RE: A Lurker Checking In...

[Guest guest]

Janet,

I have had stents put in a few years ago. It

was just the same as a regular ERCP. In my case the stents were put in and

removed a few months later. I haven't had stents for a few years now and all my

LFTs are fine and I am asymptomatic again.

I sure hope they will find that the

nodules are nothing to worry about. You will get your stents then and you will

have them removed later, and maybe new ones will be put in. Like I said, if you

had an ERCP before, you won't know the difference.

Regards,

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of janetpsc7

Sent: Thursday, August 28, 2008

16:49

To:

Subject: A Lurker

Checking In...

Hi, everyone. I am Janet in Jersey

and I am usually a lurker since

I have been asymptomatic for a few years. However, I read the posts

regularly.

I have a question right now, though. Recently, I have been having

an unusual amount of pain and digestive problems. I had an ERCP two

weeks ago and thought it resolved the issue. However, prior to my

ERCP, in June, I had a CT Scan and they found two small " nodules " in

my liver approximately 1 cm

each. The drs at the time, did not

think it was anything, but the head of radiology said it looked like

cancer. Anyhoo, long story short, yesterday I went to see the dr

who performed the ERCP two week ago and he said because strictures

have closed the main bile duct so much, he will be putting in TWO

stents tomorrow, one large and one small. Anyone every had this

done?

Also, he said he will also try to get a biopsy to try to establish

if, in fact, it is cancer.

Just needed to vent, everyone. I STRONGLY believe in the power of

prayer and I ask all to pray for me as I go in tomorrow morning at

6:00am Eastern Standard Time.

Thanks for listening.....

[Guest guest]

Janet,

I have had stents put in a few years ago. It

was just the same as a regular ERCP. In my case the stents were put in and

removed a few months later. I haven't had stents for a few years now and all my

LFTs are fine and I am asymptomatic again.

I sure hope they will find that the

nodules are nothing to worry about. You will get your stents then and you will

have them removed later, and maybe new ones will be put in. Like I said, if you

had an ERCP before, you won't know the difference.

Regards,

Chaim Boermeester, Israel

From: [mailto: ] On Behalf Of janetpsc7

Sent: Thursday, August 28, 2008

16:49

To:

Subject: A Lurker

Checking In...

Hi, everyone. I am Janet in Jersey

and I am usually a lurker since

I have been asymptomatic for a few years. However, I read the posts

regularly.

I have a question right now, though. Recently, I have been having

an unusual amount of pain and digestive problems. I had an ERCP two

weeks ago and thought it resolved the issue. However, prior to my

ERCP, in June, I had a CT Scan and they found two small " nodules " in

my liver approximately 1 cm

each. The drs at the time, did not

think it was anything, but the head of radiology said it looked like

cancer. Anyhoo, long story short, yesterday I went to see the dr

who performed the ERCP two week ago and he said because strictures

have closed the main bile duct so much, he will be putting in TWO

stents tomorrow, one large and one small. Anyone every had this

done?

Also, he said he will also try to get a biopsy to try to establish

if, in fact, it is cancer.

Just needed to vent, everyone. I STRONGLY believe in the power of

prayer and I ask all to pray for me as I go in tomorrow morning at

6:00am Eastern Standard Time.

Thanks for listening.....

[Guest guest]

Janet,If I were you I'd try to get a brushing suitable for the Mayo Clinic to evaluate using their FISH method to see if there is cancer. If there is cancer you want it to be found sooner rather than later. A false negative test would not be good. I believe your doctor will need to contact the Mayo Clinic to see what exactly is needed and to arrange and coordinate getting the specimen to the Mayo Clinic. Yes, this is a lot of trouble, but it could save your life. Dr. Gores is the top doctor in the U.S. who deals with cholangiocarcinoma. If you've been reading the posts, then you already know how bad this cancer is. Here is Dr. Gore's web page:http://www.mayoclinic.org/bio/10017623.htmlAlso, the Mayo Clinic is the facility in the U.S. with the most experience in dealing successfully with cholangiocarcinoma, so if you have it, it would be best to go to the Mayo Clinic.Good luck to you, and keep us posted.Marie

To: From: janet@...Date: Thu, 28 Aug 2008 14:49:27 +0000Subject: A Lurker Checking In...

