Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 By this point in time I had hoped that we would have unlocked the mystery to PSC and we wouldn't have the need for this support group any longer -- other than to chat with good friends. So, while I am sorry that 12 people need to be here, I am so grateful for this wonderful group. When my " specialist " told me years ago that " children don't get this disease " (He REALLY said that!), I told him that his opinion would be faint comfort to the parents of children who had had transplants or were listed. I relied on this group for valuable and timely information that my doctor knew nothing about. So, thank heavens for this source of information and inspiration! Penny Quote Link to comment Share on other sites More sharing options...
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