Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 Hello, Maya. Thanks for the suggestion. I know I talked about it with someone, and possibly also my sister. I don't recall now the result. I will think about it again. Colleen > > > Hello. My name is Colleen and I don't know, after reading a lot of > > the posted messages, if it is appropriate that I be a member of > this > > group, but I got accepted, so here goes. I am 51 years old, > > peri-menopausal, with a high risk of breast cancer. My eldest > sister > > got it at 33, and fought it, and eventually died at 43 (1987). My > > mother got it in her 70's, and had a mastectomy, but had had > > Alzheimer's, which is what she died from at age 75 in 1997. I > thought > > my elder sister and I would go through our lives unscathed, but no > go. > > She, at 58, was diagnosed last year, and just finished up all the > > chemo and radiation. So, here I am, the only female in my > immediate > > family to not yet have breast cancer. I have high deductible > health > > insurance, with a company that requests and usually gets, nearly > > annual rate hikes. I joined this group just after hearing about > their > > latest request on the news. I guess I was upset. I have fears, but > > they are nothing compared to any of you guys. I want to stay > > healthy. In case you are wondering, I get annual mammograms (my > > living sister had skipped two), and do self exams (although how I > will > > know when I find something is beyond me). I keep myself healthy > with > > good food, and exercise. So, I guess I am here to " listen " and > learn. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 Hello, Maya. Thanks for the suggestion. I know I talked about it with someone, and possibly also my sister. I don't recall now the result. I will think about it again. Colleen > > > Hello. My name is Colleen and I don't know, after reading a lot of > > the posted messages, if it is appropriate that I be a member of > this > > group, but I got accepted, so here goes. I am 51 years old, > > peri-menopausal, with a high risk of breast cancer. My eldest > sister > > got it at 33, and fought it, and eventually died at 43 (1987). My > > mother got it in her 70's, and had a mastectomy, but had had > > Alzheimer's, which is what she died from at age 75 in 1997. I > thought > > my elder sister and I would go through our lives unscathed, but no > go. > > She, at 58, was diagnosed last year, and just finished up all the > > chemo and radiation. So, here I am, the only female in my > immediate > > family to not yet have breast cancer. I have high deductible > health > > insurance, with a company that requests and usually gets, nearly > > annual rate hikes. I joined this group just after hearing about > their > > latest request on the news. I guess I was upset. I have fears, but > > they are nothing compared to any of you guys. I want to stay > > healthy. In case you are wondering, I get annual mammograms (my > > living sister had skipped two), and do self exams (although how I > will > > know when I find something is beyond me). I keep myself healthy > with > > good food, and exercise. So, I guess I am here to " listen " and > learn. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 Hello, Maya. Thanks for the suggestion. I know I talked about it with someone, and possibly also my sister. I don't recall now the result. I will think about it again. Colleen > > > Hello. My name is Colleen and I don't know, after reading a lot of > > the posted messages, if it is appropriate that I be a member of > this > > group, but I got accepted, so here goes. I am 51 years old, > > peri-menopausal, with a high risk of breast cancer. My eldest > sister > > got it at 33, and fought it, and eventually died at 43 (1987). My > > mother got it in her 70's, and had a mastectomy, but had had > > Alzheimer's, which is what she died from at age 75 in 1997. I > thought > > my elder sister and I would go through our lives unscathed, but no > go. > > She, at 58, was diagnosed last year, and just finished up all the > > chemo and radiation. So, here I am, the only female in my > immediate > > family to not yet have breast cancer. I have high deductible > health > > insurance, with a company that requests and usually gets, nearly > > annual rate hikes. I joined this group just after hearing about > their > > latest request on the news. I guess I was upset. I have fears, but > > they are nothing compared to any of you guys. I want to stay > > healthy. In case you are wondering, I get annual mammograms (my > > living sister had skipped two), and do self exams (although how I > will > > know when I find something is beyond me). I keep myself healthy > with > > good food, and exercise. So, I guess I am here to " listen " and > learn. