Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 , By way of background, my pain problems have not been so severe and longstanding as yours. In terms of musculoskeletal pain, I have had shoulder, knee, and foot problems. Somehow I have come from a family with terrible back problems and I don't have any. Some occasional aches and pains in the back area, but not significant. Presently, I am having abdominal aches and pains, but the musculoskeletal issues are very quiet. Things I have found helpful for pain issues are acupuncture, massage therapy, yoga, physical therapy, castor oil packs, and epsom salt baths. I was very (very!) tender when I started regular massage and I switched to craniosacral therapy for awhile, which is quite different and more gentle. Castor oil packs and epsom salt baths are my favorites because they are cheap and can give quick improvements. The other things are more costly, take a bit more time and caused me some increased discomfort before improvement. After 1.5 years of DMSA/ALA and 4-5 months of DMPS/ALA, I can sleep on my right side now, which I could not do for some years. I have not been getting much exercise these last few months, so I don't know how my shoulders will hold up with exercise. (I really need to try exercise again.) My foot pain improved a good bit before starting chelation with self-massage, Traumeel cream, and stretches. However I recently noticed my feet have dramatically loosened up - I didn't realize just how stiff and tight they had been. I started some new supplements recently, including DLPA, which is supposed to be good for pain and inflammation, so that might be the reason. Might be worth looking into that one. Don't know what to tell you about fatigue. Overall, I am much more fatigued in the past few months and haven't figured out how to deal with it. -- > > > > Before I removed my amalgams I had the biggest long term pain problem > mostly resolved. After removing amalgams I have had one sort of > inflammation problem after another - Achilles tendonitis, tennis elbow > [i don't play tennis], colon inflammation, and now calcified > tendonitis in my shoulder [which has been very long term but I'm > having an acute flare up] and pain in my leg muscles. > > I can barely move in the morning. It hurts to get up out of chairs > and to do things. If I do much my back starts aching again. I am not > the inactive type - I get frustrated quick when I have to limit > activities. > > I think I have been doing what I am supposed to be doing, supplements > and all, but I am a bit stumped. > > I also have big time fatigue. My maintenance dose of cortef is 30 mg, > I often have to take more for stress dosing, and it doesn't matter how > much I take I am exhausted at around suppertime. I have been known to > accidently take 20 mg at midnight and sleep like a baby [except the > shoulder is waking me up now]. > > Previously chelation with DMPS every 6 h seemed to help with the pain > and add to the fatigue. I was on a break for a couple of months and > then tried DMPS every 8 h and it just seemed to make everything worse. > I'm psyching myself up to try every 6 h again, I guess. > > I am taking pain medications and it seems the more I take the more I want. > > Anyone have any ideas of what I am missing. > > J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 , By way of background, my pain problems have not been so severe and longstanding as yours. In terms of musculoskeletal pain, I have had shoulder, knee, and foot problems. Somehow I have come from a family with terrible back problems and I don't have any. Some occasional aches and pains in the back area, but not significant. Presently, I am having abdominal aches and pains, but the musculoskeletal issues are very quiet. Things I have found helpful for pain issues are acupuncture, massage therapy, yoga, physical therapy, castor oil packs, and epsom salt baths. I was very (very!) tender when I started regular massage and I switched to craniosacral therapy for awhile, which is quite different and more gentle. Castor oil packs and epsom salt baths are my favorites because they are cheap and can give quick improvements. The other things are more costly, take a bit more time and caused me some increased discomfort before improvement. After 1.5 years of DMSA/ALA and 4-5 months of DMPS/ALA, I can sleep on my right side now, which I could not do for some years. I have not been getting much exercise these last few months, so I don't know how my shoulders will hold up with exercise. (I really need to try exercise again.) My foot pain improved a good bit before starting chelation with self-massage, Traumeel cream, and stretches. However I recently noticed my feet have dramatically loosened up - I didn't realize just how stiff and tight they had been. I started some new supplements recently, including DLPA, which is supposed to be good for pain and inflammation, so that might be the reason. Might be