Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Hello Everyone! I can't thank you all enough for this group and the excellent sharing of information that goes on here. My 41 year old husband Joe was diagnosed with PSC in June and told that it was time to be put on the transplant list at UCLA by his gastro Dr. His MELD is currently at 17 and he suffers from jaundice, fatigue, weight loss and SEVERE, all over body itching(which causes insomnia) but no other major problems. He is on Ursodiol & Cholestyramine. He has had a colonoscopy, ERCP & liver biopsy which all came back good and we are going through the transplant eval process now. I have spent the last month learning everything I can about this disease and researching the best place to receive a liver transplant. We are looking at the MAYO clinic in ville, FL due to the much shorter wait list than UCLA.(6-8 weeks average vs 1 year average) Joe has been an athlete all his life - playing college soccer to doing marathons and triathalons and cycling. Our thought was that he would be better off getting the transplant sooner rather than later while his body is still somewhat strong and free of complications. I am not sure that we have all of the information for our options and I feel that I have only scratched the surface of this disease and the liver transplant process. I would truly appreciate any feedback. Thank you again to all that keep this support group going - I finally feel like we've found an anchor to hold on to after living the last 6 weeks in chaos. Sincerely, Baeskens Wife of Joe PSC June 08 Quote Link to comment Share on other sites More sharing options...
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