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2010 Report Share Posted May 9, 2010 Hi all. Just signed up today and have been scrolling through some messages. I am still quite confused and overwhelmed with the complexities of being hypo. I've been hypothyroid for 8 years. Although I was never happy with my medication when discharged from my endo after diagnosis, I never investigated the condition and just accepted what they said and got on with it. About 6 years ago I was back at my GP with panic attacks and was put on antidepressants and have been on and off them to date. I'm not on them now. Have had bad effect with every depression med. Anyway, while researching a suggested antidepressant I linked onto all this info on hypo. I was back seeing an endo 3 months ago who increased my thyroxine by 25mcgms to 175mcgms but this has been to no avail. The endo wasn't interested in my basal temp readings but this is a big concern for me as my low temp does make me feel poorly and I end up in my bed day in day out. Basal temp is 36.1C and day temp doesn't go above 36.4C and goes to 35.4C after exertion ( ie 50mins gardening). I also have problems with fatigue. I can go a couple of days without a long afternoon nap but really suffer on subsequent days, feeling extremely weak and exhausted. My cognitive ability is also poor. I don't have a problem with my weight as such but I have had a loss of appetite for the past 6 months. I have a follow up appointment with my endo in 6 weeks, she was not very engaging on my last appointment and was not keen to give me this follow up so I'm trying to get to grips with my symptoms and there association with hypothyroid. I'm posting onto this site because I'm guessing that I may have issues with RT3 and would be very grateful for your thoughts. Although I've not felt great for a many years, I have felt markedly worse with symptoms for about 18 months. Thanks for your time, Vivienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2010 Report Share Posted May 9, 2010 Hi Vivienne, sorry to see you here but hope we can help! Do you have any blood results from you last visit? Have you ever had your adrenals tested via saliva cortisol testing? How about ferritin or RT3? Just the fact that you are on synthetic T4 will leave you feeling horrible! Did you read the FAQ? http://thyroid-rt3.com/ I don't know of anyone who has had a good experience with an endo. I have been to 7.... all equally useless in the end. Did you have your thyroid out? Many of us <me included> have been down the antidepressant path, doesn't help, just makes us worse since that isn't what is wrong! As for temps have you ever done them by the Dr. Rind method? http://www.drrind.com/therapies/metabolic-temperature-graph#intro this method helps to determine the strength of your adrenals. kitty To: RT3_T3 Sent: Sun, May 9, 2010 3:21:58 PMSubject: New member Hi all. Just signed up today and have been scrolling through some messages. I am still quite confused and overwhelmed with the complexities of being hypo. I've been hypothyroid for 8 years. Although I was never happy with my medication when discharged from my endo after diagnosis, I never investigated the condition and just accepted what they said and got on with it. About 6 years ago I was back at my GP with panic attacks and was put on antidepressants and have been on and off them to date. I'm not on them now. Have had bad effect with every depression med. Anyway, while researching a suggested antidepressant I linked onto all this info on hypo. I was back seeing an endo 3 months ago who increased my thyroxine by 25mcgms to 175mcgms but this has been to no avail. The endo wasn't interested in my basal temp readings but this is a big concern for me as my low temp does make me feel poorly and I end up in my bed day in day out. Basal temp is 36.1C and day temp doesn't go above 36.4C and goes to 35.4C after exertion ( ie 50mins gardening). I also have problems with fatigue. I can go a couple of days without a long afternoon nap but really suffer on subsequent days, feeling extremely weak and exhausted. My cognitive ability is also poor. I don't have a problem with my weight as such but I have had a loss of appetite for the past 6 months.I have a follow up appointment with my endo in 6 weeks, she was not very engaging on my last appointment and was not keen to give me this follow up so I'm trying to get to grips with my symptoms and there association with hypothyroid. I'm posting onto this site because I'm guessing that I may have issues with RT3 and would be very grateful for your thoughts. Although I've not felt great for a many years, I have felt markedly worse with symptoms for about 18 months.Thanks