Re: Did not get very good news on my biopsy this past week

[Guest guest]

cj,

You have our prayers.

Ian

I had a brushing done on Sept. 3rd and on the 10th I met with my Doctor. The Dr. that did the brushings gave me a very good report....not much change in there and he did not think he would see me for 6 months this trip.......WRONG.....Brushings came back showing

CCA. Now I am on the road for a transplant and really stunned....Don't know what to think, what to feel.....just numb and scared to death....My Doctor told me they can cure this......need some prayers here I guess....I have to go have a bunch of more test like heart,

chest CT, ultrasound of pancreas, gallbladder etc. and others I can't remember.....I have to start chemo and radiation ASAP....Anyone out there been this route? How have you made out? Was chemo by pill or

intravenous? so many questions....Will meet with the oncologist and surgeon this week I think.....hope so anyway...want this over as soon as possible.....Guess I just am looking for alittle support.cj

psc Feb 08, CCA Sept. 08 -- Ian Cribb P.Eng.

[Guest guest]

CJ,

I am sorry to hear about your diagnose. I do

agree with your doctor though. CCA can be beaten. There are a few people on

this forum that successfully had a transplant after a CCA diagnose. The most

important thing is that it was discovered now, and not later. I know it is

hard, but try to keep a positive attitude. If YOU don't believe you can beat

this, no-one will/can do the fighting for you. Try to keep focused and find out

what is being done and what for.

Please keep us informed and don't hesitate

to ask for help, or to vent.

I will be thinking of you.

Chaim Boermeester, Israel

From:

[mailto: ] On

Behalf Of cjlackie

Sent: Monday, September 15, 2008

07:11

To:

Subject: Did not get

very good news on my biopsy this past week

I had a brushing done on Sept. 3rd and on the 10th I

met with my

Doctor. The Dr. that did the brushings gave me a very good

report....not much change in there and he did not think he would see me

for 6 months this trip.......WRONG.....Brushings came back showing

CCA. Now I am on the road for a transplant and really stunned....Don't

know what to think, what to feel.....just numb and scared to

death....My Doctor told me they can cure this......need some prayers

here I guess....I have to go have a bunch of more test like heart,

chest CT, ultrasound of pancreas, gallbladder etc. and others I can't

remember.....I have to start chemo and radiation ASAP....Anyone out

there been this route? How have you made out? Was chemo by pill or

intravenous? so many questions....Will meet with the oncologist and

surgeon this week I think.....hope so anyway...want this over as soon

as possible.....Guess I just am looking for alittle support.

cj

psc Feb 08, CCA Sept. 08

[Guest guest]

CJ, I am very sorry you received this news, you are facing what for

many of us is the biggest fear. Please know that you are not alone in

your fears and hopes, we are here to support you and root for you and

pray and cry and hope for you. Your journey is all of ours, we are

all together in this fight. Please remember that CCA can be beat. Try

to think of everything that you love about life and to draw strength

from these.

Please keep us updated.

Ruth

UC - 2000, Colectomy - 2007, PSC - 2008

>

> I had a brushing done on Sept. 3rd and on the 10th I met with my

> Doctor. The Dr. that did the brushings gave me a very good

> report....not much change in there and he did not think he would

see me

> for 6 months this trip.......WRONG.....Brushings came back showing

> CCA. Now I am on the road for a transplant and really

stunned....Don't

> know what to think, what to feel.....just numb and scared to

> death....My Doctor told me they can cure this......need some

prayers

> here I guess....I have to go have a bunch of more test like heart,

> chest CT, ultrasound of pancreas, gallbladder etc. and others I

can't

> remember.....I have to start chemo and radiation ASAP....Anyone out

> there been this route? How have you made out? Was chemo by pill

or

> intravenous? so many questions....Will meet with the oncologist and

> surgeon this week I think.....hope so anyway...want this over as

soon

> as possible.....Guess I just am looking for alittle support.

>

>

> cj

>

> psc Feb 08, CCA Sept. 08

>

[Guest guest]

CJ, I am very sorry you received this news, you are facing what for

many of us is the biggest fear. Please know that you are not alone in

your fears and hopes, we are here to support you and root for you and

pray and cry and hope for you. Your journey is all of ours, we are

all together in this fight. Please remember that CCA can be beat. Try

to think of everything that you love about life and to draw strength

from these.

Please keep us updated.

Ruth

UC - 2000, Colectomy - 2007, PSC - 2008

>

> I had a brushing done on Sept. 3rd and on the 10th I met with my

> Doctor. The Dr. that did the brushings gave me a very good

> report....not much change in there and he did not think he would

see me

> for 6 months this trip.......WRONG.....Brushings came back showing

> CCA. Now I am on the road for a transplant and really

stunned....Don't

> know what to think, what to feel.....just numb and scared to

> death....My Doctor told me they can cure this......need some

prayers

> here I guess....I have to go have a bunch of more test like heart,

> chest CT, ultrasound of pancreas, gallbladder etc. and others I

can't

> remember.....I have to start chemo and radiation ASAP....Anyone out

> there been this route? How have you made out? Was chemo by pill

or

> intravenous? so many questions....Will meet with the oncologist and

> surgeon this week I think.....hope so anyway...want this over as

soon

> as possible.....Guess I just am looking for alittle support.

>

>

> cj

>

> psc Feb 08, CCA Sept. 08

>

[Guest guest]

Dear CJ,

I am so sorry you ended up with the cca diagnosis. I can't imagine how I would

feel if it was me. Your note sounded strong though and based on what you

mentioned it sounds like your doctor's have a lot of confidence in getting you

cancer and PSC free.

Looking to the future, I see you as one of our greatest educators on living with

and getting rid of CCA. We are all pulling for you and we will be with you in

spirit as you take on this challenge. Please know that you are in my daily

thoughts and prayers.

Tarheel Tim

[Guest guest]

Dear CJ,

I am so sorry you ended up with the cca diagnosis. I can't imagine how I would

feel if it was me. Your note sounded strong though and based on what you

mentioned it sounds like your doctor's have a lot of confidence in getting you

cancer and PSC free.

Looking to the future, I see you as one of our greatest educators on living with

and getting rid of CCA. We are all pulling for you and we will be with you in

spirit as you take on this challenge. Please know that you are in my daily

thoughts and prayers.

Tarheel Tim