Guest guest Posted April 17, 2003 Report Share Posted April 17, 2003 > Welcome..you've find the right place non-judgemental > support and friendship..there is no other group on the > entire internet like this one. Man, you all are so good for my ego this week! Every time I see a statement like this, it chokes me up. I read this to Marc and said, " How did this HAPPEN? I never really believed it would happen. " He said, " You wanted it, and you willed it into existence. You have a strength of will unheard of outside of King novels. " I'm not sure that's a compliment...LOL. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2003 Report Share Posted April 17, 2003 > Welcome..you've find the right place non-judgemental > support and friendship..there is no other group on the > entire internet like this one. Man, you all are so good for my ego this week! Every time I see a statement like this, it chokes me up. I read this to Marc and said, " How did this HAPPEN? I never really believed it would happen. " He said, " You wanted it, and you willed it into existence. You have a strength of will unheard of outside of King novels. " I'm not sure that's a compliment...LOL. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 I'm from New York but you could call around and ask. if you were to become pregnant and you are doing well you really do not need a special doctor as long as you know you are getting proper nutrition. Just ask around different doctors offices and find out who is the best high risk doctor and then call them, they should be up to date with WLS. welcome to the group and good luck TTC HUGS, ROBIN, NY Age- 41 TTC#4 - OPEN RNY 10-18-02 378/246/170??? DR.EDWARD HIXSON SARANAC LAKE, NY Mom to: & 7 1/2 year twin boys and Madison age 4 1/2 yrs. Miscarraige August 2001 Miscarraige August 2003 Married to Pup: 15 years this Halloween : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 I'm from New York but you could call around and ask. if you were to become pregnant and you are doing well you really do not need a special doctor as long as you know you are getting proper nutrition. Just ask around different doctors offices and find out who is the best high risk doctor and then call them, they should be up to date with WLS. welcome to the group and good luck TTC HUGS, ROBIN, NY Age- 41 TTC#4 - OPEN RNY 10-18-02 378/246/170??? DR.EDWARD HIXSON SARANAC LAKE, NY Mom to: & 7 1/2 year twin boys and Madison age 4 1/2 yrs. Miscarraige August 2001 Miscarraige August 2003 Married to Pup: 15 years this Halloween : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 I'm from New York but you could call around and ask. if you were to become pregnant and you are doing well you really do not need a special doctor as long as you know you are getting proper nutrition. Just ask around different doctors offices and find out who is the best high risk doctor and then call them, they should be up to date with WLS. welcome to the group and good luck TTC HUGS, ROBIN, NY Age- 41 TTC#4 - OPEN RNY 10-18-02 378/246/170??? DR.EDWARD HIXSON SARANAC LAKE, NY Mom to: & 7 1/2 year twin boys and Madison age 4 1/2 yrs. Miscarraige August 2001 Miscarraige August 2003 Married to Pup: 15 years this Halloween : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Welcome !! I'm in Michigan or I'd help! LOL! Just wanted to welcome you to the group, though! Good luck TTC! Sharon Korta said: > Hi, My name is and I live in Tampa, Florida. I had WLS in > February of this year, and am 25 pounds from goal. My husband and I > would like to start trying to conceive at my 1 year anniversary. Has > anyone found a WLS friendly OB in Tampa? Any info I could get would > be appreciated. Thanks in advance. > > > > > > Children are a blessing, and a gift from the Lord. -Psalm 127:3 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Welcome !! I'm in Michigan or I'd help! LOL! Just wanted to welcome you to the group, though! Good luck TTC! Sharon Korta said: > Hi, My name is and I live in Tampa, Florida. I had WLS in > February of this year, and am 25 pounds from goal. My husband and I > would like to start trying to conceive at my 1 year anniversary. Has > anyone found a WLS friendly OB in Tampa? Any info I could get would > be appreciated. Thanks in advance. > > > > > > Children are a blessing, and a gift from the Lord. -Psalm 127:3 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Welcome !! I'm in Michigan or I'd help! LOL! Just wanted to welcome you to the group, though! Good luck