids. It was my motivator too.

I'd love to get info on any of these studies if anyone can dig them up!

Suzanna

< There has been a lot of research done on breastfeeding lowering the

risks of children of UC patients ever developing it. And long-term

nursing (more than 12 months) seems to be key in this reduction. It

was not an insignificant number either -- around 20% reduction, I

believe. I nursed my kids for 15 months and 18 months, and this was

one of my motivations. >

[Guest guest]

I have heard something along these lines before as well. Someone once

told me that there was not one person with crohns that had been

breastfed. I didn't really believe that because I find absolutes hard

to believe. But I do know that I was not breastfed. Despite my

disbelief, I felt that breastfeeding (with all it's superpowers

regarding the digestive tract) was my only chance to try to prevent

any of this from happening to my kids. It was my motivator too.

I'd love to get info on any of these studies if anyone can dig them up!

Suzanna

< There has been a lot of research done on breastfeeding lowering the

risks of children of UC patients ever developing it. And long-term

nursing (more than 12 months) seems to be key in this reduction. It

was not an insignificant number either -- around 20% reduction, I

believe. I nursed my kids for 15 months and 18 months, and this was

one of my motivations. >

[Guest guest]

Suzanna,

This was one of the reasons -- the fact that I can eat like a horse while

nursing is my

other reason. It really was a special time for us.

I also just heard that researchers have found stem cells in breast milk, which

could prove

interesting. No ethical concerns like with embryonic stem cell research.

Here is what I could dig up quick-and-dirty style:

http://www.cababstractsplus.org/google/abstract.asp?AcNo=20043202087

See item number 17:

http://www.promom.org/101/

Colleen

>

> I have heard something along these lines before as well. Someone once

> told me that there was not one person with crohns that had been

> breastfed. I didn't really believe that because I find absolutes hard

> to believe. But I do know that I was not breastfed. Despite my

> disbelief, I felt that breastfeeding (with all it's superpowers

> regarding the digestive tract) was my only chance to try to prevent

> any of this from happening to my kids. It was my motivator too.

>

> I'd love to get info on any of these studies if anyone can dig them up!

>

> Suzanna

>

[Guest guest]

Suzanna,

This was one of the reasons -- the fact that I can eat like a horse while

nursing is my

other reason. It really was a special time for us.

I also just heard that researchers have found stem cells in breast milk, which

could prove

interesting. No ethical concerns like with embryonic stem cell research.

Here is what I could dig up quick-and-dirty style:

http://www.cababstractsplus.org/google/abstract.asp?AcNo=20043202087

See item number 17:

http://www.promom.org/101/

Colleen

>

> I have heard something along these lines before as well. Someone once

> told me that there was not one person with crohns that had been

> breastfed. I didn't really believe that because I find absolutes hard

> to believe. But I do know that I was not breastfed. Despite my

> disbelief, I felt that breastfeeding (with all it's superpowers

> regarding the digestive tract) was my only chance to try to prevent

> any of this from happening to my kids. It was my motivator too.

>

> I'd love to get info on any of these studies if anyone can dig them up!

>

> Suzanna

>

[Guest guest]

Suzanna,

This was one of the reasons -- the fact that I can eat like a horse while

nursing is my

other reason. It really was a special time for us.

I also just heard that researchers have found stem cells in breast milk, which

could prove

interesting. No ethical concerns like with embryonic stem cell research.

Here is what I could dig up quick-and-dirty style:

http://www.cababstractsplus.org/google/abstract.asp?AcNo=20043202087

See item number 17:

http://www.promom.org/101/

Colleen

>

> I have heard something along these lines before as well. Someone once

> told me that there was not one person with crohns that had been

> breastfed. I didn't really believe that because I find absolutes hard

> to believe. But I do know that I was not breastfed. Despite my

> disbelief, I felt that breastfeeding (with all it's superpowers

> regarding the digestive tract) was my only chance to try to prevent

> any of this from happening to my kids. It was my motivator too.

>

> I'd love to get info on any of these studies if anyone can dig them up!

>

> Suzanna

>

[Guest guest]

I guess we beat the odds on breastfeeding and reducing the risks of

Crohn's and PSC. I nursed Pearl Ann for 3 years. She developed

Crohn's and PSC/AIH 4 months later. (And she isn't vaccinated.) This

doesn't mean I don't believe in breastfeeding now, I just now know

life is much more complicated than I ever could have imagined.

[Guest guest]

I guess we beat the odds on breastfeeding and reducing the risks of

Crohn's and PSC. I nursed Pearl Ann for 3 years. She developed

Crohn's and PSC/AIH 4 months later. (And she isn't vaccinated.) This

doesn't mean I don't believe in breastfeeding now, I just now know

life is much more complicated than I ever could have imagined.