worth looking into that one. Don't know what to tell you about fatigue. Overall, I am much more fatigued in the past few months and haven't figured out how to deal with it. -- > > > > Before I removed my amalgams I had the biggest long term pain problem > mostly resolved. After removing amalgams I have had one sort of > inflammation problem after another - Achilles tendonitis, tennis elbow > [i don't play tennis], colon inflammation, and now calcified > tendonitis in my shoulder [which has been very long term but I'm > having an acute flare up] and pain in my leg muscles. > > I can barely move in the morning. It hurts to get up out of chairs > and to do things. If I do much my back starts aching again. I am not > the inactive type - I get frustrated quick when I have to limit > activities. > > I think I have been doing what I am supposed to be doing, supplements > and all, but I am a bit stumped. > > I also have big time fatigue. My maintenance dose of cortef is 30 mg, > I often have to take more for stress dosing, and it doesn't matter how > much I take I am exhausted at around suppertime. I have been known to > accidently take 20 mg at midnight and sleep like a baby [except the > shoulder is waking me up now]. > > Previously chelation with DMPS every 6 h seemed to help with the pain > and add to the fatigue. I was on a break for a couple of months and > then tried DMPS every 8 h and it just seemed to make everything worse. > I'm psyching myself up to try every 6 h again, I guess. > > I am taking pain medications and it seems the more I take the more I want. > > Anyone have any ideas of what I am missing. > > J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 , By way of background, my pain problems have not been so severe and longstanding as yours. In terms of musculoskeletal pain, I have had shoulder, knee, and foot problems. Somehow I have come from a family with terrible back problems and I don't have any. Some occasional aches and pains in the back area, but not significant. Presently, I am having abdominal aches and pains, but the musculoskeletal issues are very quiet. Things I have found helpful for pain issues are acupuncture, massage therapy, yoga, physical therapy, castor oil packs, and epsom salt baths. I was very (very!) tender when I started regular massage and I switched to craniosacral therapy for awhile, which is quite different and more gentle. Castor oil packs and epsom salt baths are my favorites because they are cheap and can give quick improvements. The other things are more costly, take a bit more time and caused me some increased discomfort before improvement. After 1.5 years of DMSA/ALA and 4-5 months of DMPS/ALA, I can sleep on my right side now, which I could not do for some years. I have not been getting much exercise these last few months, so I don't know how my shoulders will hold up with exercise. (I really need to try exercise again.) My foot pain improved a good bit before starting chelation with self-massage, Traumeel cream, and stretches. However I recently noticed my feet have dramatically loosened up - I didn't realize just how stiff and tight they had been. I started some new supplements recently, including DLPA, which is supposed to be good for pain and inflammation, so that might be the reason. Might be worth looking into that one. Don't know what to tell you about fatigue. Overall, I am much more fatigued in the past few months and haven't figured out how to deal with it. -- > > > > Before I removed my amalgams I had the biggest long term pain problem > mostly resolved. After removing amalgams I have had one sort of > inflammation problem after another - Achilles tendonitis, tennis elbow > [i don't play tennis], colon inflammation, and now calcified > tendonitis in my shoulder [which has been very long term but I'm > having an acute flare up] and pain in my leg muscles. > > I can barely move in the morning. It hurts to get up out of chairs > and to do things. If I do much my back starts aching again. I am not > the inactive type - I get frustrated quick when I have to limit > activities. > > I think I have been doing what I am supposed to be doing, supplements > and all, but I am a bit stumped. > > I also have big time fatigue. My maintenance dose of cortef is 30 mg, > I often have to take more for stress dosing, and it doesn't matter how > much I take I am exhausted at around suppertime. I have been known to > accidently take 20 mg at midnight and sleep like a baby [except the > shoulder is waking me up now]. > > Previously chelation with DMPS every 6 h seemed to help with the pain > and add to the fatigue. I was on a break for a couple of months and > then tried DMPS every 8 h and it just seemed to make everything worse. > I'm psyching myself up to try every 6 h again, I guess. > > I am taking pain medications and it seems the more I take the more I want. > > Anyone have any ideas of what I am missing. > > J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 