Re: Help Please, If Anyone is Awake!

[Guest guest]

Hi, I've just read your post and hope that the fever is gone by now,

but your description sounds like a trip to the ER is necessary. I was

told to call my primary or GI when my fever reached 100.5F (because I

normally run a lower than average temp.), but most would agree that

101F is the break point. Calling them first allowed them to give the

ER a heads-up and they literally met me at the door with a wristband.

This is not something to be taken lightly.

I agree with Arne that the ER usually gives good results. Lee was

right in saying you need to call.

Please let us know how you are doing!

Penny

[Guest guest]

Hi, I've just read your post and hope that the fever is gone by now,

but your description sounds like a trip to the ER is necessary. I was

told to call my primary or GI when my fever reached 100.5F (because I

normally run a lower than average temp.), but most would agree that

101F is the break point. Calling them first allowed them to give the

ER a heads-up and they literally met me at the door with a wristband.

This is not something to be taken lightly.

I agree with Arne that the ER usually gives good results. Lee was

right in saying you need to call.

Please let us know how you are doing!

Penny

[Guest guest]

You need to call you liver specialist. He will advise you on the best course to take.

Margarett

Mother of (Diagnosed PSC 2-10-07)

Subject: Help Please, If Anyone is Awake!To: Date: Saturday, June 7, 2008, 3:04 AM

I got into bed tonight with very intense chills, and shivered under two blankets and a comforter for about 10 minutes until I finally calmed down. I keep waking up, not in pain, but just... Somehow uncomfortable. When I wake up I feel like I'm on FIRE, and kick off all the covers, only to start the shivering again within five minutes.I just took my temp, and it's 101.65 under the tongue. I'm worried about cholangitis, but I don't know just 'how high' my temp needs to be for that. Do I contact the liver fellow on call at my hospital (3 hours away) and possibly make a trip to the local ER, or wait it out and see how I feel in the a.m.?Off to Google for now; TIA for anyone who replies ASAP.GenevieveUC 1983, J-Pouch 1999, PSC 12/07

[Guest guest]

You need to call you liver specialist. He will advise you on the best course to take.

Margarett

Mother of (Diagnosed PSC 2-10-07)

Subject: Help Please, If Anyone is Awake!To: Date: Saturday, June 7, 2008, 3:04 AM

I got into bed tonight with very intense chills, and shivered under two blankets and a comforter for about 10 minutes until I finally calmed down. I keep waking up, not in pain, but just... Somehow uncomfortable. When I wake up I feel like I'm on FIRE, and kick off all the covers, only to start the shivering again within five minutes.I just took my temp, and it's 101.65 under the tongue. I'm worried about cholangitis, but I don't know just 'how high' my temp needs to be for that. Do I contact the liver fellow on call at my hospital (3 hours away) and possibly make a trip to the local ER, or wait it out and see how I feel in the a.m.?Off to Google for now; TIA for anyone who replies ASAP.GenevieveUC 1983, J-Pouch 1999, PSC 12/07

[Guest guest]

Hi everyone, posting from the hospital.

I called the biliary fellow on call at my big hospital (-Jewish

in St. Louis, MO) who said to go directly to my local ER. None of

the doctors there have any experience with PSC, so--thanks to

postings I've read here!--I took a printout of basic PSC info along

with me. While I was there I started getting some intense abdominal

pain, dizziness, nausea and vomiting, and my fever spiked at 102.9.

After 12 sloooooooow hours of them not doing much, my visit

culminated in a consult with my GI at (couldn't reach my hep)

who said I needed to be transferred up here ASAP, and brought by

ambulance.

So I've been at for about 24 hours now, and am getting

attention from folks who know my disease--amazing!! My fever is

nearly gone (I've been on some heavy duty antibiotics), I'm much more

comfortable, my pain is controlled, and my nausea is gone. Had an

abdominal ultrasound this morning, but I haven't yet heard any

results on that. ERCP tomorrow, because they suspect an infection

due to bacteria around my stent. They'll explore my ducts a bit, and

likely replace the stent tomorrow; I'll probably be in until Tuesday

or so.

Thanks to all who chimed in! I now know, as per one of my docs up

here, that rigors are ALWAYS a reason to be seem immediately, as

that's indicative of bacteria in the blood.

Genevieve

UC 1983, J-Pouch 1999, PSC 12/07

[Guest guest]

Hi everyone, posting from the hospital.

I called the biliary fellow on call at my big hospital (-Jewish

in St. Louis, MO) who said to go directly to my local ER. None of

the doctors there have any experience with PSC, so--thanks to

postings I've read here!--I took a printout of basic PSC info along

with me. While I was there I started getting some intense abdominal

pain, dizziness, nausea and vomiting, and my fever spiked at 102.9.

After 12 sloooooooow hours of them not doing much, my visit

culminated in a consult with my GI at (couldn't reach my hep)

who said I needed to be transferred up here ASAP, and brought by

ambulance.

So I've been at for about 24 hours now, and am getting

attention from folks who know my disease--amazing!! My fever is

nearly gone (I've been on some heavy duty antibiotics), I'm much more

comfortable, my pain is controlled, and my nausea is gone. Had an

abdominal ultrasound this morning, but I haven't yet heard any

results on that. ERCP tomorrow, because they suspect an infection

due to bacteria around my stent. They'll explore my ducts a bit, and

likely replace the stent tomorrow; I'll probably be in until Tuesday

or so.

Thanks to all who chimed in! I now know, as per one of my docs up

here, that rigors are ALWAYS a reason to be seem immediately, as

that's indicative of bacteria in the blood.

Genevieve

UC 1983, J-Pouch 1999, PSC 12/07

[Guest guest]

-

I'm glad to see that you are getting help. Remember that you should

be fever free for at least 24 hours, be able to eat and " eliminate "

and have all necessary home care in place before discharge --

otherwise you play the " unsafe discharge " card to ensure that you are

REALLY ready to go home! Thanks for the update!

Penny

-- In , " Genevieve " wrote:

>

> Hi everyone, posting from the hospital.

> Genevieve

> UC 1983, J-Pouch 1999, PSC 12/07

>

[Guest guest]

-

I'm glad to see that you are getting help. Remember that you should

be fever free for at least 24 hours, be able to eat and " eliminate "

and have all necessary home care in place before discharge --

otherwise you play the " unsafe discharge " card to ensure that you are

REALLY ready to go home! Thanks for the update!

Penny

-- In , " Genevieve " wrote:

>

> Hi everyone, posting from the hospital.

> Genevieve

> UC 1983, J-Pouch 1999, PSC 12/07

>