[Guest guest]

I guess we beat the odds on breastfeeding and reducing the risks of

Crohn's and PSC. I nursed Pearl Ann for 3 years. She developed

Crohn's and PSC/AIH 4 months later. (And she isn't vaccinated.) This

doesn't mean I don't believe in breastfeeding now, I just now know

life is much more complicated than I ever could have imagined.

[Guest guest]

<There has been a lot of research done on breastfeeding lowering the risks of children of UC patients ever developing it>

Our son has UC and PSC and I breastfed him until he was 20 months old........

Shirley

[Guest guest]

<There has been a lot of research done on breastfeeding lowering the risks of children of UC patients ever developing it>

Our son has UC and PSC and I breastfed him until he was 20 months old........

Shirley

[Guest guest]

<There has been a lot of research done on breastfeeding lowering the risks of children of UC patients ever developing it>

Our son has UC and PSC and I breastfed him until he was 20 months old........

Shirley

[Guest guest]

Well, my husband was breastfed so it didn't protect him. What is

interesting to me, though, is that only recently did they add our old

friend DHA to formula - so the studies that are out now on the

benefits of breastfeeding v. formula were all done when babies

receiving formula were not receiving nearly the amount of DHA or ARA

that they would have if they'd been breastfeeding. Maybe there's some

connection...

Nina in Philly

Someone once

> told me that there was not one person with crohns that had been

> breastfed. wrote:

> < There has been a lot of research done on breastfeeding lowering

the

> risks of children of UC patients ever developing it.

[Guest guest]

Well, my husband was breastfed so it didn't protect him. What is

interesting to me, though, is that only recently did they add our old

friend DHA to formula - so the studies that are out now on the

benefits of breastfeeding v. formula were all done when babies

receiving formula were not receiving nearly the amount of DHA or ARA

that they would have if they'd been breastfeeding. Maybe there's some

connection...

Nina in Philly

Someone once

> told me that there was not one person with crohns that had been

> breastfed. wrote:

> < There has been a lot of research done on breastfeeding lowering

the

> risks of children of UC patients ever developing it.

[Guest guest]

Well, my husband was breastfed so it didn't protect him. What is

interesting to me, though, is that only recently did they add our old

friend DHA to formula - so the studies that are out now on the

benefits of breastfeeding v. formula were all done when babies

receiving formula were not receiving nearly the amount of DHA or ARA

that they would have if they'd been breastfeeding. Maybe there's some

connection...

Nina in Philly

Someone once

> told me that there was not one person with crohns that had been

> breastfed. wrote:

> < There has been a lot of research done on breastfeeding lowering

the

> risks of children of UC patients ever developing it.

[Guest guest]

Us too....on the odds and breastfeeding. Our oldest son, Matt was not breast fed because of my health problems at delivery. He's healthy and has no sign in blood work or anything else of any auto-immune disease or PSC. Then, there's Tyler, our youngest, who was breast fed for over a year. He became acutely ill in Oct. 06....resulting in a liver biopsy diagnosis of PSC with stage 3 fibrosis. So, go figure. I'm thankful that I was able to breast feed Tyler. It was a bonding experience for mother and child. Tyler didn't get colds or such as Matt had as a baby. But, he now has PSC and Matt doesn't. We also have no one with UC, PSC or IBD in either side of our families. Just Tyler so far. So, for us the statistics on the rarity of this PSC disease is all we see in our family.

Cindy mom to Tyler 15, PSC 10/07.It's Tax Time! Get tips, forms and advice on AOL Money Finance.

[Guest guest]

Us too....on the odds and breastfeeding. Our oldest son, Matt was not breast fed because of my health problems at delivery. He's healthy and has no sign in blood work or anything else of any auto-immune disease or PSC. Then, there's Tyler, our youngest, who was breast fed for over a year. He became acutely ill in Oct. 06....resulting in a liver biopsy diagnosis of PSC with stage 3 fibrosis. So, go figure. I'm thankful that I was able to breast feed Tyler. It was a bonding experience for mother and child. Tyler didn't get colds or such as Matt had as a baby. But, he now has PSC and Matt doesn't. We also have no one with UC, PSC or IBD in either side of our families. Just Tyler so far. So, for us the statistics on the rarity of this PSC disease is all we see in our family.

Cindy mom to Tyler 15, PSC 10/07.It's Tax Time! Get tips, forms and advice on AOL Money Finance.

