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Re: Update on my PN specialist/nerve block trip(Kristy_Cleveland Clinic)

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HI Kristy, just noticed that you are in Florida. I am going to the Cleveland Clinic tomorrow in Weston. I am starting at the gyno clinic but my PT wants me to go to the pain clinic and get nerve blocks. PT has not helped my pain even thought the muscles have greatly improved. I wonder if anyone else has tried the Cleveland Clinic? Thanks, Kristy Sokoloski wrote: , I hope the blocks work for you hon. I got to talk to Dr. Conway on Mon about the issue of the pudenal nerve from a different

standpoint: my endometriosis. One thing he did tell me that I found interesting is that the sciatic nerve and the way it runs is very close to the pudenal nerve. I thought that was interesting. Also, he told me that if someone has damage to the pudenal nerve (because I told him about when I almost had an EMG done of that nerve back in the Spring with the EMG tech I talked to) that they may actually not feel any kind of pain when the tech is trying to feel around the clitoral base. I have had trigger point injections to the pudenal nerve done twice to try and block it but it didn't work which tells me as confirmation that my vulvodynia issues are higher up. He agreed that I am as he put it a "mixed bag" because I don't fall in to just one category. Asked about my bowel and bladder and I did mention the IBS and also the symptoms I have had with my bladder over the years (for 2 months 7 years ago and again when

I had a pelvic ultrasound done back in March). But as I told him I can't get my bladder checked at this time til I know what's going on with my mom and may not be able to get in to a urologist til probably Nov or Dec but we shall see. Please keep us posted on how these blocks do for you hon. And I agree that Dr. Conway was very nice. He told me that if I did want to come up (which I can't and unfortunately he doesn't know anyone in my area-I'm in FL-that he could refer me to) that to schedule it would be around 2 months. But after my discussion with him, whenever I talk to my gynecologist again I'm going to ask her some additional questions, one of them to maybe go back on the medicine I did last year after my surgery to check the status of my endo but for a longer period of time than just the 6 months I've been doing it for. Kristy :)

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