Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 Dear SaraI can certainly understand his decision. I had been on Avonex for 5 years and did very well on it. MS was in remission for the most part and I was living life:) I got sick of the shots and decided to quit. I did fine for about a year and then MS reared it's very ugly head. I had about a 3 year long attack and have really regretted going off the Avonex. Would I do things differently? I'm not sure I would. How old is your husband? I was over 50 when I quit Avonex. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, April 6, 2011 10:56:26 AMSubject: To stop meds My husband decided in october to quit taking his rebif for his relapsing remitting ms because he hated the side effects. I did much reading about the pros and cons of making a choice like this, I want to be supportive and have been, but feel he isn't making healthy choices overall in addition to being 6 months off his meds. Any insight would be appreciated.Sara------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 Sara,What sorts of side effects is he dealing with? I am on Copaxone, and besides slight sight swelling and itching, there are no ill effects for me. Is it possible he would consider another med? Is he just getting tired of injecting? I know with Copaxone, I sometimes tire of every day injections. I think Rebif is every 3 days? I agree that I think stopping meds are not a good way to go. But there may be folks who don't agree with that. I have read that many times men tend to have more progressive forms of MS, but hey, that is just what I've read, and I'm no expert on the subject.hugs to you and your hubby,KateTo: MSersLife Sent: Wed, April 6, 2011 1:56:26 PMSubject: To stop meds My husband decided in october to quit taking his rebif for his relapsing remitting ms because he hated the side effects. I did much reading about the pros and cons of making a choice like this, I want to be supportive and have been, but feel he isn't making healthy choices overall in addition to being 6 months off his meds. Any insight would be appreciated. Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 My husband just turned 35 last month, has had MS for 9 years which for 8 of those years we have been together, he did quit the rebif once before for about a year. In the last 6 months his mood has greatly improved among other things, it is the unknown that scares the begeebers out of me, a relapse would be a hard hit, we had our 1st baby in June of last year, for him I want his daddy as healthy as he can be. Thanks for listening and the support. Sara > > Dear Sara > > I can certainly understand his decision. I had been on Avonex for 5 years and > did very well on it. MS was in remission for the most part and I was living > life:) I got sick of the shots and decided to quit. I did fine for about a > year and then MS reared it's very ugly head. I had about a 3 year long attack > and have really regretted going off the Avonex. Would I do things differently? > I'm not sure I would. How old is your husband? I was over 50 when I quit > Avonex. > > > hugs > > > Sharon > This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects. > > > > > > > ________________________________ > From: Sara F > To: MSersLife > Sent: Wed, April 6, 2011 10:56:26 AM > Subject: To stop meds > > My husband decided in october to quit taking his rebif for his relapsing > remitting ms because he hated the side effects. I did much reading about the > pros and cons of making a choice like this, I want to be supportive and have > been, but feel he isn't making healthy choices overall in addition to being 6 > months off his meds. Any insight would be appreciated. > Sara > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 My husband just turned 35 last month, has had MS for 9 years which for 8 of those years we have been together, he did quit the rebif once before for about a year. In the last 6 months his mood has greatly improved among other things, it is the unknown that scares the begeebers out of me, a relapse would be a hard hit, we had our 1st baby in June of last year, for him I want his daddy as healthy as he can be. Thanks for listening and the support. Sara > > Dear Sara > > I can certainly understand his decision. I had been on Avonex for 5 years and > did very well on it. MS was in remission for the most part and I was living > life:) I got sick of the shots and decided to quit. I did fine for about a > year and then MS reared it's very ugly head. I had about a 3 year long attack > and have really regretted going off the Avonex. Would I do things differently? > I'm not sure I would. How old is your husband? I was over 50 when I quit > Avonex. > > > hugs > > > Sharon > This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects. > > > > > > > ________________________________ > From: Sara F > To: MSersLife > Sent: Wed, April 6, 2011 10:56:26 AM > Subject: To stop meds > > My husband decided in october to quit taking his rebif for his relapsing > remitting ms because he hated the side effects. I did much reading about the > pros and cons of making a choice like this, I want to be supportive and have > been, but feel he isn't making healthy choices overall in addition to being 6 > months off his meds. Any insight would be appreciated. > Sara > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 My husband just turned 35 last month, has had MS for 9 years which for 8 of those years we have been together, he did quit the rebif once before for about a year. In the last 6 months his mood has greatly improved among other things, it is the unknown that scares the begeebers out of me, a relapse would be a hard hit, we had our 1st baby in June of last year, for him I want his daddy as healthy as he can be. Thanks for listening and the support. Sara > > Dear Sara > > I can certainly understand his decision. I had been on Avonex for 5 years and > did very well on it. MS was in remission for the most part and I was living > life:) I got sick of the shots and decided to quit. I did fine for about a > year and then MS reared it's very ugly head. I had about a 3 year long attack > and have really regretted going off the Avonex. Would I do things differently? > I'm not sure I would. How old is your husband? I was over 50 when I quit > Avonex. > > > hugs > > > Sharon > This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects. > > > > > > > ________________________________ > From: Sara F > To: MSersLife > Sent: Wed, April 6, 2011 10:56:26 AM > Subject: To stop meds > > My husband decided in october to quit taking his rebif for his relapsing > remitting ms because he hated the side effects. I did much reading about the > pros and cons of making a choice like this, I want to be supportive and have > been, but feel he isn't making healthy choices overall in addition to being 6 > months off his meds. Any insight would be appreciated. > Sara > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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