for your time,Vivienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2010 Report Share Posted May 9, 2010 Hi Vivienne, sorry to see you here but hope we can help! Do you have any blood results from you last visit? Have you ever had your adrenals tested via saliva cortisol testing? How about ferritin or RT3? Just the fact that you are on synthetic T4 will leave you feeling horrible! Did you read the FAQ? http://thyroid-rt3.com/ I don't know of anyone who has had a good experience with an endo. I have been to 7.... all equally useless in the end. Did you have your thyroid out? Many of us <me included> have been down the antidepressant path, doesn't help, just makes us worse since that isn't what is wrong! As for temps have you ever done them by the Dr. Rind method? http://www.drrind.com/therapies/metabolic-temperature-graph#intro this method helps to determine the strength of your adrenals. kitty To: RT3_T3 Sent: Sun, May 9, 2010 3:21:58 PMSubject: New member Hi all. Just signed up today and have been scrolling through some messages. I am still quite confused and overwhelmed with the complexities of being hypo. I've been hypothyroid for 8 years. Although I was never happy with my medication when discharged from my endo after diagnosis, I never investigated the condition and just accepted what they said and got on with it. About 6 years ago I was back at my GP with panic attacks and was put on antidepressants and have been on and off them to date. I'm not on them now. Have had bad effect with every depression med. Anyway, while researching a suggested antidepressant I linked onto all this info on hypo. I was back seeing an endo 3 months ago who increased my thyroxine by 25mcgms to 175mcgms but this has been to no avail. The endo wasn't interested in my basal temp readings but this is a big concern for me as my low temp does make me feel poorly and I end up in my bed day in day out. Basal temp is 36.1C and day temp doesn't go above 36.4C and goes to 35.4C after exertion ( ie 50mins gardening). I also have problems with fatigue. I can go a couple of days without a long afternoon nap but really suffer on subsequent days, feeling extremely weak and exhausted. My cognitive ability is also poor. I don't have a problem with my weight as such but I have had a loss of appetite for the past 6 months.I have a follow up appointment with my endo in 6 weeks, she was not very engaging on my last appointment and was not keen to give me this follow up so I'm trying to get to grips with my symptoms and there association with hypothyroid. I'm posting onto this site because I'm guessing that I may have issues with RT3 and would be very grateful for your thoughts. Although I've not felt great for a many years, I have felt markedly worse with symptoms for about 18 months.Thanks for your time,Vivienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2010 Report Share Posted May 9, 2010 Hi Vivienne, sorry to see you here but hope we can help! Do you have any blood results from you last visit? Have you ever had your adrenals tested via saliva cortisol testing? How about ferritin or RT3? Just the fact that you are on synthetic T4 will leave you feeling horrible! Did you read the FAQ? http://thyroid-rt3.com/ I don't know of anyone who has had a good experience with an endo. I have been to 7.... all equally useless in the end. Did you have your thyroid out? Many of us <me included> have been down the antidepressant path, doesn't help, just makes us worse since that isn't what is wrong! As for temps have you ever done them by the Dr. Rind method? http://www.drrind.com/therapies/metabolic-temperature-graph#intro this method helps to determine the strength of your adrenals. kitty To: RT3_T3 Sent: Sun, May 9, 2010 3:21:58 PMSubject: New member Hi all. Just signed up today and have been scrolling through some messages. I am still quite confused and overwhelmed with the complexities of being hypo. I've been hypothyroid for 8 years. Although I was never happy with my medication when discharged from my endo after diagnosis, I never investigated the condition and just accepted what they said and got on with it. About 6 years ago I was back at my GP with panic attacks and was put on antidepressants and have been on and off them to date. I'm not on them now. Have had bad effect with every depression med. Anyway, while researching a suggested antidepressant I linked onto all this info on hypo. I was back seeing an endo 3 months ago who increased my thyroxine by 25mcgms to 175mcgms but this has been to no avail. The endo wasn't interested in my basal temp readings but this is a big concern for me as my low temp does make me feel poorly and I end up in my bed day in day out. Basal temp is 36.1C and day temp