I have one other idea. How much sulfur are you eating? You could try taking a break from it for a week or two and see if it makes a difference. -- > > > > Before I removed my amalgams I had the biggest long term pain problem > mostly resolved. After removing amalgams I have had one sort of > inflammation problem after another - Achilles tendonitis, tennis elbow > [i don't play tennis], colon inflammation, and now calcified > tendonitis in my shoulder [which has been very long term but I'm > having an acute flare up] and pain in my leg muscles. > > I can barely move in the morning. It hurts to get up out of chairs > and to do things. If I do much my back starts aching again. I am not > the inactive type - I get frustrated quick when I have to limit > activities. > > I think I have been doing what I am supposed to be doing, supplements > and all, but I am a bit stumped. > > I also have big time fatigue. My maintenance dose of cortef is 30 mg, > I often have to take more for stress dosing, and it doesn't matter how > much I take I am exhausted at around suppertime. I have been known to > accidently take 20 mg at midnight and sleep like a baby [except the > shoulder is waking me up now]. > > Previously chelation with DMPS every 6 h seemed to help with the pain > and add to the fatigue. I was on a break for a couple of months and > then tried DMPS every 8 h and it just seemed to make everything worse. > I'm psyching myself up to try every 6 h again, I guess. > > I am taking pain medications and it seems the more I take the more I want. > > Anyone have any ideas of what I am missing. > > J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 I have one other idea. How much sulfur are you eating? You could try taking a break from it for a week or two and see if it makes a difference. -- > > > > Before I removed my amalgams I had the biggest long term pain problem > mostly resolved. After removing amalgams I have had one sort of > inflammation problem after another - Achilles tendonitis, tennis elbow > [i don't play tennis], colon inflammation, and now calcified > tendonitis in my shoulder [which has been very long term but I'm > having an acute flare up] and pain in my leg muscles. > > I can barely move in the morning. It hurts to get up out of chairs > and to do things. If I do much my back starts aching again. I am not > the inactive type - I get frustrated quick when I have to limit > activities. > > I think I have been doing what I am supposed to be doing, supplements > and all, but I am a bit stumped. > > I also have big time fatigue. My maintenance dose of cortef is 30 mg, > I often have to take more for stress dosing, and it doesn't matter how > much I take I am exhausted at around suppertime. I have been known to > accidently take 20 mg at midnight and sleep like a baby [except the > shoulder is waking me up now]. > > Previously chelation with DMPS every 6 h seemed to help with the pain > and add to the fatigue. I was on a break for a couple of months and > then tried DMPS every 8 h and it just seemed to make everything worse. > I'm psyching myself up to try every 6 h again, I guess. > > I am taking pain medications and it seems the more I take the more I want. > > Anyone have any ideas of what I am missing. > > J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 I have one other idea. How much sulfur are you eating? You could try taking a break from it for a week or two and see if it makes a difference. -- > > > > Before I removed my amalgams I had the biggest long term pain problem > mostly resolved. After removing amalgams I have had one sort of > inflammation problem after another - Achilles tendonitis, tennis elbow > [i don't play tennis], colon inflammation, and now calcified > tendonitis in my shoulder [which has been very long term but I'm > having an acute flare up] and pain in my leg muscles. > > I can barely move in the morning. It hurts to get up out of chairs > and to do things. If I do much my back starts aching again. I am not > the inactive type - I get frustrated quick when I have to limit > activities. > > I think I have been doing what I am supposed to be doing, supplements > and all, but I am a bit stumped. > > I also have big time fatigue. My maintenance dose of cortef is 30 mg, > I often have to take more for stress dosing, and it doesn't matter how > much I take I am exhausted at around suppertime. I have been known to > accidently take 20 mg at midnight and sleep like a baby [except the > shoulder is waking me up now]. > > Previously chelation with DMPS every 6 h seemed to help with the pain > and add to the fatigue. I was on a break for a couple of months and > then tried DMPS every 8 h and it just seemed to make everything worse. > I'm psyching myself up to try every 6 h again, I guess. > > I am taking pain medications and it seems the more I take the more I want. > > Anyone have any ideas of what I am