what kind of diet should i eat to help?

[Guest guest]

There are so many questions I have. We have a list for the doctor but

we don't go until Oct 17. I have been reading all the posts here and

it seems the consensus is low fat? Does that help prevent cholangitis

attacks and protect the liver or is it just to " stay healthy " ? I

kinda seem to be in denial still. I had that pinching kind of pain

under my right breast along with chills and itching starting Friday,

and had picked up a nightshift overtime so I was tired anyway, but

seemed to try to ignore it. It continued all weekend. With the urging

from my wonderful husband, I called the GI and he said it sounds like

a bout of cholangitis and started me on Cipro. So I'm not as

invincible as I want to think and guess I need to pay attention to my

body instead of denying it. But did I do this to myself by eating

grilled burgers and mac and cheese on Friday night with my family or

is this what I'm to expect? I have a high pain tolerance or I like to

think I do so the pain wasn't something that bothered me as much as

the itching? What does everyone take for that? I am so afraid to take

anything and haven't been to Hep Dr yet to ask. The itching wasn't

severe, I have had it severe before, but it was enough that I felt I

needed something to help relieve it.I don't know, I guess all the

questions are starting to pour out and no amount of research online

seems to answer or be able to answer all of them. There aren't any

answers for PSC is what I am coming to realize, but I am hoping to

rely on the experience of those who have gone through this too to

ease my nerves.

Thanks

IN

[Guest guest]

,

Sorry to see you hadn't gotten a response yet, but here's my input for

what it's worth. I've adopted a low fat diet simply for the sake of my

own comfort. I've never had a high fat meal actually trigger a bout of

cholangitis and frankly, I don't think it would unless there were

already an underlying blockage somewhere, but there is a direct

correlation between my fat intake and the level of my itching. My hep

recently prescribed me Rifampin (an old-school TB and Leprosy med) at

300 mg once a day and it has given me pretty dramatic relief from the

itching. Hope this helps.

Regards,

Bill Wise

PSC '00, Listed TX '04