Re: reply to Diane>Tina

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Tina...I'm curious...what did you use to clear up the stuffed nose? Are you breathing better now?

Maybe what helped you will help others too.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

HI EVERYONE

Hi-sorry I haven't posted much lately. I did go to a new specialist last week at Albany Medical Center. She is the head of ICU/PULM and works with lung transplants- trained at Colombia Univ. SHe read all my reports form a few months ago and sees no reason to do any further tests. I was told back then I only had 48% of my lung capacity left-she said no way-only about 32%. Because my body is not tolerating any of the drugs and most of them paralyze my nervous system, this is about the end for me. She absoltely will not treat the pulmonary hypertension because it is a secondary cause to the lung disease. UGH I still don't understand why it won't help!!! She suggested Hospice when I am ready. I am very scared and always related Hospice with Morphine and death shortly after. I am fighting my way thru each day though getting weaker. Have much paperwork to do. Just closed business and have taxes and ledgers to do ect as well as will and bills for hubby. He will be lost since I have done everything for 20yrs.... I cry most days now with mixed feelings wondering how I'm going to get thru the day. Recently the town I live in sent me someone once a month to help clean, vac, do laundry ect. Thank God for some people. That was supposed to be ME-continuing my giving to society and helping people. Life is unfair. Like you all say-you don't come stamped with a date of expiration- so no ones knows except God. I try to keep faith and say prayers for all of you also. Thank you for being there for me. I hope Hospice does me well for a little while longer when I do decide.Diane PF,Raynauds, PM,Sjorgrens 2006 PH 2008