missing. > > J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 > , I seemed to have alot more pain after amalgam removal too. Also, a steel implant in my back. I read on some herbal/holistic site that when you remove the metals, the yeast/candida go crazy. Not sure why but that seems to be maybe what's going on with me. I've been aggressively treating candida with diet and anti-fungals and probiotics. I just made my second batch of goat yogurt and it tastes god awful. ugh!! Anyway, I know you're doing the SCD diet but are you also treating for yeast? It can be a real monster. Sometimes I wonder if thats what my real problem is but I will still chelate. My doctor says if you have one, you have the other. Also, I just tested for food allergies with ALCAT and am awaiting the results. I know by taking egg out of my diet I have avoided some pain. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 > , I seemed to have alot more pain after amalgam removal too. Also, a steel implant in my back. I read on some herbal/holistic site that when you remove the metals, the yeast/candida go crazy. Not sure why but that seems to be maybe what's going on with me. I've been aggressively treating candida with diet and anti-fungals and probiotics. I just made my second batch of goat yogurt and it tastes god awful. ugh!! Anyway, I know you're doing the SCD diet but are you also treating for yeast? It can be a real monster. Sometimes I wonder if thats what my real problem is but I will still chelate. My doctor says if you have one, you have the other. Also, I just tested for food allergies with ALCAT and am awaiting the results. I know by taking egg out of my diet I have avoided some pain. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 > , I seemed to have alot more pain after amalgam removal too. Also, a steel implant in my back. I read on some herbal/holistic site that when you remove the metals, the yeast/candida go crazy. Not sure why but that seems to be maybe what's going on with me. I've been aggressively treating candida with diet and anti-fungals and probiotics. I just made my second batch of goat yogurt and it tastes god awful. ugh!! Anyway, I know you're doing the SCD diet but are you also treating for yeast? It can be a real monster. Sometimes I wonder if thats what my real problem is but I will still chelate. My doctor says if you have one, you have the other. Also, I just tested for food allergies with ALCAT and am awaiting the results. I know by taking egg out of my diet I have avoided some pain. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2007 Report Share Posted June 26, 2007 FWIW, I have a couple of other thoughts. First, peanuts are bad news for some people with candida issues. I can't go near them. I do okay with a certain amount of almonds, hazelnuts, macadamias. Honey is also way out of bounds for me for the same reason. Also, peanuts are a legume, so might cause problems if you have trouble with other legumes. Second, you might think about NAET for hormones. I am going to a new NAET person tomorrow (who uses needles, unlike the last person I went to) and I'm going to see if we can treat various hormones (HC, T3, DHEA, and progesterone cream). I hope it will help my body use and metabolize them better. Don't know if it will work, but I've had good luck with NAET for other uses. -- > > > > Thanks for all of your kind words and thoughts, guys. I really > appreciate everyone. I was really at a low point. > > One confession to make - after a long chelation break I was trying > DMPS at every 8 h but I kept missing doses, setting the pill aside to > stop the round and then swallowing it by mistake, so kept going until > I was too tired to screw up anymore and stopped. The pain and fatigue > have been getting worse and worse during those months of not chelating > and that last attempt at a round was enough to take me over the edge. > > Last night I started DMPS again, every 6 h with 4 alarm clocks going > day and night to prevent screw ups. I'm starting to feel a little bit > better all ready. (It could just be from all of the support > > I _really_ don't do well when I'm _not_ taking DMPS. That's only part > of the problem though. > > I've got my DMPS and supplements all laid out for the next two weeks > and will be examining the various suggestions. Diet is probably a > factor too because the change to the SCD added a lot of things I > hadn't eaten in years - like peanut butter, honey, more almonds and > nuts than I am used to, there is a lot of sulfur in all that yogurt > after not eating any dairy at all for 6 years, and SCD can be heavy on > eggs. The extra omega 6 in all the nuts and seeds throws the omega > 6:3 ratio out of whack because I didn't increase fish oil. (It would > be possible to do SCD and eat vegetables instead of gorging on all of > the above). > > I also got a referral to a physio and a surgeon for the shoulder > calcified tendonitis. That one has been going on for years but now it > is super tender. > > And I'm going to ask to go to lymphatic drainage massage. Before I > heat injured I was having saunas and I think they helped. Now I can't > even tolerate room temperature so have to find an alternate way to > squeeze more toxins out. I'd ask about cranial sacral (I still don't > really know what it is) but I don't think it would be covered by my > insurance. I could always check. > > Every once in a while I have to sit down and take inventory and pain > sure forces me to do that. > > J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2007 Report Share Posted June 26, 2007 FWIW, I have a couple of other thoughts. First, peanuts are bad news for some people with candida issues. I can't go near them. I do okay with a certain amount of almonds, hazelnuts, macadamias. Honey is also way out of bounds for me for the same reason. Also, peanuts are a legume, so might cause problems if you have trouble with other legumes. Second, you might think about NAET for hormones. I am going to a new NAET person tomorrow (who uses needles, unlike the last person I went to) and I'm going to see if we can treat various hormones (HC, T3, DHEA, and progesterone cream). I hope it will help my body use and metabolize them better. Don't know if it will work, but I've had good luck with NAET for other uses. -- > > > > Thanks for all of your kind words and thoughts, guys. I really > appreciate everyone. I was really at a low point. > > One confession to make - after a long chelation break I was trying > DMPS at every 8 h but I kept missing doses, setting the pill aside to > stop the round and then swallowing it by mistake, so kept going until > I was too tired to screw up anymore and stopped. The pain and fatigue > have been getting worse and worse during those months of not chelating > and that last attempt at a round was enough to take me over the edge. > > Last night I started DMPS again, every 6 h with 4 alarm clocks going > day and night to prevent screw ups. I'm starting to feel a little bit > better all ready. (It could just be from all of the support > > I _really_ don't do well when I'm _not_ taking DMPS. That's only part > of the problem though. > > I've got my DMPS and supplements all laid out for the next two weeks > and will be examining the various suggestions. Diet is probably a > factor too because the change to the SCD added a lot of things I > hadn't eaten in years - like peanut butter, honey, more almonds and > nuts than I am used to, there is a lot of sulfur in all that yogurt > after not eating any dairy at all for 6 years, and SCD can be heavy on > eggs. The extra omega 6 in all the nuts and seeds throws the omega > 6:3 ratio out of whack because I didn't increase fish oil. (It would > be possible to do SCD and eat vegetables instead of gorging on all of > the above). > > I also got a referral to a physio and a surgeon for the shoulder > calcified tendonitis. That one has been going on for years but now it > is super tender. > > And I'm going to ask to go to lymphatic drainage massage. Before I > heat injured I was having saunas and I think they helped. Now I can't > even tolerate room temperature so have to find an alternate way to > squeeze more toxins out. I'd ask about cranial sacral (I still don't > really know what it is) but I don't think it would be covered by my > insurance. I could always check. > > Every once in a while I have to sit down and take inventory and pain > sure forces me to do that. > > J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2007 Report Share Posted June 26, 2007 FWIW, I have a couple of other thoughts. First, peanuts are bad news for some people with candida issues. I can't go near them. I do okay with a certain amount of almonds, hazelnuts, macadamias. Honey is also way out of bounds for me for the same reason. Also, peanuts are a legume, so might cause problems if you have trouble with other legumes. Second, you might think about NAET for hormones. I am going to a new NAET person tomorrow (who uses needles, unlike the last person I went to) and I'm going to see if we can treat various hormones (HC, T3, DHEA, and progesterone cream). I hope it will help my body use and metabolize them better. Don't know if it will work, but I've had good luck with NAET for other uses. -- > > > > Thanks for all of your kind words and thoughts, guys. I really > appreciate everyone. I was really at a low point. > > One confession to make - after a long chelation break I was trying > DMPS at every 8 h but I kept missing doses, setting the pill aside to > stop the round and then swallowing it by mistake, so kept going until > I was too tired to screw up anymore and stopped. The pain and fatigue > have been getting worse and worse during those months of not chelating > and that last attempt at a round was enough to take me over the edge. > > Last night I started DMPS again, every 6 h with 4 alarm clocks going > day and night to prevent screw ups. I'm