Guest guest Posted January 26, 2003 Report Share Posted January 26, 2003 Elaine, I had the same reaction as when I saw those photos of Miranda. She looks so capable with her body/strength. My daughter wasn't even close to that when she was that age. also always preferred that W style sitting...I think it gave more stability for the large head. Miranda is beautiful...and she certainly has 'the look' of RSS. But I've never heard of anyone with RSS being in the 40% for height ...especially at that age. Is that 40% of the regular growth curve? Does she have a g-tube or get GH? She's clearly doing great and that is so encouraging to see. Congratulations! Irene Mom to , almost 6! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 --- In RSS-Support , Nelles incredibly happy! Are you going to the conference this summer? I'd really like to meet you and " Marvelous Miranda " she sounds just wonderful! Do you have any tips for weight gain? Is she on any meds or Actually, I hadn't really thought about it yet. When is it? (All my literature on it is at home). Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 can we send it to you on here as a download file? Love Kimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 can we send it to you on here as a download file? Love Kimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Brat, I was in there late last night and couldn't find MY pic from the old album. Do I need to snail mail you another one? MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Brat, Yup, but they'll never see the light of day. LOL MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Hey, Brat, When I click on photos at the website, there are only four in the file. , Deanna, , and one labelled Yahoo...that's it. Whazzup with that? MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Brat, Yup, but I have some of her, too, so we can blackmail each other. No dice, kiddo. MM P.S. I figured out that you have to go to Links to get albums. Maybe the "photos" link on the left hand side of the home page should be deleted, or connected to the other link? Just a suggestion. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Brat, How about if I send one of both of us? Will that satisfy you? MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 The picture of you and your sisters is in there. Do you have more? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Ah come on Mike!! Does our Colorado buddy have any of you from her visit????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 There was a whole bunch there a minute ago. Did you use this address: ....http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Hey, there are pics of Normi in the albums too. So if she sends some of you, will you send some of her?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Yes, that would satisfy me. For a minute at least! Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 NO WE WANT THEM ALL > Brat, How about if I send one of both of us? Will that satisfy you? MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Good job! I don’t know how you did it! From: (Brat) Sent: Sunday, April 25, 2004 7:10 AM To: LUPIES Subject: Pictures Okay guys, I've learned how to put the pictures you've sent me into albums, so make sure you go and check them out!! " The LUPIES online photo albums! " Check out what your fellow Lupies look like... http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Good job! I don’t know how you did it! From: (Brat) Sent: Sunday, April 25, 2004 7:10 AM To: LUPIES Subject: Pictures Okay guys, I've learned how to put the pictures you've sent me into albums, so make sure you go and check them out!! " The LUPIES online photo albums! " Check out what your fellow Lupies look like... http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Good job! I don’t know how you did it! From: (Brat) Sent: Sunday, April 25, 2004 7:10 AM To: LUPIES Subject: Pictures Okay guys, I've learned how to put the pictures you've sent me into albums, so make sure you go and check them out!! " The LUPIES online photo albums! " Check out what your fellow Lupies look like... http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 I taught her that is how she did it =) > http://www.smileycentral.com/?partner=ZSzeb001> Yes!Good job! I don't > know how you did it! http://www.mymailsignature.com> > > > > > _____ > > From: (Brat) [mailto:squacken@r...] > Sent: Sunday, April 25, 2004 7:10 AM > To: LUPIES > Subject: Pictures > > > > Okay guys, I've learned how to put the pictures you've sent me into albums, > so make sure you go and check them out!! > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/gallery/view?username=lupies> > http://www.picturetrail.com/gallery/view?username=lupies > > > > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 I taught her that is how she did it =) > http://www.smileycentral.com/?partner=ZSzeb001> Yes!Good job! I don't > know how you did it! http://www.mymailsignature.com> > > > > > _____ > > From: (Brat) [mailto:squacken@r...] > Sent: Sunday, April 25, 2004 7:10 AM > To: LUPIES > Subject: Pictures > > > > Okay guys, I've learned how to put the pictures you've sent me into albums, > so make sure you go and check them out!! > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/gallery/view?username=lupies> > http://www.picturetrail.com/gallery/view?username=lupies > > > > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 I taught her that is how she did it =) > http://www.smileycentral.com/?partner=ZSzeb001> Yes!Good job! I don't > know how you did it! http://www.mymailsignature.com> > > > > > _____ > > From: (Brat) [mailto:squacken@r...] > Sent: Sunday, April 25, 2004 7:10 AM > To: LUPIES > Subject: Pictures > > > > Okay guys, I've learned how to put the pictures you've sent me into albums, > so make sure you go and check them out!! > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/gallery/view?username=lupies> > http://www.picturetrail.com/gallery/view?username=lupies > > > > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Well ... I'm still trying to find out, how to get the picture to you. I would like to have my family on the LUPIES ALBUM SITE. Let me know alright.. BUSY BUZZ...BUZZ... Fw: Pictures This is 's message from a sometime ago with the address of the website where you can find pictures. Ok guys, I've learned how to put the pictures you've sent me into albums, so make sure you go and check them out!! "The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Is it too late to send some? How many should we send? a C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Is it too late to send some? How many should we send? a C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Okay, we have the pictures!! I have to take a shower in a second and be to work at 1. If isn't on here tonight when I get home I will work on your album Athena! Quote Link to comment Share on other sites More sharing options...
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