TTC! Sharon Korta said: > Hi, My name is and I live in Tampa, Florida. I had WLS in > February of this year, and am 25 pounds from goal. My husband and I > would like to start trying to conceive at my 1 year anniversary. Has > anyone found a WLS friendly OB in Tampa? Any info I could get would > be appreciated. Thanks in advance. > > > > > > Children are a blessing, and a gift from the Lord. -Psalm 127:3 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 a, Speaking from personal AND professional experience, CALL them and ask for a copy in writing. When I called, they told me my B12 level was normal when in fact it was normal..... B12 normal levels were 180-914.... mine was 181.... 1 point away from panic value low... so get a hard copy and read it thoroughly! I am certain the nurse just skimmed down through the NRML-ABNRML area and read off the abnormal ones; and since mine was literally NORMAL at that point, it didn't flag it. Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 a, Speaking from personal AND professional experience, CALL them and ask for a copy in writing. When I called, they told me my B12 level was normal when in fact it was normal..... B12 normal levels were 180-914.... mine was 181.... 1 point away from panic value low... so get a hard copy and read it thoroughly! I am certain the nurse just skimmed down through the NRML-ABNRML area and read off the abnormal ones; and since mine was literally NORMAL at that point, it didn't flag it. Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 You will be a much healthier, happier pregnant mommy if you wait until a year after your surgery to try to have a baby again. Don't let anyone talk you into something you are not ready for. Having a new baby now only ads to the pressure of the surgery ( worry about a new baby while trying to have surgery and recovery will not work well). I would lose the weight first and then have a baby. I am sorry you have no support at home but we are here for you There is another group for people who had or are ready to have GBS, it is called Gastric_bypass_family-subscribe , It is a GREAT group with loads of info Good LUck. HUGS, ROBIN, NY Age- 41 TTC#4 - OPEN RNY 10-18-02 378/246/170??? DR.EDWARD HIXSON SARANAC LAKE, NY Mom to: & 7 1/2 year twin boys and Madison age 4 1/2 yrs. Miscarraige August 2001 Miscarraige August 2003 Married to Pup: 15 years this Halloween : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Welcome Kaci, to our family! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Re: new here Bonnie ~ thanks for your warm welcome! Well, I've never heard of the larygomalacia, but will add that to the things to read. Laryngomalacia - is the cartilage of the larynx not hardening properly and is " soft " . It causes stridor (noise on inhalation). I was at a SLP seminar last week for swallowing disorders for pediatric patients and this was brought up. Babies that die from SIDS are now thought to have laryngomalacia as one of the causes of their deaths. I too have mitral valve prolapse. My joints are mildly hyperextensive (according to the ortho), but I still have problems with them. My hips sublux/dislocate at times, the SI joint does the same, I have toes that dislocate, bones going into the wrist sublux, TMJ, some hypotension, symptoms of dysautomonia (going to an eletrophysiologist in May for my initial appt with the MD), IBS, memory problems, June 2002 I had an umbilical hernia repaired (ouch ouch ouch), flat feet for which I now have orthotics, soft skin that tears/bruises easily, and a lot others I can't remember now unless I look at a list The geneticist looks at the symptoms of family members and makes the diagnosis from that. The skin biopsy is to rule out Vascular EDS (VEDS). There are no other definitive skin biopsies yet for the other types of EDS. I have my EDS traced on both sides of my mom's father's parents (did you follow that? ) and my dad has symptoms too. I have symptoms on my mom's side of the family traced back 6 generations from doing the family tree. Again...welcome. And remember, no question is a dumb question!!! Jill is the list mom and has tons of articles on EDS - all you have to do is ask!!! I've posted the ceda website in a temporary location, so that the information is still available to you! http://members.rogers.com/ceda2/ Jill also has an automatic birthday calendar that sends out reminders to CEDA for birthdays. Send jill your birthday and she'll put it in the calendar.... jilldouglas@... There's also a biography page and photo page that are up at CEDA but you have to ask Jill for the websites as only members can get in.... Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Re: new here Bonnie ~ thanks for your warm welcome! Well, I've never heard of the larygomalacia, but will add that to the things to read. Laryngomalacia - is the cartilage of the larynx not hardening properly and is " soft " . It causes stridor (noise on inhalation). I was at a SLP seminar last week for swallowing disorders for pediatric patients and this was brought up. Babies that die from SIDS are now thought to have laryngomalacia as one of the causes of their deaths. I too have mitral valve prolapse. My joints are mildly hyperextensive (according to the ortho), but I still have problems with them. My hips sublux/dislocate at times, the SI joint does the same, I have toes that dislocate, bones going into the wrist sublux, TMJ, some hypotension, symptoms of dysautomonia (going to an eletrophysiologist in May for my initial appt with the MD), IBS, memory problems, June 2002 I had an umbilical hernia repaired (ouch ouch ouch), flat feet for which I now have orthotics, soft skin that tears/bruises easily, and a lot others I can't remember now unless I look at a list The geneticist looks at the symptoms of family members and makes the diagnosis from that. The skin biopsy is to rule out Vascular EDS (VEDS). There are no other definitive skin biopsies yet for the other types of EDS. I have my EDS traced on both sides of my mom's father's parents (did you follow that? ) and my dad has symptoms too. I have symptoms on my mom's side of the family traced back 6 generations from doing the family tree. Again...welcome. And remember, no question is a dumb question!!! Jill is the list mom and has tons of articles on EDS - all you have to do is ask!!! I've posted the ceda website in a temporary location, so that the information is still available to you! http://members.rogers.com/ceda2/ Jill also has an automatic birthday calendar that sends out reminders to CEDA for birthdays. Send jill your birthday and she'll put it in the calendar.... jilldouglas@... There's also a biography page and photo page that are up at CEDA but you have to ask Jill for the websites as only members can get in.... Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi Kaci, Our family is affected by both EDS & Chiari 1 malformation, with our son having a definite diagnosis of both, altho' it's thought others in the family may also have both disorders. There is an association between EDS & Chiari 1, & the first paper on this awaits publication in the " Journal of Genetic Counseling. " This is being published by the Drs. at the Chiari Institute in N.Y., who have now seen 81 patients with both EDS & Chiari 1 in the past 2 years. Chiari 1 Malformation has already been found to be associated with connective tissue disorders such as achondroplasia, acro-osteolysis (Hadju-Cheney syndrome) &, more recently, Shprintzen-Goldberg syndrome (SGS), in which cranio., Chiari 1 & a " marfanoid habitus " are found. I'm wondering if your Drs. have looked into SGS? Anyway, I'm a " lurker " that postulated there is a connection between EDS & Chiari, & I've been looking into this for over 3 years. Must say I was still " gobsmacked " when a world renowned Chiari expert told me there is an association. As others here have said, there is an overlap between the different types of EDS...there is also some overlap between EDS, & other connective tissue disorders....our son has the hypermobile type of EDS, & the skeletal features of Marfan syndrome, as well as Chiari & syringomyelia....& he has mitral valve prolapse too. Oh, & our youngest daughter's chest collapsed shortly after birth etc. We also have a family history of stridor ( a croup-like disorder, with difficulty breathing in) that Bonnie mentioned. All 3 of our children have had this; our youngest daughter had bilateral vocal cord paralysis, now thought to be due to Chiari 1, & our son's otolaryngologist said his stridor was definitely due to his Chiari malformation. Well I certainly know about too many coincidences too, & am pleased you have found the ceda family; I'm very pleased to " meet " you. You might also consider joining another Yahoo group on Chiari. This is wacma (World Arnold Chiari Malformation Association): http://groups.yahoo.com/group/chiari/ You'll probably be amazed how often EDS is discussed in their posts...many have been to/know of the