Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 Hello, I'm new to this site. I joined so I could possibly get more info than my Pulmadude is giving me. Here is my background: I have had RA for quite some time now and got a respatory infection in Nov. 2008. I get these infections about every 3-4 months due to taking Prednisone and Orincia for my RA. My GP decided to do a chest x-ray and discovered what he told me was " pulmonary fibrosis " . He sent me to the pulmadude in Dec and he had a hi-res CT done. He confermed the fibrosis but did not want to make a determination until he got another CT in February. We did that CT last week and he made his diagnosis of UIP. I have very few symptoms that anything is wrong(some shotnes of breath during heavy activity) and my pulminary tests show near normal. I don't know anything about this disease but was wondering should the pulmadude be more active than he is? All he has said is we discovered the desease at a very early stage, that there was no treatment, and he would just " watch " it every 4-6 months. I asked what was the prognosis and all he said was " don't know...it looks stable for now " . And he sent me on my way. The only info I have gotten beyond that is the internet. Why are these Dr.s so vague? Thanks for any response/support. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.