doesn't go above 36.4C and goes to 35.4C after exertion ( ie 50mins gardening). I also have problems with fatigue. I can go a couple of days without a long afternoon nap but really suffer on subsequent days, feeling extremely weak and exhausted. My cognitive ability is also poor. I don't have a problem with my weight as such but I have had a loss of appetite for the past 6 months.I have a follow up appointment with my endo in 6 weeks, she was not very engaging on my last appointment and was not keen to give me this follow up so I'm trying to get to grips with my symptoms and there association with hypothyroid. I'm posting onto this site because I'm guessing that I may have issues with RT3 and would be very grateful for your thoughts. Although I've not felt great for a many years, I have felt markedly worse with symptoms for about 18 months.Thanks for your time,Vivienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 Thanks for reply. I'll check up on what your commented re sleep apnea. My main concern with the saliva test was that my night time cortisol was so high. As the comment on this indicated depression, which I've read can be relieved with T3 meds, do you think the addition of T3 may sort out the HPA axis malfunction and my night time cortisol would lower? I have 2 cups of fresh coffee in the morning and that's it. I didn't have a challenge test and I haven't heard of this. The detox diet I followed was Gillian Mc's which was a gluten free, fresh product diet. I do mainly stick to the diet you mentioned as I take a real energy dip, especially mid day if I eat gluten containing carbs. I think as you suggest I would benefit from T3 product but I do need RT3 tested which I'll request when I see my endo. Vivienne --- In RT3_T3 , " stormalamode " wrote not having any coffee during the test - really bad head and felt sick for most of the day so couldn't last any longer. > > How much coffee do you normally drink in a day? > > This is a bit high. You may be having trouble converting DHEA. > Meaning that your cortisol levels don't increase adequately to a challenge? Did you have a challenge test?. > > See sleep apnea. > Sleep apnea would explain this quite well. > You sound as if you might have early stage fibromyalgia. In fact, many of your symptoms look like T3 supplementation would help you. But, we won't know until your RT3 is measured. > > In order for a gluten test to work, you must avoid all gluten during the test period. If you limited your diet to just meat, fish, and vegetables, then you probably don't have a gluten issue. If you ate out or had any packaged foods however, you may have been glutened. It takes an experienced hand to know what is really gluten free. > > Anyone in the NHS should be able to order the appropriate tests. > > Alan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 Thanks for reply. I'll check up on what your commented re sleep apnea. My main concern with the saliva test was that my night time cortisol was so high. As the comment on this indicated depression, which I've read can be relieved with T3 meds, do you think the addition of T3 may sort out the HPA axis malfunction and my night time cortisol would lower? I have 2 cups of fresh coffee in the morning and that's it. I didn't have a challenge test and I haven't heard of this. The detox diet I followed was Gillian Mc's which was a gluten free, fresh product diet. I do mainly stick to the diet you mentioned as I take a real energy dip, especially mid day if I eat gluten containing carbs. I think as you suggest I would benefit from T3 product but I do need RT3 tested which I'll request when I see my endo. Vivienne --- In RT3_T3 , " stormalamode " wrote not having any coffee during the test - really bad head and felt sick for most of the day so couldn't last any longer. > > How much coffee do you normally drink in a day? > > This is a bit high. You may be having trouble converting DHEA. > Meaning that your cortisol levels don't increase adequately to a challenge? Did you have a challenge test?. > > See sleep apnea. > Sleep apnea would explain this quite well. > You sound as if you might have early stage fibromyalgia. In fact, many of your symptoms look like T3 supplementation would help you. But, we won't know until your RT3 is measured. > > In order for a gluten test to work, you must avoid all gluten during the test period. If you limited your diet to just meat, fish, and vegetables, then you probably don't have a gluten issue. If you ate out or had any packaged foods however, you may have been glutened. It takes an experienced hand to know what is really gluten free. > > Anyone in the NHS should be able to order the appropriate tests. > > Alan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 