starting to feel a little bit > better all ready. (It could just be from all of the support > > I _really_ don't do well when I'm _not_ taking DMPS. That's only part > of the problem though. > > I've got my DMPS and supplements all laid out for the next two weeks > and will be examining the various suggestions. Diet is probably a > factor too because the change to the SCD added a lot of things I > hadn't eaten in years - like peanut butter, honey, more almonds and > nuts than I am used to, there is a lot of sulfur in all that yogurt > after not eating any dairy at all for 6 years, and SCD can be heavy on > eggs. The extra omega 6 in all the nuts and seeds throws the omega > 6:3 ratio out of whack because I didn't increase fish oil. (It would > be possible to do SCD and eat vegetables instead of gorging on all of > the above). > > I also got a referral to a physio and a surgeon for the shoulder > calcified tendonitis. That one has been going on for years but now it > is super tender. > > And I'm going to ask to go to lymphatic drainage massage. Before I > heat injured I was having saunas and I think they helped. Now I can't > even tolerate room temperature so have to find an alternate way to > squeeze more toxins out. I'd ask about cranial sacral (I still don't > really know what it is) but I don't think it would be covered by my > insurance. I could always check. > > Every once in a while I have to sit down and take inventory and pain > sure forces me to do that. > > J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 > > > > , I was just reading a section in " Solved: The Riddle of > Illness " by Langer on Dr. > > Lowe's work with fibromylygia. Pain and fatigue was mentioned over > and over. > > > > Is your thyroid optimized? > > > > Have you have your adrenals and thyroid tested, by saliva, while > taking your meds, to see > > where you are at? > > > > Best, > > > > in Illinois > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 > > > > , I was just reading a section in " Solved: The Riddle of > Illness " by Langer on Dr. > > Lowe's work with fibromylygia. Pain and fatigue was mentioned over > and over. > > > > Is your thyroid optimized? > > > > Have you have your adrenals and thyroid tested, by saliva, while > taking your meds, to see > > where you are at? > > > > Best, > > > > in Illinois > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2007 Report Share Posted June 27, 2007 > > > > , I was just reading a section in " Solved: The Riddle of > Illness " by Langer on Dr. > > Lowe's work with fibromylygia. Pain and fatigue was mentioned over > and over. > > > > Is your thyroid optimized? > > > > Have you have your adrenals and thyroid tested, by saliva, while > taking your meds, to see > > where you are at? > > > > Best, > > > > in Illinois > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 : Have you checked out the www.stopthethyroidmadness.com website? They have some good information in there about adrenals and thyroid dosing. la > > I won't be able to add extra T3 without the approval of my doctor, and > he doesn't want me going above the normal range. > > J > > > > > Nell > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 : Have you checked out the www.stopthethyroidmadness.com website? They have some good information in there about adrenals and thyroid dosing. la > > I won't be able to add extra T3 without the approval of my doctor, and > he doesn't want me going above the normal range. > > J > > > > > Nell > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2007 Report Share Posted June 28, 2007 : Have you checked out the www.stopthethyroidmadness.com website? They have some good information in there about adrenals and thyroid dosing. la > > I won't be able to add extra T3 without the approval of my doctor, and > he doesn't want me going above the normal range. > > J > > > > > Nell > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 > > : Have you checked out the www.stopthethyroidmadness.com website? > They have some good information in there about adrenals and thyroid > dosing. la > > IMO, at STTM and NTH and NTH-A, you're likely to get one kind of advice and that advice tends to be everyone needs more Armour (at least 3-5 grains) and more HC. Also, those sites are heavy with self-treaters who, in general, believe they can tell what is going on with their hormones by how they feel. JMO, but I think it's complicated to figure out what is thyroid, what is adrenals and what is sex hormones. Although you can get some useful info from those sites/lists, I'd do your research. in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 > > : Have you checked out the www.stopthethyroidmadness.com website? > They have some good information in there about adrenals and thyroid > dosing. la > > IMO, at STTM and NTH and NTH-A, you're likely to get one kind of advice and that advice tends to be everyone needs more Armour (at least 3-5 grains) and more HC. Also, those