Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 He so wants to find something and do something and just can't. I think it's going to drive the poor man crazy. He wants to know what my pulmonologist says to do and I tell him we're still choosing to do nothing. Then he sends me to a neurologist and he says nothing he recommends. Then to his hand picked neurologist who says nothing unless my CK rises further or spikes. He sends me to another rheumatologist who says he doesn't see signs of anything. This all starts from U of Chicago saying probable undifferentiated connective tissue disease or Polymyositis. He's also sent me to oncologist to check for two different potential cancers (I've been checked for four total) and follows the nephrologists testing carefully wanting to know if something should be done there while she says we'll just keep monitoring. So, he took seven more tubes of blood today and urine even though he took blood two weeks ago and I'm scheduled in 6 weeks again. When my pulmonologist talks about monitoring its even 4 months, for my nephrologist its every 3 months, for others it's as indicated, but with him its every six weeks. Of course I couldn't do it exactly in six weeks next time because I'll be on the road to Orlando. Quote Link to comment Share on other sites More sharing options...
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