Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 margaret so glad you had a great day; send the receipe for soup.. mine wasn't such a good day, felt bloated all day and of course like you said short of breath when over eat. but it was an emotional eating frenzy.. plan to try and eat healthy starting again.. Like MB says it isn't about losing weight it is about learning to eat right and still enjoy your food. To learn not live to eat. which i think at times is my theory.. Keep up the good work. patti nj, ipf 7'06, raynauds, scleroderma, PH 2'07 > > > > Jack, > > Dr. Weil's website has alot of information on an anti- inflammatory diet. Here is a link to his food pyramid: > > http://www.drweil. com/drw/u/ ART02995/ Dr-Weil-Anti- Inflammatory- Food-Pyramid. html > > > > I realize that this may be controversial to some people.. I'm not saying anyone should make the same changes I have, just sharing what I've been working on diet wise. I feel very comfortable with this partly because I'm working with a nutritionist at Duke who is completely familiar with my medical situation and my history and more importantly I'm doing this with the blessing and encouragement of both my pulmonologist and my rheumatologist at Duke. > >  > > Beth in North Carolina > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > >  > > " May you never take one single breath for granted " > > > > > > > > > > ____________ _________ _________ __ > > From: Jack Marshall mrshlljck@ . > > To: Breathe-Support@ yahoogroups. com > > Sent: Tuesday, February 17, 2009 4:04:42 PM > > Subject: Re: Re: Support to Lose Weight > > > > > > MB, I've never heard of an anti-inflammatory diet, but I am very interested in one. Can you share info > > on what it consists of? > >  Jack > > 79/IPF - UIP/dx06/05 Maine > > > > > > > > > > ____________ _________ _________ __ > > From: Beth mbmurtha (AT) yahoo (DOT) com> > > To: Breathe-Support@ yahoogroups. com > > Sent: Tuesday, February 17, 2009 2:35:19 PM > > Subject: Re: Re: Support to Lose Weight > > > > > > Sue, > > I struggle with the same issue that you've all been talking about. I need to lose around the same amount as you do in order to go any further with transplant. Fortunately I am still considered way to healthy (I find that somewhat amusing) to be considered for transplant, overweight or not. But I also realize that could change at any time. > > My nsip seems to have been caused by the dermatomyositis which means that theoretically controlling my auto-immune condition helps to prevent worsening of my lung condition. Can't count on that obviously. Who do you see at Duke? I see Lake on, he has told me that life expectancy with nsip (both fibrotic and cellular) varies tremendously from stats similar to IPF as you said to literally decades of stability. It may ultimately depend on what caused it. > > > > What I'm doing right now is radically different from anything else I've ever done. I've begun working with a nutritionist from the Duke Center for Living and have begun eating an 'anti- inflammation' diet. I'm not at all focusing on losing weight (though I am) it's more about choosing to eat foods that can help my body be as healthy as possible. I don't know how this will work for me over the long haul but I'm giving it a go cause what I've done up till now hasn't gotten me anything but aggravation. > > > > Beth in North Carolina > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > >  > > " May you never take one single breath for granted " > > > > > > > > > > ____________ _________ _________ __ > > From: Sue Dassel sdassel (AT) verizon (DOT) net> > > To: Breathe-Support@ yahoogroups. com > > Sent: Tuesday, February 17, 2009 10:17:40 AM > > Subject: Re: Support to Lose Weight > > > > > > Hi friends: I'd like to jump in here. I have always had a weight problem and have also been on Cellcept (3000 mg / day) and prednisone (now down to 5 mg) for the past 15 months. I gained about 25 lbs and now need to lose 100 lbs to be considered for a transplant at Duke. That 100 lbs might as well be 1000 lbs. I am looking into a lap band or bypass and would be approved from an ins. Standpoint, but before being considered Ihave to get an EKG, and a recent PFT, a psychologist eval and some other test. I am in the process of getting this info together. My pulmodoc at Duke has hesitantly said he would approve of this procedure for me. My local pulmodoc told me it's almost impossible to lose weight on prednisone and I don't want to go through a lap band procedure if I'm only going to lose a small amount of weight. The other thing he told me was that fibrotic NSIP is very close to IPF in terms of life expectancy.  My last PFT done > > here locally was not very good from the diffusion standpoint †" only 19% of predicted†" but the lung volume and other tests were not bad at all.      Doc said there may be a variation in equipment from here to Duke so I guess my test in March will tell more. > > I am going back to Duke in March, and I have a feeling he is going to change the meds and probably up the prednisone. I am really in a quandary. > > I know part of my eating is psychological and the thought of a diet when dealing with this terminal disease is almost too much for me to handle. I don't want to feel deprived. It's not that I eat much in quantity because I feel terrible if I have overeaten, I just make the wrong choices so I don't feel deprived. > > There, I got it off my chest.. Any suggestions/ recommendations would be welcome. > > Sue D. > > 62 yr old, Fibrotic NSIP dx 9/07, VA > >  > > > Quote Link to comment Share on other sites More sharing options...
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