sites are heavy with self-treaters who, in general, believe they can tell what is going on with their hormones by how they feel. JMO, but I think it's complicated to figure out what is thyroid, what is adrenals and what is sex hormones. Although you can get some useful info from those sites/lists, I'd do your research. in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 > > : Have you checked out the www.stopthethyroidmadness.com website? > They have some good information in there about adrenals and thyroid > dosing. la > > IMO, at STTM and NTH and NTH-A, you're likely to get one kind of advice and that advice tends to be everyone needs more Armour (at least 3-5 grains) and more HC. Also, those sites are heavy with self-treaters who, in general, believe they can tell what is going on with their hormones by how they feel. JMO, but I think it's complicated to figure out what is thyroid, what is adrenals and what is sex hormones. Although you can get some useful info from those sites/lists, I'd do your research. in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 ----- Original Message ----- From: mmc2315 IMO, at STTM and NTH and NTH-A, you're likely to get one kind of advice and that advice tends to be everyone needs more Armour (at least 3-5 grains) and more HC. ===>So true, no matter what problem you post there, the advice is ALWAYS to increase the Armour. We overdosed our little one on their advice and when her Free T3 came back two points over high value the advice was still to increase. And the dr, which we had was not much more helpful than that as I had checked out the first increase with him. Nice people but as has said, do your own research. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 ----- Original Message ----- From: mmc2315 IMO, at STTM and NTH and NTH-A, you're likely to get one kind of advice and that advice tends to be everyone needs more Armour (at least 3-5 grains) and more HC. ===>So true, no matter what problem you post there, the advice is ALWAYS to increase the Armour. We overdosed our little one on their advice and when her Free T3 came back two points over high value the advice was still to increase. And the dr, which we had was not much more helpful than that as I had checked out the first increase with him. Nice people but as has said, do your own research. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 ----- Original Message ----- From: mmc2315 IMO, at STTM and NTH and NTH-A, you're likely to get one kind of advice and that advice tends to be everyone needs more Armour (at least 3-5 grains) and more HC. ===>So true, no matter what problem you post there, the advice is ALWAYS to increase the Armour. We overdosed our little one on their advice and when her Free T3 came back two points over high value the advice was still to increase. And the dr, which we had was not much more helpful than that as I had checked out the first increase with him. Nice people but as has said, do your own research. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 , I just followed the string on your post since I've been managing these issues as best I can for 15 years now. I really agree with anything you can do to get stagnant lymph moving. My guess is that we harbor bacteria and other infectious organisms more than we should, and pain is the result. Tumeric and fennel caps are a worthwhile way to help your body fight some infections. The least expensive, gentlest form of exercise I think you could try is Qi Gong. That system has been working for millenia and is specifically tuned in to clearing lymph in the body. All you need to purchase is a DVD to get started. Movements are extremely slow and easy, do not tax joints, yet they pull a hard sweat if you really put yourself into it, and you feel great afterward. This is one of the nicest " Rx's " a doctor has ever given me. It's a concern, I think, that you're not able to work out or in some way get a good sweat going on a regular basis. Pushing myself out, despite pain, just for quick-paced walks, especially in hot weather, has always been my best ally. I've done Epsom salts baths, too. They draw out sweat and also stimulate an immune response from your body, but you have to approach them carefully. Sugars feed the problems for me. I'm getting a small amount, but gradually feel worse when I'm being exposed to more (like during our recent vacation - it's very hard to have to eat away from home). When sugar is completely absent from my diet, I'm far more pain-free and energetic overall. I always have to go through a few days of Herxheimer's symptoms after a week or so of exposure to sugars. It sounds like your liver is probably really toxic (duh). As much as I'd rather not take it, ALA has been remarkable for helping my liver detox. This even shows up in my waistline! I realized by the second day of chelating with it that my upper tummy shrinks and isn't hard & pushing out of my ribs. After about two months, it's