[Guest guest]

Us too....on the odds and breastfeeding. Our oldest son, Matt was not breast fed because of my health problems at delivery. He's healthy and has no sign in blood work or anything else of any auto-immune disease or PSC. Then, there's Tyler, our youngest, who was breast fed for over a year. He became acutely ill in Oct. 06....resulting in a liver biopsy diagnosis of PSC with stage 3 fibrosis. So, go figure. I'm thankful that I was able to breast feed Tyler. It was a bonding experience for mother and child. Tyler didn't get colds or such as Matt had as a baby. But, he now has PSC and Matt doesn't. We also have no one with UC, PSC or IBD in either side of our families. Just Tyler so far. So, for us the statistics on the rarity of this PSC disease is all we see in our family.

Cindy mom to Tyler 15, PSC 10/07.It's Tax Time! Get tips, forms and advice on AOL Money Finance.

[Guest guest]

Fred has PSC and UC and he was breastfed for a year. (Breastfeeding was

very unpopular in late 40s and 50s - his mother was a rebel.) Perhaps

his health would be even more compromised if he'd been bottle-fed. We'll

never know.

(BTW, Fred has diagnosed himself with small-duct PSC. We'll see.)

WOF, PSC 03/04, UC 03/06

[Guest guest]

>

>

UC patients ever developing it>

I breastfed our 4 children, the first for 9 months (there was no

positive affirmation around us to feed longer) to the last who was

still feeeding (no snacking) at 4 years (it seemed to be the only

time I saw him, he was just too busy keeping up with the big kids) -

he was weaned after climbing up for a 'snack' having a go at

sucking,then with a puzzled look he got a bit of chewing gum of his

mouth (he would have negotiated off his one of his older siblings, he

had and still has them tied around his little finger ) The gum was

slapped on my breast for what I think he thought was 'safe

keeping'...grin.

Of all the children he is the only one with IBD, he was diagnosed

with Proctitis late last year and is coping with a flare up after

radiation treatment for ependymoma.

Yay for breastfeeding, but it is certainly not the panacea for all

ills.

from the bottom of the world in New Zealand

[Guest guest]

>

>

UC patients ever developing it>

I breastfed our 4 children, the first for 9 months (there was no

positive affirmation around us to feed longer) to the last who was

still feeeding (no snacking) at 4 years (it seemed to be the only

time I saw him, he was just too busy keeping up with the big kids) -

he was weaned after climbing up for a 'snack' having a go at

sucking,then with a puzzled look he got a bit of chewing gum of his

mouth (he would have negotiated off his one of his older siblings, he

had and still has them tied around his little finger ) The gum was

slapped on my breast for what I think he thought was 'safe

keeping'...grin.

Of all the children he is the only one with IBD, he was diagnosed

with Proctitis late last year and is coping with a flare up after

radiation treatment for ependymoma.

Yay for breastfeeding, but it is certainly not the panacea for all

ills.

from the bottom of the world in New Zealand

[Guest guest]

Like I said in an earlier post, there is no silver bullet. I wish.

If the genetic info posted within the last few days or so is true, then those of

us who come

up on the wrong end of the odds, rather than being an unaffected carrier, have

active

disease, then I think the best *we* could have expected was mitigation or delay

of onset.

All of us who actually have these diseases might have lost the proverbial

crapshoot at

conception.

Do I wonder if my health might be different had I been breastfed, instead of

being fed that

lovely combo of corn syrup, evaporated milk and water? You betcha. But my guess

is I

might not be *as* sick as I happen to be.

The studies were on outcomes of children of IBD patients, not a reflective " who

was

breastfed and who wasn't and what are the IBD rates based on how they were fed

as

infants. " I think that would be an interesting epidemiological study, though.

Colleen

> Yay for breastfeeding, but it is certainly not the panacea for all

> ills.

> from the bottom of the world in New Zealand

>

[Guest guest]

Like I said in an earlier post, there is no silver bullet. I wish.

If the genetic info posted within the last few days or so is true, then those of

us who come

up on the wrong end of the odds, rather than being an unaffected carrier, have

active

disease, then I think the best *we* could have expected was mitigation or delay

of onset.

All of us who actually have these diseases might have lost the proverbial

crapshoot at

conception.

Do I wonder if my health might be different had I been breastfed, instead of

being fed that

lovely combo of corn syrup, evaporated milk and water? You betcha. But my guess

is I

might not be *as* sick as I happen to be.

The studies were on outcomes of children of IBD patients, not a reflective " who

was

breastfed and who wasn't and what are the IBD rates based on how they were fed

as

infants. " I think that would be an interesting epidemiological study, though.

Colleen

> Yay for breastfeeding, but it is certainly not the panacea for all

> ills.

> from the bottom of the world in New Zealand

>