Need Help. Mayo in Rochester

[Guest guest]

Well, I'm still at it trying to figure out what is wrong with me.

My neurological symptoms are getting worse, fatigue worse, abdominal

pain worse, etc.

I had a CT done that showed a lesion on my right lung and lots of

enlarged lymph nodes in my abdomen. This in addition the the PSC,

anemia, raynaud's syndrom, numbness, pain, abnormal spinal tap, and

they just don't know what to do with me.

I am being sent to Mayo in Rochester. That's great because I'm

going to be set up with Dr Lindor adn other docs. Has anyone been

there beofre? What is it like? Where is a good/affordable place to

stay? I will be there for 1-2 weeks at least. Should I take my

kids and find a sitter there ro leave them home?

This is all getting to be a little much. Any suggestions would be

great. I'm just not sure what else to do. My hepa doc in Omaha

isn't sure what is up either. I think he just doens't want to

persue anythign else. I don't blame them. I should be better by now.

Anyway, thanks if anyone can help at all. I'm scared and tired of

this whirlwind.

from NE