Re: Re: flu or cholangitis? Please help

September 12, 2008

Hi, just my 2 cents. From experience, if you feel something is wrong and relates to Cholangitis, insist on tests. When my Tyler was first diagnosed, our original doctor kept insisting the RUQ pain was from he colitis. We knew it was different. After over a couple of weeks of fever, pain and suffering, we found new doctors and he ended up in the hospital with cholangitis and was then diagnosed with PSC. Our new doctors listen to our demands and will do any testing we suggest even if they do not feel it is warranted. You should be able to dictate your needs to your doctor or find a new one........Not to be brutle, but my son knows how he feels and knows when it is bad or different...

Good luck.

At Your Service,

Stevie Lynn Gedgaudas-Ostos

sgedgaud@...

" megasam2 "

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09/12/2008 12:21 AM

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Re: flu or cholangitis? Please help

I don't know if cholangitis will go away on its own or not. But

today he does feel a little bit better. However he did end up

throwing up either 15 or 16 times (I lost count)in a 24 hour period

and it was pretty much all bile. The doctor doesn't seem concerned

and thinks I know too much. I am so frustrated. He was very sick,

and still doesn't feel good. At least he was finally able to eat

something tonight, and keep it down.

>

> Subject: flu or cholangitis? Please help

> To:

> Date: Thursday, September 11, 2008, 4:59 AM

>

> Rick has been sick all day and has thrown up more than a dozen

times.

> He has pain in his right side as well. Right now it appears that it

is

> all bile. His temperature has fluctuated just slightly up to around

> 99.5. I am worried about the bloody noses as well. I called the GI

> and he said to wait until tomorrow to see if he gets any better. I

> just don't know if this is the flu or something else. It seems

pretty

> excessive for the flu. His CMP was taken on friday and it was

mostly

> in the normal range. Which makes me wonder.

>

> wife to Rick-crohn's, psc, spondyloarthropathy , gilbert's

>

September 12, 2008

I do very much agree with Stevie on demanding some testing from his doctor. I do

that sometimes, myself. And the doctor has to agree, Otherwise it is not good,

and until you find a better substitution, you can take him to the ER and there

they would normally run the necessary testing, plus you also can ask them, too.

I do feel sorry that you have to deal with a lot of worry and much confusion.

My best wishes.

Subject: Re: Re: flu or cholangitis? Please help

To:

Date: Friday, September 12, 2008, 2:25 PM

Hi, just my 2 cents. From experience, if you feel something is wrong and relates

to Cholangitis, insist on tests. When my Tyler was first diagnosed, our original

doctor kept insisting the RUQ pain was from he colitis. We knew it was

different. After over a couple of weeks of fever, pain and suffering, we found

new doctors and he ended up in the hospital with cholangitis and was then

diagnosed with PSC. Our new doctors listen to our demands and will do any

testing we suggest even if they do not feel it is warranted. You should be able

to dictate your needs to your doctor or find a new one........Not to be brutle,

but my son knows how he feels and knows when it is bad or different...