Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 > Toe walking is an indicator of extensive constipation. A good doctor can > usually tell from a physical exam ... but an x-ray is more conclusive. > I had absolutely no idea that toe walking was an indicator of extensive constipation. I know in some books I read, that a lot of autistic children toe walk but it never mentioned because of constipation. Thanks all for the tip. I'll be sure and tell my daughter to get them checked at their next checkup in January. That'll be more one item on our long list! lol. Thanks again!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 > Toe walking is an indicator of extensive constipation. A good doctor can > usually tell from a physical exam ... but an x-ray is more conclusive. > I had absolutely no idea that toe walking was an indicator of extensive constipation. I know in some books I read, that a lot of autistic children toe walk but it never mentioned because of constipation. Thanks all for the tip. I'll be sure and tell my daughter to get them checked at their next checkup in January. That'll be more one item on our long list! lol. Thanks again!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2000 Report Share Posted December 27, 2000 > My question is, does anyone think this diet will benefit them? Does > anyone have any tips, etc. regarding helping our grandson's speech? My advice would be to try the diet and see. That is the approach I took, and I did it gradually. First I removed the major and obvious offenders like icecream, milk, and cheese. After that I removed the subtle hidden sources of casein. My approach to gluten was the same. You're grandson definately needs to be seen by a speech therapist. It has helped our son tremendously. > Also, is going on this diet for 3 months the only way to test if a > child is having trouble digesting gluten and casain (not spelled > right)? Yes, I personally recommend a 6 month trial. > It's hard to believe that he would be autistic, he's so alert to > things, etc. But like I said, there are some areas that are very > behind. This is what makes autism so difficult. It comes in many forms and varieties. My son has had language since 12 months, yet he is still autistic. He does not fit the so called " criteria " . I haven't seen one child that has. The best advice I can give you on this is to assume the worse. Assume he is autistic, and if down the road it turns out otherwise, nothing will be lost. However, to simply ride out the storm would be a huge mistake. I have a friend who has been doing this for 5 years with her son. She and her family were not convinced he was autistic. However, seeing my son and how high functioning he is helped her to realize how severe her son really was. Now she's busy trying to play catch up with her son. Good luck! a - Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2000 Report Share Posted December 27, 2000 > My question is, does anyone think this diet will benefit them? Does > anyone have any tips, etc. regarding helping our grandson's speech? My advice would be to try the diet and see. That is the approach I took, and I did it gradually. First I removed the major and obvious offenders like icecream, milk, and cheese. After that I removed the subtle hidden sources of casein. My approach to gluten was the same. You're grandson definately needs to be seen by a speech therapist. It has helped our son tremendously. > Also, is going on this diet for 3 months the only way to test if a > child is having trouble digesting gluten and casain (not spelled > right)? Yes, I personally recommend a 6 month trial. > It's hard to believe that he would be autistic, he's so alert to > things, etc. But like I said, there are some areas that are very > behind. This is what makes autism so difficult. It comes in many forms and varieties. My son has had language since 12 months, yet he is still autistic. He does not fit the so called " criteria " . I haven't seen one child that has. The best advice I can give you on this is to assume the worse. Assume he is autistic, and if down the road it turns out otherwise, nothing will be lost. However, to simply ride out the storm would be a huge mistake. I have a friend who has been doing this for 5 years with her son. She and her family were not convinced he was autistic. However, seeing my son and how high functioning he is helped her to realize how severe her son really was. Now she's busy trying to play catch up with her son. Good luck! a - Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Marsha, welcome to the list. It is a very good list and a caring one. Just jump right in and as what you want and I am sure someone will have the answer. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Marsha, welcome to the list. It is a very good list and a caring one. Just jump right in and as what you want and I am sure someone will have the answer. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Marsha, welcome to the list. It is a very good list and a caring one. Just jump right in and as what you want and I am sure someone will have the answer. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 I see a Neurologist for my fm and he had to fill out a form and have it notorized for the department of public safety. I have a very hard time walking from the pain in my back. He also sent a letter to the federal court to get me out of jury duty because I can't sit still that long w/out being in intense pain. I am very lucky and have a great doctor. It took a while to find him so don't give up...there are good doctors out there! Anne Re: New member Hi, If your doctor thinks you need a handicap plaque, he will help write one up so you can get it. Several people on the group have them. I think accessing your disabilities services on campus sounds like a very smart move. I hope they can help you. Sorry, I can't give advice on which doctor is better for you to see. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 I see a Neurologist for my fm and he had to fill out a form and have it notorized for the department of public safety. I have a very hard time walking from the pain in my back. He also sent a letter to the federal court to get me out of jury duty because I can't sit still that long w/out being in intense pain. I am very lucky and have a great doctor. It took a while to find him so don't give up...there are good doctors out there! Anne Re: New member Hi, If your doctor thinks you need a handicap plaque, he will help write one up so you can get it. Several people on the group have them. I think accessing your disabilities services on campus sounds like a very smart move. I hope they can help you. Sorry, I can't give advice on which doctor is better for you to see. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 I see a Neurologist for my fm and he had to fill out a form and have it notorized for the department of public safety. I have a very hard time walking from the pain in my back. He also sent a letter to the federal court to get me out of jury duty because I can't sit still that long w/out being in intense pain. I am very lucky and have a great doctor. It took a while to find him so don't give up...there are good doctors out there! Anne Re: New member Hi, If your doctor thinks you need a handicap plaque, he will help write one up so you can get it. Several people on the group have them. I think accessing your disabilities services on campus sounds like a very smart move. I hope they can help you. Sorry, I can't give advice on which doctor is better for you to see. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 Welcome Robin~~ You will find this group very helpful especially for your daughter. There are many that have children with EDS so I am sure you will learn very much. Again... Welcome, welcome Debbi AKA Bobbi-Gray's Mommy! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 Oh yea... Hypermobile type Southern California.. Orange County Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Hi, all! I just signed up to join the group and am looking forward to meeting some of you at the PSC conference (especially since I've never met anyone else who has this disease)! I've been diagnosed with PSC and gastroparesis and, nearly a year and many hospitilizations later, my doctors and I are still trying to figure out which symptoms might be part of which disease. Looking forward to getting to know you all. Sandi in VA Quote Link to comment Share on other sites More sharing options...
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