Hi, everyone. I am Janet in Jersey and I am usually a lurker since

I have been asymptomatic for a few years. However, I read the posts

regularly.

I have a question right now, though. Recently, I have been having

an unusual amount of pain and digestive problems. I had an ERCP two

weeks ago and thought it resolved the issue. However, prior to my

ERCP, in June, I had a CT Scan and they found two small "nodules" in

my liver approximately 1 cm each. The drs at the time, did not

think it was anything, but the head of radiology said it looked like

cancer. Anyhoo, long story short, yesterday I went to see the dr

who performed the ERCP two week ago and he said because strictures

have closed the main bile duct so much, he will be putting in TWO

stents tomorrow, one large and one small. Anyone every had this

done?

Also, he said he will also try to get a biopsy to try to establish

if, in fact, it is cancer.

Just needed to vent, everyone. I STRONGLY believe in the power of

prayer and I ask all to pray for me as I go in tomorrow morning at

6:00am Eastern Standard Time.

Thanks for listening.....

Be the filmmaker you always wanted to be—learn how to burn a DVD with Windows®. Make your smash hit

[Guest guest]

Janet,If I were you I'd try to get a brushing suitable for the Mayo Clinic to evaluate using their FISH method to see if there is cancer. If there is cancer you want it to be found sooner rather than later. A false negative test would not be good. I believe your doctor will need to contact the Mayo Clinic to see what exactly is needed and to arrange and coordinate getting the specimen to the Mayo Clinic. Yes, this is a lot of trouble, but it could save your life. Dr. Gores is the top doctor in the U.S. who deals with cholangiocarcinoma. If you've been reading the posts, then you already know how bad this cancer is. Here is Dr. Gore's web page:http://www.mayoclinic.org/bio/10017623.htmlAlso, the Mayo Clinic is the facility in the U.S. with the most experience in dealing successfully with cholangiocarcinoma, so if you have it, it would be best to go to the Mayo Clinic.Good luck to you, and keep us posted.Marie

To: From: janet@...Date: Thu, 28 Aug 2008 14:49:27 +0000Subject: A Lurker Checking In...

Hi, everyone. I am Janet in Jersey and I am usually a lurker since

I have been asymptomatic for a few years. However, I read the posts

regularly.

I have a question right now, though. Recently, I have been having

an unusual amount of pain and digestive problems. I had an ERCP two

weeks ago and thought it resolved the issue. However, prior to my

ERCP, in June, I had a CT Scan and they found two small "nodules" in

my liver approximately 1 cm each. The drs at the time, did not

think it was anything, but the head of radiology said it looked like

cancer. Anyhoo, long story short, yesterday I went to see the dr

who performed the ERCP two week ago and he said because strictures

have closed the main bile duct so much, he will be putting in TWO

stents tomorrow, one large and one small. Anyone every had this

done?

Also, he said he will also try to get a biopsy to try to establish

if, in fact, it is cancer.

Just needed to vent, everyone. I STRONGLY believe in the power of

prayer and I ask all to pray for me as I go in tomorrow morning at

6:00am Eastern Standard Time.

Thanks for listening.....

