Utah dr/can't clap

[Guest guest]

Barbara,

What do you know about rheumatologists in SLC? I am fairly certain I have

Relapsing Polychondritis. It is quite rare. I was hoping that once I get it

firmly dx (maybe in Boston?), I might find a Rheumy in SLC that would work with

me. Don't have to do a lot of research just wondered if you know any. Sounds

like fun travelling with your daughter. I'm sorry to hear that your husband is

so sick. the trip to Utah last weekend was very hard on me. But the concert

was a gift from my husband for our 30 year anniversry. Do the rest of you get

terrible itching fits if you clap at performances? I haven't been able to show

my appreciation at performances for years. Minor annoyance. Take care, Cheryl ID

Re: Packing for ville

>

> > -

> > I'm in SLC (Holladay) and sees Dr. Terry Box (hep) and

(GI) at the

> > Intermountain medical center (at LDS before the new hosp was built. Where in

are you in

> > Idaho and are you going to the conference?

> >

> > Barbara (wife of ) PSC 1/07, Osteo, Chronic Panc, Diabetes

> >

> > > Where in Utah? What doctor do you see? I was dx by Boschert. I familiar

with some of the

> > drs that operate out of Uof U.

> > > Cheryl in Idaho PSC/AIH, etc.>

> >

> >

> >

> >

>

>

>

[Guest guest]

Hi Cheryl,

I went to a Garth concert in November, just before my PSC dx,

and we clapped and sang and had a BIG time--and I was in MISERY, with

the itching on my hands. It was horrible.

Genevieve

UC 1983, J-Pouch 1999, PSC 12/2007

Do the rest of you get terrible itching fits if you clap at

performances? I haven't been able to show my appreciation at

performances for years. Minor annoyance. Take care, Cheryl ID