Chiari specialists in N.Y., who have now written about this association between EDS & Chiari. One of the Drs. is even a list member....look out for Dr. B's posts if you join...he has helped our family enormously. With best wishes to you & your family, Gail North Yorkshire, U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi Kaci, Our family is affected by both EDS & Chiari 1 malformation, with our son having a definite diagnosis of both, altho' it's thought others in the family may also have both disorders. There is an association between EDS & Chiari 1, & the first paper on this awaits publication in the " Journal of Genetic Counseling. " This is being published by the Drs. at the Chiari Institute in N.Y., who have now seen 81 patients with both EDS & Chiari 1 in the past 2 years. Chiari 1 Malformation has already been found to be associated with connective tissue disorders such as achondroplasia, acro-osteolysis (Hadju-Cheney syndrome) &, more recently, Shprintzen-Goldberg syndrome (SGS), in which cranio., Chiari 1 & a " marfanoid habitus " are found. I'm wondering if your Drs. have looked into SGS? Anyway, I'm a " lurker " that postulated there is a connection between EDS & Chiari, & I've been looking into this for over 3 years. Must say I was still " gobsmacked " when a world renowned Chiari expert told me there is an association. As others here have said, there is an overlap between the different types of EDS...there is also some overlap between EDS, & other connective tissue disorders....our son has the hypermobile type of EDS, & the skeletal features of Marfan syndrome, as well as Chiari & syringomyelia....& he has mitral valve prolapse too. Oh, & our youngest daughter's chest collapsed shortly after birth etc. We also have a family history of stridor ( a croup-like disorder, with difficulty breathing in) that Bonnie mentioned. All 3 of our children have had this; our youngest daughter had bilateral vocal cord paralysis, now thought to be due to Chiari 1, & our son's otolaryngologist said his stridor was definitely due to his Chiari malformation. Well I certainly know about too many coincidences too, & am pleased you have found the ceda family; I'm very pleased to " meet " you. You might also consider joining another Yahoo group on Chiari. This is wacma (World Arnold Chiari Malformation Association): http://groups.yahoo.com/group/chiari/ You'll probably be amazed how often EDS is discussed in their posts...many have been to/know of the Chiari specialists in N.Y., who have now written about this association between EDS & Chiari. One of the Drs. is even a list member....look out for Dr. B's posts if you join...he has helped our family enormously. With best wishes to you & your family, Gail North Yorkshire, U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi Kaci, Our family is affected by both EDS & Chiari 1 malformation, with our son having a definite diagnosis of both, altho' it's thought others in the family may also have both disorders. There is an association between EDS & Chiari 1, & the first paper on this awaits publication in the " Journal of Genetic Counseling. " This is being published by the Drs. at the Chiari Institute in N.Y., who have now seen 81 patients with both EDS & Chiari 1 in the past 2 years. Chiari 1 Malformation has already been found to be associated with connective tissue disorders such as achondroplasia, acro-osteolysis (Hadju-Cheney syndrome) &, more recently, Shprintzen-Goldberg syndrome (SGS), in which cranio., Chiari 1 & a " marfanoid habitus " are found. I'm wondering if your Drs. have looked into SGS? Anyway, I'm a " lurker " that postulated there is a connection between EDS & Chiari, & I've been looking into this for over 3 years. Must say I was still " gobsmacked " when a world renowned Chiari expert told me there is an association. As others here have said, there is an overlap between the different types of EDS...there is also some overlap between EDS, & other connective tissue disorders....our son has the hypermobile type of EDS, & the skeletal features of Marfan syndrome, as well as Chiari & syringomyelia....