Re: TN.....Re: LDN....

[Guest guest]

nne,

I found an article concerning T.N. here:

http://www.medicinenet.com/trigeminal_neuralgia/article.htm

in the article it states that there are various causes of T.N.,

one of them being a "nerve disorder". If I'm not mistaken Fibro

is something having to do with nerves being "overactive" and

more or less "pretending to have been injured" (best way I can

think of to describe the pain with Fibro, because the pain

happens without any "real" injury to the affective body location

or part (my cousin tells me that you couldn't even touch her

legs without it sending paroxysms of pain through her legs,

before her Dx of Fibro, and she'd never had any injuries to

anything.)

That article leads me to believe that Yes, indeed T.N. could

also be connected to Fibro as well as MS (and many other things

as well).  I'm not sure if this was the article where I read

that a sinus infection, or tooth abscess could bring a round of

T.N. on as well.

I hope that the past episodes of pain, were the last episodes of

this pain that you'll experience.  I'm pretty sure that I think

I'd rather be back giving birth than have mouth pain of any

sort! I'm a big baby when it comes to anything in my mouth

hurting.

HUGS & Prayers for you as well.

|)onna

Can anyone get Trigeminal Neuralgia? Does anyone know if this is connected to fibromyalgia as well as MS? I have exactly what you are describing. It can hurt for a short time and then go away for a few hours. no set time for it to happen. it has been ok now for 2 days. But the last time it happened it bothered me for over a week. Prayers you feel better soon.

Hugs

nne

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Re: LDN....Re: … Please refresh my memory

Sharon,

I'm ta betting... since I haven't checked into LDN for quite

awhile

(probably should have kept my fingers still on that question)..

but I am

ta thinking that more and more doctors are recognizing, as you

said, LDN

and it's benefits. Pretty much like my primary insurance company

doing

an authorization for my Provigil from no until 2099. When I

mentioned

my surprise on that to my health care manager from Highmark, she

said,

it was done that way because they (Highmark) recognize (now) the

actual

benefit of that drug for people with MS. Whereas, before now, it

was an

uphill struggle to have something prescribed "off-label" and have

it

approved easily.

And on the second point, Butalbital (Esgic) wouldn't be any good

for

pain either, and would cancel out the LDN... Then I guess that I

wouldn't be able to switch to LDN either, because of the

prescription

for the ocular migraines (that I still don't understand.. the

ocular

migraines, not the prescription.. LOL)...

Oh good grief.. wonder if I'm going to be told that I'm having

migraines

in my teeth now?? Looks as if I'm might be ruining someone's

holiday

weekend, and confusing a bunch of doctors in the ER as well.. IF

the

pain starts up again tonight in my jaw..

I hate having to head for the ER.. for a toothache... but I'm

pretty

sure that a toothache stays a toothache and doesn't go away

during the

day, only to come back at night, but not every night.. or might

be here

during the day, but not at night.. and right now, I feel like

I've got

an earache..

That's Trigeminal Neuralgia, isn't it?

HUGS

|)onna

My well respected neurologist precribed LDN for me and had no

problem

with it. I know Dan gets LDN from the neurologist at UCSF. I

think if

the University of California at San Francisco is prescribing LDN

then

other neuros should take another look at it too. My opinion:)

You can't be on narcotics when on LDN because they act against

each

other. Naltrexone was originally used in treatment of

alcoholism and

drug abuse to mute their effects. At least that's what I think

I

remember;)

hugs

Sharon

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