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/Re:Life after VVS Surgery

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Hi ,

It is strange – but pain – which

ruled my life – is hard to describe after the fact. I don’t know

what “certain” type of pain you mean. My original gyno - before he

sent me to the vulvar specialist diagnosed me with VV, along with pudendal neuropathy.

The specialist (Dr.

– The “V”

Book) diagnosed me with LS, which also “supposedly” causes pain. So

I had pain from three different sources.

My pain was all over the entire perineum/vulvar

area. At times it looked inflamed to me, other times it didn’t. It burned

unbearably, itched some of the time. I could NOT be touched anywhere in the entire

area, but the 6 0’clock area was the worse. When I went for my pre-surgery

LS check up with Dr.

, she said everything

looked just as bad as ever. There was nothing more she could do for me as I had

tried everything. I took all the medications, topicals and huge amounts of

narcotics she had suggested. I even had a pain management doctor. She

thought I was so bad that even a vestibulectomy would not help me. BUT, I did

not listen to her – I listened to the surgeon who was going to do my

pudendal decompression surgery. He told me he could do the vestibulectomy at

the same time, and I would be fine. I thought what did I have to lose – I

did not think I could get any worse. He was right – I did great.

Does this answer your question?

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of femifesto

Sent: Monday, September 03, 2007 9:13 AM

To: VulvarDisorders

Subject: Re:Life after VVS

Surgery

perhaps you both could describe more specifically what type of pain

you have/had? isn't it known to be more helpful for certain types of pain?

julie

_,_._,___

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