Guest guest Posted March 20, 2011 Report Share Posted March 20, 2011 I am 46 and live in Missouri. The weather is teasing us with bits of spring, of course with spring comes rain, with rain comes +pain....... My MS is R/R and has been quite resistant to treatment. Dx'd May 2010 failed Rebif and Copaxone- 3 rounds of steroids 10days a pop IV 1000mgs. Now on Tysabri x 4 months. The Tysabri is helping me in marvelous ways-walking, energy, cognition, spasticity, vision, autonomic dysfunction..... all is improving. But WOW I thought I had really researched the Tysabri info but more and more comes out. I am not one to experience much fear but I think the reality of " my Ms " is really setting in. It is weird how people think I am walking and look good on the outside so I must be fine. I have not told anyone but my husband about the heart thing, the Tysabri things, havent even told him about the fear I feel, weird because feeling so much better illustrates more clearly how sick I was. So in using the Tysabri I felt I had nothing to loose-but apparently the # with PML is rising, Tysabri research has been halted for lack of participation or forward movement in studyand stopping the drug causes severe relapses-which I cannot afford to happen. Sherri Quote Link to comment Share on other sites More sharing options...
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