been staying down and I'm digesting fats much better. I've dropped ten pounds without trying. I looked for creative ways to get minute amounts of it to get started, even splitting caps from a liver cleanse kit (I think Renew's basic cleanse has 10 mg per cap). I also used VRP's Extend Ultra caps, because 8 caps are taken per day anyway & only around 17 mg ALA is in the daily total...the only problem with this is a small amount of copper & I risked that because I'm not high copper. Glucosamine sulfate really helps with my joints - it's been holding down progression of osteoarthritis for about ten years. When I don't take it regularly, new joints flare up. I just switched to a vegetarian capsule (I'm concerned the shellfish-based caps were contributing to arsenic levels), but seem to be more disposed to flare-ups on it. Maybe because it doesn't have chondroitin, also? As to diet, it was a waste to follow anyone else's idea of the right diet. This is simply too individual. To find what was right for me, it took a variety of pricey allergy tests, but they were well worth it. ALCAT informed me I should never eat onions, basil, coffee (it's chlorogenic acid can be really bad for the hypothalamus) & cashews...never in a million years would I have otherwise come up with that info! Skin pricks informed me any fungus, mold, etc., causes a severe reaction, and by repeated trials I now know everytime I eat something with yeast I get a major gut inflammation taking many days to resolve (peanuts are one of the worst for this). ALCAT & electrical frequency tests identified chemicals, metals, hormones, etc. And my own observations were necessary for dairy...there's no point in pricey testing for casein intolerance. When there's potential for so many allergies & sensitivities, the elimination method would be really difficult IMO. It's also really important to get the cleaning chemicals and other allergens out of the house - this all contributes to inflammation & weakened immunity. Getting deep sleep is really critical, as you know. I was doing great with valerian-type supplements at night & had very little muscular (esp neck/shoulder) pain for months as a result. Then I grew sensitive to the supplements, with GI inflammation! Aghhh! GABA & 5HTP help, but not as well. Coffee enemas are really helpful and definitely rescue a day that's going badly - again, this goes back to clearing the liver. The nicest things I did this winter was to start distilling my water and install a chlorine filter in the shower. I'm so sensitive to chlorine that I hated to shower & didn't know until I got the filter how much it had contributed to fatigue. I think the clean water really aids chelation; the amount of crud left in the water tank after each distillation cycle from our city water is truly disgusting, and I use about that much water a day! There is now a large disclaimer with our city water reports stating that those with compromised immune function should be using alternative sources, while at the same time those impurities disclosed are all within acceptable limits (?#!?) (apparently we must first develop cancer or a chronic condition in order to find out our immune function is 'compromised'). With all that said & done, I still struggle more than I care to. I seem to be sensitive to pain relievers & my stomach won't tolerate aspirin. I'm definitely fibromyalgic, but seem to control it better than others. At the bottom of it all, I know cells & brain control centers just don't produce enough energy, hormones & neurotransmitters to keep up with the body's needs. I also would do well if I could take more T3 than blood tests allow (been there, done that a couple times). Since I can't drink coffee or otherwise rely on caffeine, the compromise has been to take a very low dose stimulant with the thyroid. It gets my heart rate, temperature, mental activity, and energy up a little better. It also serves as an amazing pain killer as long as I'm not eating sugars, but I don't take it daily or I'd develop a tolerance to it. It would work better to take a slightly higher dose, but it also alters my personality. I think the increase in noradrenaline the stimulant produces keeps allergies & other immune responses down, in turn keeping inflammation in check. OTC things for allergies do not work well and I really struggle when I try that as an alternative. Perhaps a low dose stimulant could prove to be a worthwhile alternative to your painkillers & might ease pain & increase your energy just enough to get you physically fighting a little harder. We're all different & it takes a lot of trial & error to find things that help. The danger is in getting stuck with things that aren't working. We're also vulnerable to trying new things we think help, but the early benefits & later disappointment is usually due to a hopeful adrenaline rush that soon wears off. You will improve! Joanne Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.