Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Hi all: For 3 1/2 years, urso has kept me from itching, other than a few minor episodes of 1-2 weeks. But the last 3 months the itching has been getting steadily worse, now to the point that my whole body feels like it is constantly on fire. Working and sleeping are almost impossible. Based on your experience, will Rifampin or Cholesteramine help in this situation? (My liver specialist is awaiting results of blood tests before taking action.) Thanks for any feedback, D. PSC 12/04, UC 8/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 I know what you mean about the itching, it can make you want to jump out a window! My doctor prescribed Questran (cholestyramine) 3-4 times a day and that has been the only thing that controls my itching. I hope your doctor doesn't make you wait too long to give a prescription for the itching, it can drive you mad! Good Luck. Subject: Re: Itching = on fire?To: Date: Thursday, August 7, 2008, 5:16 PM Dear ,I understand what you are undergoing and you should be happy that you are not so bad as me. fortunately Rifampin helps a lot in alleviating pruritus. but cholestyramin didn't work on me. besides, avoid drinking caffeinated drinks and green tea is all my hope because by drinking 3 times a day my itching calms down significantly. so don't forget drinking green tea. while itching you better scratch your sole ( especially Heel) after washing it's the best way to excrete the poisons causing itching.this is what i myself have exprienced.hope it helps you outMelvyn20 y/oTehran, IranPSC 2005Whipple n Cholecytectomy >> Hi all:> > For 3 1/2 years, urso has kept me from itching, other than a few minor > episodes of 1-2 weeks. But the last 3 months the itching has been > getting steadily worse, now to the point that my whole body feels like > it is constantly on fire. Working and sleeping are almost impossible.> > Based on your experience, will Rifampin or Cholesteramine help in this > situation? (My liver specialist is awaiting results of blood tests > before taking action.)> > Thanks for any feedback,> > D.> PSC 12/04, UC 8/05> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 I'm not an expert on any of this, but I found that exercise helped the itching. The actual process of sweating seemed to lessen the effect. However, the night time itching is awful.... Steve H. UC/1994 PSC/2000 From: [mailto: ] On Behalf Of chris fisherSent: Friday, August 08, 2008 1:26 PMTo: Subject: Re: Re: Itching = on fire? I don't know about the caffiene. I do know that I need naps everytime i eat a meal. I get very sleeping after eating.> > avoid drinking caffeinated drinks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Yes, exercise helps for me too, and yes, nights are the worst. I am lucky to get a few hours of zzzz at the moment. Which means I am too exhausted to be much use the rest of the day. -- > > I'm not an expert on any of this, but I found that exercise helped the > itching. The actual process of sweating seemed to lessen the effect. > However, the night time itching is awful.... > > Steve H. > UC/1994 > PSC/2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Yes, exercise helps for me too, and yes, nights are the worst. I am lucky to get a few hours of zzzz at the moment. Which means I am too exhausted to be much use the rest of the day. -- > > I'm not an expert on any of this, but I found that exercise helped the > itching. The actual process of sweating seemed to lessen the effect. > However, the night time itching is awful.... > > Steve H. > UC/1994 > PSC/2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Yes, exercise helps for me too, and yes, nights are the worst. I am lucky to get a few hours of zzzz at the moment. Which means I am too exhausted to be much use the rest of the day. -- > > I'm not an expert on any of this, but I found that exercise helped the > itching. The actual process of sweating seemed to lessen the effect. > However, the night time itching is awful.... > > Steve H. > UC/1994 > PSC/2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 > > I'm not an expert on any of this, but I found that exercise helped the > itching. The actual process of sweating seemed to lessen the effect. > However, the night time itching is awful.... =========================== Gee ..... exercise makes my itching much worse!! Anytime I start to sweat, the itching kicks into super high gear. I guess it's just one more example of how crazy and unpredictable this disease is. Regards, Carolyn B. in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 > > I'm not an expert on any of this, but I found that exercise helped the > itching. The actual process of sweating seemed to lessen the effect. > However, the night time itching is awful.... =========================== Gee ..... exercise makes my itching much worse!! Anytime I start to sweat, the itching kicks into super high gear. I guess it's just one more example of how crazy and unpredictable this disease is. Regards, Carolyn B. in SC Quote Link to comment Share on other sites More sharing options...
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