Re: ERCP did not go well today -- I could use some advice

[Guest guest]

>

> Anyway, if they can't dilate my CBD, what the hell can they do? Recection is

not a solution,

so

> what is?

================

Colleen -- The first time they tried to get into my central duct, they couldn't

do it, either.

They then sent me to MUSC so the drs. who work with the transplant team could do

it. They

got the job done with no problem and also kept me overnight for observation.

Hang in there. You just have to find someone who is more skilled than the dr.

who tried

today.

Regards,

Carolyn B. in SC

[Guest guest]

They could not get a successful ERCP on me the first time either but

a doctor at UWisconsin Madison Hospital did get into the spot last

Thursday.....so don't give up hope....someone will get in....CJ

>

> I had my ERCP today to dilate my strictures and take brushings, but

the doctor who did the

> procedure was unable to get the balloon device into the stricture,

so the procedure was

> pretty much a bust.

>

> On top of that, I had a horrible recovery. I ended up throwing up 4

times between the hospital

> and home, and my husband told me I looked like I'd been dug up.

That's true love for you!

>

> Anyway, if they can't dilate my CBD, what the hell can they do?

Recection is not a solution, so

> what is?

>

> Thanks

>

> Colleen

> u/c 8/1984

> psc 8/2000

>

[Guest guest]

Colleen, I concur with the group. I had 2 unsuccessful ERCPs in 1999

and was convinced that it was impossible, or at least life-threatening,

for any doctor to complete the process. I was very frustrated and felt

hopeless.

I switched doctors 6 years later, and found an endoscopic specialist

who told me he's never failed to complete an ERCP. I googled him and

learned that he's an international expert on performing ERCPs. The

procedure went smoothly and I felt 10 times better the very next day.

Don't give up. Let's hope your physician will have the courage to

admit that maybe somebody more experienced should be brought in to try

a second time. It's hard for some doctors to admit that they can't do

it all. But then none of us can. Ask about getting an endoscopic

specialist - even if you need to go to a bigger city to have the work

performed, it's worth it!

Debbie in Seattle

UC '72, JPouch '91, PSC '99, Stage 2 and stable

I had my ERCP today to dilate my strictures and take brushings, but the

doctor who did the procedure was unable to get the balloon device into

the stricture, so the procedure was pretty much a bust.

Colleen, u/c 8/1984, psc 8/2000

[Guest guest]

Colleen, I concur with the group. I had 2 unsuccessful ERCPs in 1999

and was convinced that it was impossible, or at least life-threatening,

for any doctor to complete the process. I was very frustrated and felt

hopeless.

I switched doctors 6 years later, and found an endoscopic specialist

who told me he's never failed to complete an ERCP. I googled him and

learned that he's an international expert on performing ERCPs. The

procedure went smoothly and I felt 10 times better the very next day.

Don't give up. Let's hope your physician will have the courage to

admit that maybe somebody more experienced should be brought in to try

a second time. It's hard for some doctors to admit that they can't do

it all. But then none of us can. Ask about getting an endoscopic

specialist - even if you need to go to a bigger city to have the work

performed, it's worth it!

Debbie in Seattle

UC '72, JPouch '91, PSC '99, Stage 2 and stable

I had my ERCP today to dilate my strictures and take brushings, but the

doctor who did the procedure was unable to get the balloon device into

the stricture, so the procedure was pretty much a bust.

Colleen, u/c 8/1984, psc 8/2000