Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Ami, Thank you for sharing this with us. Even though we (my wife and I) have never met you, we still feel as if we know you very well. We having been thinking about you and and it is nice to see the two of you doing so well. Regards, Chaim Boermeester, Israel From: [mailto: ] On Behalf Of Ami Fox Sent: Thursday, May 29, 2008 15:26 To: Mallory Adriaens; Amundson; Anciaux; Lori Arentz; Traci ; Andy ; Batinich; Jan Baumler; M Birkel; Tia Bourgoin; rachel carlson; Chloe; Shanai Cole; Autumn Cole; Eggen; Emer; ; Ernst; Sharon Ernst; Juli Evers; Kathleen Evertsen; Frei; Liz Frei; Teri Fry; Alycia Goggin-Weighter; Anita Haderly; Jill Hansen; Ken Hart; ; IMC; Jodee; Geneva ; Tami ; Keim; Krupski; Lawson; Lindbo; Mahan; Matson; McBride; Jodi McCrady; Mears; Mikesell; Mohns; ; Mike Orum; Pagans with Fibromyalgia; Kriston ; Abigail ; Patti; Pederson; Preemie_reunion ; PSC Moms; PSC Support; Seth Purcella; Jeff Quiring; Rauchwarter; Beth Roder; Carynn Roehrick; Tesa Rude; Cory Schultz; Rod Schultz; Shepard; Shoop; Stanoch; Helen Steidl; Strauss; Lynn Sturm; tamahr@...; Jo Vanness; Woodhull; Joni Kay Zeiler Subject: CMN Celebrates Fox This is the video that was on the news this morning about and the CMN. 's doc from home and I are both in it, too. (We rock!) LoL. Thought ya'll might like to see our super active boy in action. And for all you pre-tx PSC patients (and especially the parents with PSC kids), don't give up hope. Remember how miserable my was just a year ago? Itching all the time, the constant vomitting and diarrhea, ERCP's constantly. I wondered, back then, if I was making the right decision by putting him through all that to wait for a liver that might not take. But look at him now. This is what you can look forward to!!! http://www.wxow.com/Streamer/stream.php?url=/Video/playlist.php?ID=19787 Ami Ami - Migraines, FMS mom to - 10 yrs - Double Lung Tx 2/26/2006, PSC - Tx 7/16/2007, Diabetes, Hypothyroid, GERD, ADHD, Osteopenia http://caringbridge.org/visit/seanfox mom to Emma - 14 yrs - Migraines stepmom to - 15 yrs - ADHD, ODD ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Ami: Looking good both of you. You are really a saint. Love to you all and especially . dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Ami: Looking good both of you. You are really a saint. Love to you all and especially . dee Quote Link to comment Share on other sites More sharing options...
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