My 3 year old with Down Syndrome and severe Hoshimotos

[Guest guest]

I have a 3 1/2 yr. old daughter who has Down Syndrome and also SEVERE Hoshimotos

syndrome (diagnosed over a year ago). She is currently under the care of a

" traditional " pediatric endocrinologist who prescribed Levothyroxine (generic

Synthroid) and she's been on this medication for over a year now. We see this

doctor every 6 mos to check her labs...and of course, just like me, " everything

is normal " . But I know that with my own nightmare experience, almost 20 doctors

and 6 years later, I'm finally getting my own RT3/T3 and Hypo issues treated, my

fear is that my daughter is suffering and I don't know what to do. She cannot

communicate and is developmentally delayed anyway with having Down Syndrome.

Her hair isn't growing, actually falling out, she has horribly dry skin, very

fatigued, a lot of the same issues I have (and probably more, but cannot

communicate them to me)and it has nothing to do with diet...her diet is

excellent. It scares me to death to think that she could be going through what

I am/or went through. She's a developing child with other issues that take

precedence. Like I said, her doctor says " she's fine " ...but I KNOW BETTER, I'VE

HEARD THAT STORY MILLIONS OF TIME MYSELF! And all along, I wasn't fine! Any

advice? I live in Chicago, if anyone knows of a pediatric endocrinologist that

" thinks outside the box " , a referral would be great. But any advice until I

find a new doctor for her? I'm at a loss and very very worried.

Thanks so much!!

Deanna