Seeking PSC Research Participants

[Guest guest]

Hello Everyone,

UC has started enrolling PSC patients in the STOPSC project and in

some other ongoing research. Because Dr. Bowlus at UCD is going to be

doing genetic research as part of STOPSC he will be enrolling patients

in the UCD DNA bank for the purpose regardless of when they were diagnosed.

Dr. Bowlus is an Associate Professor of Medicine at UC

. He is a hepatologist and a very dedicated researcher and

clinician. For years he has been doing PSC research despite very small

amounts of funding. He's my PSC doctor and I respect him and like him

as a person.

Because there are no STOPSC centers for adult PSCers in southern

California and in some states neighboring California, I hope those of

you who can travel to California will enroll in STOPSC at UC . The

more people who participate in PSC research the sooner we can find

treatments and possibly a cure.

is a college town about 15 miles west of Sacramento. Participants

will be seen at the UC Medical Center in Sacramento, unless other

arrangements are made with the patient coordinator, Marilyn

The following is information on enrollment is PSC research at U.C. .

SEEKING PARTICIPANTS IN PSC RESEARCH

1. Dr. Bowlus is now recruiting for participants for the UC STOPSC

project. UCD participants must be 18 or older and must have been

diagnosed within 5 years of enrollment. Participants will be required

to make an initial visit to UCD and to travel to UCD once per year.

Please contact Marilyn , patient coordinator (contact info below).

2. Patient Registry and DNA Bank. Must be able to document diagnosis

of PSC, be 18 or older and must travel once to UCD where a small amount

of blood will be collected. If you have donated blood for this project

in the past, additional blood donations may be needed for this project

because some existing samples have been depleted by use in research.

Enrollment will remain open indefinitely.

Please contact Marilyn , patient coordinator (contact info below).

3. Search for Blood Markers to help Diagnose PSC. Must be 18 or older

and be able to document PSC and Ulcerative Colitis diagnosis.

Participants must travel once to UCD where a small amount of blood will

be collected.

Please contact Marilyn , patient coordinator

(contact info below).

Contact Information:

Marilyn , CCRP

Clinical Research Coordinator

Internal Medicine: GI/Hepatology Research

University of California, Medical Center

TICON I Building

2000 Stockton Blvd. Suite 100

Sacramento, CA 95817

Phone:

FAX:

email: marilyn.robinson@...