Be the filmmaker you always wanted to be—learn how to burn a DVD with Windows®. Make your smash hit

[Guest guest]

Janet,If I were you I'd try to get a brushing suitable for the Mayo Clinic to evaluate using their FISH method to see if there is cancer. If there is cancer you want it to be found sooner rather than later. A false negative test would not be good. I believe your doctor will need to contact the Mayo Clinic to see what exactly is needed and to arrange and coordinate getting the specimen to the Mayo Clinic. Yes, this is a lot of trouble, but it could save your life. Dr. Gores is the top doctor in the U.S. who deals with cholangiocarcinoma. If you've been reading the posts, then you already know how bad this cancer is. Here is Dr. Gore's web page:http://www.mayoclinic.org/bio/10017623.htmlAlso, the Mayo Clinic is the facility in the U.S. with the most experience in dealing successfully with cholangiocarcinoma, so if you have it, it would be best to go to the Mayo Clinic.Good luck to you, and keep us posted.Marie

To: From: janet@...Date: Thu, 28 Aug 2008 14:49:27 +0000Subject: A Lurker Checking In...

Hi, everyone. I am Janet in Jersey and I am usually a lurker since

I have been asymptomatic for a few years. However, I read the posts

regularly.

I have a question right now, though. Recently, I have been having

an unusual amount of pain and digestive problems. I had an ERCP two

weeks ago and thought it resolved the issue. However, prior to my

ERCP, in June, I had a CT Scan and they found two small "nodules" in

my liver approximately 1 cm each. The drs at the time, did not

think it was anything, but the head of radiology said it looked like

cancer. Anyhoo, long story short, yesterday I went to see the dr

who performed the ERCP two week ago and he said because strictures

have closed the main bile duct so much, he will be putting in TWO

stents tomorrow, one large and one small. Anyone every had this

done?

Also, he said he will also try to get a biopsy to try to establish

if, in fact, it is cancer.

Just needed to vent, everyone. I STRONGLY believe in the power of

prayer and I ask all to pray for me as I go in tomorrow morning at

6:00am Eastern Standard Time.

Thanks for listening.....

Be the filmmaker you always wanted to be—learn how to burn a DVD with Windows®. Make your smash hit

[Guest guest]

Janet,

Sending prayers your way. Your belief in them will make them more effective. May God be glorified by your healing.

Ian (52) PSC 89

I STRONGLY believe in the power of prayer and I ask all to pray for me as I go in tomorrow morning at

6:00am Eastern Standard Time.

[Guest guest]

Janet,

Sending prayers your way. Your belief in them will make them more effective. May God be glorified by your healing.

Ian (52) PSC 89

I STRONGLY believe in the power of prayer and I ask all to pray for me as I go in tomorrow morning at

6:00am Eastern Standard Time.

[Guest guest]

Janet,

Sending prayers your way. Your belief in them will make them more effective. May God be glorified by your healing.

Ian (52) PSC 89

I STRONGLY believe in the power of prayer and I ask all to pray for me as I go in tomorrow morning at

6:00am Eastern Standard Time.

[Guest guest]

Janet -

Best wishes and many good thoughts coming your way tomorrow.

Joanne H

(, Ca)

Janet,

Sending prayers your way. Your belief in them will make them more effective. May God be glorified by your healing.

Ian (52) PSC 89

..

[Guest guest]

Janet, I am praying for you right now as you are probably in the procedure. God be with you.

Kim

(Maine)

Subject: A Lurker Checking In...To: Date: Thursday, August 28, 2008, 2:49 PM

Hi, everyone. I am Janet in Jersey and I am usually a lurker since I have been asymptomatic for a few years. However, I read the posts regularly.I have a question right now, though. Recently, I have been having an unusual amount of pain and digestive problems. I had an ERCP two weeks ago and thought it resolved the issue. However, prior to my ERCP, in June, I had a CT Scan and they found two small "nodules" in my liver approximately 1 cm each. The drs at the time, did not think it was anything, but the head of radiology said it looked like cancer. Anyhoo, long story short, yesterday I went to see the dr who performed the ERCP two week ago and he said because strictures have closed the main bile duct so much, he will be putting in TWO stents tomorrow, one large and one small. Anyone every had this done? Also, he said he will also try to get a biopsy to try to establish if, in fact,

it is cancer.Just needed to vent, everyone. I STRONGLY believe in the power of prayer and I ask all to pray for me as I go in tomorrow morning at 6:00am Eastern Standard Time.Thanks for listening... ..