Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 > Thanks for clarifying, . > > I have recieved an Urso shipment on the last week of May, > and did send back the 3 mo diaries, to them. But > interestingly when i talked with a pharmacist overthere > with a question regarding the new 250mg Urso bottles that > were sent i think, begining of May, to replace the > original 500mg, he indicated that Axcan has sent them the > 250mg's, temporarily and that they would soon be > replacing it by the 500mg, bottles, again. That was only > last month. And when i had my ERCP done during that same > period, i spoke with my study coordinator, and also asked > her, she did tell me that the study will probably > continue. So i am so glad that i did learn about the > suspension from you and others in the group, and now > waiting for a their confirmation letter. > > By the way, have you been thinking about enrolling in > another trial or not? i do remember that when i enrolled > with Mayo, first in a one year small study of Cellcept, and > very shortly after the one year in this one, doctor Lindor > told me that that by enrolling, i can continue with them > in any future studies, if i want. But now i am not really > sure about that. > > > > > > > > Subject: Re: **Note from Dr Lindor** on UDCA > study: Rick > To: > Date: Tuesday, June 24, 2008, 5:03 PM > > Actually everything so far has been verbal from my study > coordinator > or the doctor. I was first informed because it was time for > me to > pick up my Urso supply and when I showed up they told me > they weren't > giving me any more due to the suspension of the study. They > are in > the process of sending out letters but that has to go > through the > review board first and that takes some time. > > in Seattle > > > > > > From: Rick > > Subject: Re: **Note from Dr Lindor** on > UDCA study > > To: @ yahoogroups. com > > Date: Monday, June 23, 2008, 12:24 AM > > > > > > How did they notify the participants that they are > cancelling the > > study? I am involved in the test, but I have not yet > been notified. > > > > Rick > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 > Thanks for clarifying, . > > I have recieved an Urso shipment on the last week of May, > and did send back the 3 mo diaries, to them. But > interestingly when i talked with a pharmacist overthere > with a question regarding the new 250mg Urso bottles that > were sent i think, begining of May, to replace the > original 500mg, he indicated that Axcan has sent them the > 250mg's, temporarily and that they would soon be > replacing it by the 500mg, bottles, again. That was only > last month. And when i had my ERCP done during that same > period, i spoke with my study coordinator, and also asked > her, she did tell me that the study will probably > continue. So i am so glad that i did learn about the > suspension from you and others in the group, and now > waiting for a their confirmation letter. > > By the way, have you been thinking about enrolling in > another trial or not? i do remember that when i enrolled > with Mayo, first in a one year small study of Cellcept, and > very shortly after the one year in this one, doctor Lindor > told me that that by enrolling, i can continue with them > in any future studies, if i want. But now i am not really > sure about that. > > > > > > > > Subject: Re: **Note from Dr Lindor** on UDCA > study: Rick > To: > Date: Tuesday, June 24, 2008, 5:03 PM > > Actually everything so far has been verbal from my study > coordinator > or the doctor. I was first informed because it was time for > me to > pick up my Urso supply and when I showed up they told me > they weren't > giving me any more due to the suspension of the study. They > are in > the process of sending out letters but that has to go > through the > review board first and that takes some time. > > in Seattle > > > > > > From: Rick > > Subject: Re: **Note from Dr Lindor** on > UDCA study > > To: @ yahoogroups. com > > Date: Monday, June 23, 2008, 12:24 AM > > > > > > How did they notify the participants that they are > cancelling the > > study? I am involved in the test, but I have not yet > been notified. > > > > Rick > > > > Quote Link to comment Share on other sites More sharing options...
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