Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 I had small duct PSC. My levels went from near normal to near death in 8 weeks. I think waiting 6 months is a risk. Yellow eyes is not a good sign. Joe --------- Small duct PSC> > > > > > > > > > > > > > > > > > > > > Can some of you with small duct PSC give me some insight into the > > disease. My husband and I had a consultation with his doctor today > > and were told that it looked like he has small duct psc with no large > > duct involvement at this time. I am wondering what some of your > > experiences are with this. Do you have symptoms? He has elevated > > bilirubin and the doctor says that shouldn't happen with small duct > > psc until it is more advanced. I would really appreciate any advice > > or insight as I am just trying to get everything straight.> > Thanks,> > > > wife to Rick- crohns, spondylorarthropathy, psc> > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________> With Windows Live for mobile, y our contacts travel with you.> http://www.windowslive.com/mobile/overview.html?ocid=TXT_TAGLM_WL_Refresh_mobile_052008> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 PSC is so individual. Although Joe went from near normal to near death in 8 weeks others of us have had it for years with very little symptoms. Although your waiting 6 months to see the doctor again they are taking monthly blood tests (presumably he'd be moved up if his numbers rise dramatically). Keep an eye on him and call the doctor if you see some further change you don't like. Ian (52) PSC 89 I had small duct PSC. My levels went from near normal to near death in 8 weeks. I think waiting 6 months is a risk. Yellow eyes is not a good sign. Joe --------- Small duct PSC> > > > > > > > > > > > > > > > > > > > > Can some of you with small duct PSC give me some insight into the > > disease. My husband and I had a consultation with his doctor today > > and were told that it looked like he has small duct psc with no large > > duct involvement at this time. I am wondering what some of your > > experiences are with this. Do you have symptoms? He has elevated > > bilirubin and the doctor says that shouldn't happen with small duct > > psc until it is more advanced. I would really appreciate any advice > > or insight as I am just trying to get everything straight. > > Thanks,> > > > wife to Rick- crohns, spondylorarthropathy, psc> > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________> With Windows Live for mobile, y our contacts travel with you. > http://www.windowslive.com/mobile/overview.html?ocid=TXT_TAGLM_WL_Refresh_mobile_052008 > -- Ian Cribb former P.Eng. (resigned in good standing) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 PSC is so individual. Although Joe went from near normal to near death in 8 weeks others of us have had it for years with very little symptoms. Although your waiting 6 months to see the doctor again they are taking monthly blood tests (presumably he'd be moved up if his numbers rise dramatically). Keep an eye on him and call the doctor if you see some further change you don't like. Ian (52) PSC 89 I had small duct PSC. My levels went from near normal to near death in 8 weeks. I think waiting 6 months is a risk. Yellow eyes is not a good sign. Joe --------- Small duct PSC> > > > > > > > > > > > > > > > > > > > > Can some of you with small duct PSC give me some insight into the > > disease. My husband and I had a consultation with his doctor today > > and were told that it looked like he has small duct psc with no large > > duct involvement at this time. I am wondering what some of your > > experiences are with this. Do you have symptoms? He has elevated > > bilirubin and the doctor says that shouldn't happen with small duct > > psc until it is more advanced. I would really appreciate any advice > > or insight as I am just trying to get everything straight. > > Thanks,> > > > wife to Rick- crohns, spondylorarthropathy, psc> > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________> With Windows Live for mobile, y our contacts travel with you. > http://www.windowslive.com/mobile/overview.html?ocid=TXT_TAGLM_WL_Refresh_mobile_052008 > -- Ian Cribb former P.Eng. (resigned in good standing) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 PSC is so individual. Although Joe went from near normal to near death in 8 weeks others of us have had it for years with very little symptoms. Although your waiting 6 months to see the doctor again they are taking monthly blood tests (presumably he'd be moved up if his numbers rise dramatically). Keep an eye on him and call the doctor if you see some further change you don't like. Ian (52) PSC 89 I had small duct PSC. My levels went from near normal to near death in 8 weeks. I think waiting 6 months is a risk. Yellow eyes is not a good sign. Joe --------- Small duct PSC> > > > > > > > > > > > > > > > > > > > > Can some of you with small duct PSC give me some insight into the > > disease. My husband and I had a consultation with his doctor today > > and were told that it looked like he has small duct psc with no large > > duct involvement at this time. I am wondering what some of your > > experiences are with this. Do you have symptoms? He has elevated > > bilirubin and the doctor says that shouldn't happen with small duct > > psc until it is more advanced. I would really appreciate any advice > > or insight as I am just trying to get everything straight. > > Thanks,> > > > wife to Rick- crohns, spondylorarthropathy, psc> > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________> With Windows Live for mobile, y our contacts travel with you. > http://www.windowslive.com/mobile/overview.html?ocid=TXT_TAGLM_WL_Refresh_mobile_052008 > -- Ian Cribb former P.Eng. (resigned in good standing) Quote Link to comment Share on other sites More sharing options...
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