Kristy/Update on my PN specialist/nerve block trip

[Guest guest]

Hi Kristy,

Just one

thing that I wanted everyone to know about the PN surgery I had done. You

mentioned about your friend that had the surgery done in Houston. The doctor in

Houston does an entirely different type of surgery than Dr. Conway. A simple

explanation is that he (the doctor in Houston) operates by making incisions

through the butt to reach the pudendal nerve. It is called the TG (Transgluteal) Approach,

whereas Dr. Conway does the TIR (Trans-ischio Rectal Approach). For those who want to read more about

the different approaches, you can go to http://www.spuninfo.org/index_files/SurgicalTechniques.htm.

Plus Dr. Conway is the ONLY doctor in the US who performs this surgery, He

spent six months in France learning from the doctor who originated and developed

this surgery. This is why Dr. Conway is in such demand, as there is nowhere

else in the US that you can have it done. Currently, the TIR surgery has a much

higher success rate

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Kristy Sokoloski

Sent: Thursday, September 20, 2007 6:01 AM

To: VulvarDisorders

Subject: [sPAM] Re: Kristy/Update on my PN specialist/nerve block

trip

Hi nne,

I was glad I got to talk to him as well. I was glad that I saw

his site to notice that he has knowledge about endometriosis.

And that was another thing he did tell me is that yes it is

possible that endo could grow on the pudenal nerve and even the

other nerves I have a problem with. My conversation with him is

causing me to think maybe about going ahead and having that EMG

done any way with the tech I talked to in the Spring.

I will weigh that possibility over the next few months once I

know what's going on with my mom. She was told earlier this

year that she has breast cancer but we took her to Mayo Clinic

ville to the breast clinic they have there. We have

asked them to run the tests again and it's a good thing that

they asked for the slides too when we sent stuff over the week

before because we found out last week that the pathologist at

the hospital where she had the biopsy done read one of the

slides wrong.

But for now we are going to have the tests done again to make

sure that once and for all this is cancer and if it is (we know

that it may not change the initial finding but still sometimes

things happen where the biopsy can be wrong) so that we can plan

our strategy for her treatments and whatnot. Then once we know

what's going on with that I can focus on myself again to finish

putting some other pieces of my puzzle in to place.

Glad to hear you are doing well with your surgery hon. I know

someone that had the surgery you did with a doctor in the

Houston area and when I last talked to her (which was over a

year ago) she did not have good results. If I hear from her

again I will let you know what I find out from her as to how

she's doing.

I'm especially glad that you have found the answer to your

problem. Trying to find an answer no matter how long it is to

do so can be very stressful while waiting, but it's always

wonderful when the answer comes and not only relief but peace

all the way around.

Continue to do well hon.

Kristy