Re: First 6-mo Check-up on Monday

[Guest guest]

Jilian:I always struggle with that issue. I asked him what does he think the future of my liver will be? He tells me he does not know as most ppl suffering with PSC experience different outcomes. Every question there is no concrete answer. I know that he is one oh the more prominent md's in the field. The obly thong I ask my hep is what he thinks of various supplement, and medications from my current regimen.Good luck,ShaulPSC UC

Hi all,

I'm going to see my Hepatologist this upcoming Monday for my first 6 month check-up and I

was wondering if anyone has any suggestions for questions I should ask. I'm not having any

symptoms and have been feeling completely fine since my diagnosis in October. I don't

want to walk out feeling like I could have gotten a lot more out of the visit.

Thanks,

Jillian

[Guest guest]

Here are a few of the questions I discussed with my Hep post diagnosis

Diet, signs and symptoms that I should seek medical help for not just

PSC, but colds, flu,etc, vaccines, How often I should follow up with

my local GI doc, How often I should have bloodwork or other test

done, I also discussed my hep and local doc's relationship in my

care, We also discussed being listed with a low meld score, since I

do have cirrhosis, but my meld score is low. My doctor discussed

with my husband signs and symptoms he should watch for and when to

seek medical attention for me, vacinnes for him. Who to contact if

you have any questions.

Write down any questions or concerns so that you do not forget to

discuss them at your appt.

Good Luck,

PSC 5/2007 Listed

>

> I am also curious to hear any additional input on this subject,

> please. My first clinic appointment post-dx with my Hep is quickly

> approaching, and I've started my clipboard of questions, articles,

etc.

> to take with me. Want to make the most of the long drive through

> Missouri to see him!

>

> Genevieve

> UC 1983, J-Pouch 1999, PSC 12/07

>

>

> > I'm going to see my Hepatologist this upcoming Monday for my

first 6

> month check-up and I

> > was wondering if anyone has any suggestions for questions I

should

> ask. >

>