Information request - eosinophil & Suzanne

[Guest guest]

Hello all and welcome to my merry-go-round.

I feel like we just keep going around and around about the

same things with Suzanne remaining ill. The story (recent) – her GI

wanted to scope her before scheduling the colectmy; a reasonable request. The

surgeon was gung ho ready to move so we scheduled the surgery before all of the

biopsies were in. Her colon is a mess, no surprise there. But the biopsies once

again are showing a large amount of eosinophil cells. Apparently more than they

saw in the April scope. Over the summer we went through allergy tests that all

came up negative and they put her on gastrocrom which had no effect on her

symptoms. The GI and pathologist both said they have never seen this amount of

eosinophil present before (in both her esophagus and colon). So, they now want

to put her on an elimination diet (wheat, eggs, milk, nuts, fish & soy) to

see if it changes her symptoms. I am certainly okay with that (sort of), but

what I am really concerned about is what this all could mean. I am not sure why

or how should could have any of those food allergies and have them not show up

on the allergy tests. Is this one of those odd situations that seems to occur

more frequently with PSC/IBD people? So, we canceled the surgery and are trying

this for awhile. My other concern is timing, because I really want her to begin

college in the fall and put all of this high school nightmare behind her –

a new beginning

In the meantime she got strep throat the day after the scope

(coincidence?), but we didn’t recognize it at first because we thought

her throat was sore because of the procedure. She was put on an antibiotic, but

that night (last night) she threw up for hours. They sent us to the ER and she

is now hospitalized at Children’s. She was extremely dehydrated and has a

whopper of an infection. They are not sure if there are any other infections

(based on the increased white cells), so the plan is lots of IV fluid, and IV antibiotics

for the strep, with anti-nausea medication as needed. She finally (in the early

evening) ate something that stayed down. Of course her colitis symptoms are

increasing because of all of this. Poor kid. Once we kick the strep infection,

if no other infections show up (and she stops vomiting) they will release her

on oral antibodies. Hopefully tomorrow.

If anyone has any information or insight on what we are

going through please share it. I am lost and the doctors are also challenged by

this situation.

Thank you once again wonderful group.

LINDA

(Mom of Suzanne,

17; IBD 1/04; PSC 3/04)