Thanks for reply. I'll check up on what your commented re sleep apnea. My main concern with the saliva test was that my night time cortisol was so high. As the comment on this indicated depression, which I've read can be relieved with T3 meds, do you think the addition of T3 may sort out the HPA axis malfunction and my night time cortisol would lower? I have 2 cups of fresh coffee in the morning and that's it. I didn't have a challenge test and I haven't heard of this. The detox diet I followed was Gillian Mc's which was a gluten free, fresh product diet. I do mainly stick to the diet you mentioned as I take a real energy dip, especially mid day if I eat gluten containing carbs. I think as you suggest I would benefit from T3 product but I do need RT3 tested which I'll request when I see my endo. Vivienne --- In RT3_T3 , " stormalamode " wrote not having any coffee during the test - really bad head and felt sick for most of the day so couldn't last any longer. > > How much coffee do you normally drink in a day? > > This is a bit high. You may be having trouble converting DHEA. > Meaning that your cortisol levels don't increase adequately to a challenge? Did you have a challenge test?. > > See sleep apnea. > Sleep apnea would explain this quite well. > You sound as if you might have early stage fibromyalgia. In fact, many of your symptoms look like T3 supplementation would help you. But, we won't know until your RT3 is measured. > > In order for a gluten test to work, you must avoid all gluten during the test period. If you limited your diet to just meat, fish, and vegetables, then you probably don't have a gluten issue. If you ate out or had any packaged foods however, you may have been glutened. It takes an experienced hand to know what is really gluten free. > > Anyone in the NHS should be able to order the appropriate tests. > > Alan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 >My main concern with the saliva test was that my night time cortisol was so high. As the comment on this indicated depression, which I've read can be relieved with T3 meds, do you think the addition of T3 may sort out the HPA axis malfunction and my night time cortisol would lower? High night time cortisol can be a result of adrenal failure that often is caused by low thyroid. There are a lot of resources out there for adrenals, the adrenal group is closed this week but is worth joining as they are far more experiences than I am http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ The adrenal group FAQ is here, have a read through and see if it answers questions. http://faqhelp.webs.com/ When they are open again post your saliva results with ranges there and they will comment, high night time can often be helped by supplementing the day time levels. Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 >My main concern with the saliva test was that my night time cortisol was so high. As the comment on this indicated depression, which I've read can be relieved with T3 meds, do you think the addition of T3 may sort out the HPA axis malfunction and my night time cortisol would lower? High night time cortisol can be a result of adrenal failure that often is caused by low thyroid. There are a lot of resources out there for adrenals, the adrenal group is closed this week but is worth joining as they are far more experiences than I am http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ The adrenal group FAQ is here, have a read through and see if it answers questions. http://faqhelp.webs.com/ When they are open again post your saliva results with ranges there and they will comment, high night time can often be helped by supplementing the day time levels. Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 >My main concern with the saliva test was that my night time cortisol was so high. As the comment on this indicated depression, which I've read can be relieved with T3 meds, do you think the addition of T3 may sort out the HPA axis malfunction and my night time cortisol would lower? High night time cortisol can be a result of adrenal failure that often is caused by low thyroid. There are a lot of resources out there for adrenals, the adrenal group is closed this week but is worth joining as they are far more experiences than I am http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ The adrenal group FAQ is here, have a read through and see if it answers questions. http://faqhelp.webs.com/ When they are open again post your saliva results with ranges there and they will comment, high night time can often be helped by supplementing the day time levels. Nick Quote Link to comment Share on other sites More sharing options...
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