Re: Daughter with PSC and possibly Cyclical Vomiting Syndrome

[Guest guest]

.

Sounds like how I feel with taking URSO, maybe she is having side

effects from the high dose URSO! I just tried it for the second time

and I increased my dose gradually and did well until I got up to three

capsules daily 300mg each and then started having the symptoms you

discribe with your daughter.

PSC 5/07 Listed

[Guest guest]

.

Sounds like how I feel with taking URSO, maybe she is having side

effects from the high dose URSO! I just tried it for the second time

and I increased my dose gradually and did well until I got up to three

capsules daily 300mg each and then started having the symptoms you

discribe with your daughter.

PSC 5/07 Listed

[Guest guest]

,

Cholangitis attacks can indeed occur with the frequency that 's

nausea/vomiting/stomach pain does. I experienced intervals between

attacks of one to three weeks. They got shorter until I got treatment.

Last Friday (in msg #102982) thought that her husband had 4

attacks in three month period before seeking treatment.

Could 's attacks be cholangitis? Maybe. Her doctors may be

focusing too much on the nausea/vomiting and down playing the fevers

in arriving at their diagnosis. Or just treating the major symptom

(pain) and not getting to the root cause. Cholangitis can definitely

be accompanied by pain and nausea, especially if pancreatitis is also

triggered. You didn't mention any testing that was done to arrive at a

diagnosis, but I suspect that her doctors could explain why they

believe it isn't cholangitis. I would also think that if it was

cholangitis, the attacks would get more frequent if untreated rather

than dropping to once or twice a year.

Tim R, ltx 4/4/98, 6/17/07 & 7/7/07

>

> Hi! My daughter (10yrs old) has AIH/PSC overlap ... She has

> been having (two years ago) episodes of vomiting uncontrollably,

> there is no rhyme or reason to when it happens. In between episodes,

> she feels exhausted and slightly nauseated. Some episodes come once a

> week, sometimes once every 3 to 4 weeks. ... Now her episodes come

every 4 to

> 6 months and she doesn't vomit but feels like she is,but she gets

> such bad upper stomach pain we take her to emergency and they end up

> giving her morphine. ... Most of the time (but amazingly not the

> last 4 episodes) she gets a fever after and diarrhea.

>

> ... Is it possible she is having a cholangitis attack instead of

> CVS? Can a cholangitis attack happen this often?

[Guest guest]

,

Cholangitis attacks can indeed occur with the frequency that 's

nausea/vomiting/stomach pain does. I experienced intervals between

attacks of one to three weeks. They got shorter until I got treatment.

Last Friday (in msg #102982) thought that her husband had 4

attacks in three month period before seeking treatment.

Could 's attacks be cholangitis? Maybe. Her doctors may be

focusing too much on the nausea/vomiting and down playing the fevers

in arriving at their diagnosis. Or just treating the major symptom

(pain) and not getting to the root cause. Cholangitis can definitely

be accompanied by pain and nausea, especially if pancreatitis is also

triggered. You didn't mention any testing that was done to arrive at a

diagnosis, but I suspect that her doctors could explain why they

believe it isn't cholangitis. I would also think that if it was

cholangitis, the attacks would get more frequent if untreated rather

than dropping to once or twice a year.

Tim R, ltx 4/4/98, 6/17/07 & 7/7/07

>

> Hi! My daughter (10yrs old) has AIH/PSC overlap ... She has

> been having (two years ago) episodes of vomiting uncontrollably,

> there is no rhyme or reason to when it happens. In between episodes,

> she feels exhausted and slightly nauseated. Some episodes come once a

> week, sometimes once every 3 to 4 weeks. ... Now her episodes come

every 4 to

> 6 months and she doesn't vomit but feels like she is,but she gets

> such bad upper stomach pain we take her to emergency and they end up

> giving her morphine. ... Most of the time (but amazingly not the

> last 4 episodes) she gets a fever after and diarrhea.

>

> ... Is it possible she is having a cholangitis attack instead of

> CVS? Can a cholangitis attack happen this often?

[Guest guest]

,

Cholangitis attacks can indeed occur with the frequency that 's

nausea/vomiting/stomach pain does. I experienced intervals between

attacks of one to three weeks. They got shorter until I got treatment.

Last Friday (in msg #102982) thought that her husband had 4

attacks in three month period before seeking treatment.

Could 's attacks be cholangitis? Maybe. Her doctors may be

focusing too much on the nausea/vomiting and down playing the fevers

in arriving at their diagnosis. Or just treating the major symptom

(pain) and not getting to the root cause. Cholangitis can definitely

be accompanied by pain and nausea, especially if pancreatitis is also

triggered. You didn't mention any testing that was done to arrive at a

diagnosis, but I suspect that her doctors could explain why they

believe it isn't cholangitis. I would also think that if it was

cholangitis, the attacks would get more frequent if untreated rather

than dropping to once or twice a year.

Tim R, ltx 4/4/98, 6/17/07 & 7/7/07

>

> Hi! My daughter (10yrs old) has AIH/PSC overlap ... She has

> been having (two years ago) episodes of vomiting uncontrollably,

> there is no rhyme or reason to when it happens. In between episodes,

> she feels exhausted and slightly nauseated. Some episodes come once a

> week, sometimes once every 3 to 4 weeks. ... Now her episodes come

every 4 to

> 6 months and she doesn't vomit but feels like she is,but she gets

> such bad upper stomach pain we take her to emergency and they end up

> giving her morphine. ... Most of the time (but amazingly not the

> last 4 episodes) she gets a fever after and diarrhea.

>

> ... Is it possible she is having a cholangitis attack instead of

> CVS? Can a cholangitis attack happen this often?