& he has mitral valve prolapse too. Oh, & our youngest daughter's chest collapsed shortly after birth etc. We also have a family history of stridor ( a croup-like disorder, with difficulty breathing in) that Bonnie mentioned. All 3 of our children have had this; our youngest daughter had bilateral vocal cord paralysis, now thought to be due to Chiari 1, & our son's otolaryngologist said his stridor was definitely due to his Chiari malformation. Well I certainly know about too many coincidences too, & am pleased you have found the ceda family; I'm very pleased to " meet " you. You might also consider joining another Yahoo group on Chiari. This is wacma (World Arnold Chiari Malformation Association): http://groups.yahoo.com/group/chiari/ You'll probably be amazed how often EDS is discussed in their posts...many have been to/know of the Chiari specialists in N.Y., who have now written about this association between EDS & Chiari. One of the Drs. is even a list member....look out for Dr. B's posts if you join...he has helped our family enormously. With best wishes to you & your family, Gail North Yorkshire, U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Patti ~ I'm glad to have found you all too! Thanks for the warm welcome! hugs~ Kaci > Hi Kaci -- > > Welcome to the group -- glad you have found us!! My name is Patti and I have VEDS. This is a great group with very special people in it. Welcome again!!!!! > > Take care, Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Patti ~ I'm glad to have found you all too! Thanks for the warm welcome! hugs~ Kaci > Hi Kaci -- > > Welcome to the group -- glad you have found us!! My name is Patti and I have VEDS. This is a great group with very special people in it. Welcome again!!!!! > > Take care, Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Patti ~ I'm glad to have found you all too! Thanks for the warm welcome! hugs~ Kaci > Hi Kaci -- > > Welcome to the group -- glad you have found us!! My name is Patti and I have VEDS. This is a great group with very special people in it. Welcome again!!!!! > > Take care, Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Welcome to the board ! Louisa 6-27-99 Zoe 2-22-04 Right Unilateral Clubfoot > Hello everyone! I am so glad I found this site, and was pointed in > this direction. My little boy will be born in late November, but I > am trying to get an early start finding information. We were told at > our 20 week ultrasound that he had club feet and were sent for > another 2 weeks later. Here we were told that the cerebellum was > measuring a little small. I can't find any information on this at > all, and wondered if anyone had heard of this before. I am hopeful > they are monitoring everything more closely because of his club > feet. Everything I have read seems to point to that. > > My question about his club feet is about a doctor. I emailed Dr. > Ponseti, for doctors in Indianapolis, Indiana. Currently, there are > none. Is anyone from this area, who has found a great doctor? We > may consider driving to Iowa, but that really won't be a fun trip at > the first of Dec. with our first newborn! > > Also, was anyone else's doctor very cautious before the baby was > born, and found out everything was ok when the child was born? > Thanks for your help in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 , I'm so happy you are here - no need to go into my story, as I already bombarded you with all the details. I'm sure you'll get lots of great advice. Holly Zachary 7/27/02 Right C/F Treated by Dr. Ponseti DBB nights only #2 due 1/8 > Hello everyone! I am so glad I found this site, and was pointed in > this direction. My little boy will be born in late November, but I > am trying to get an early start finding information. We were told at > our 20 week ultrasound that he had club feet and were sent for > another 2 weeks later. Here we were told that the cerebellum was > measuring a little small. I can't find any information on this at > all, and wondered if anyone had heard of this before. I am hopeful > they are monitoring everything more closely because of his club > feet. Everything I have read seems to point to that. > > My question about his club feet is about a doctor. I emailed Dr. > Ponseti, for doctors in Indianapolis, Indiana. Currently, there are > none. Is anyone from this area, who has found a great doctor? We > may consider driving to Iowa, but that really won't be a fun trip at > the first of Dec. with our first newborn! > > Also, was anyone else's doctor very cautious before the baby was > born, and found out everything was ok when the child was born? > Thanks for your help in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Hello . I found out at my 20 week ultrasound too. I was so devastated! They also told me that there was a chance it could correct itself before she was born. Needless to say, it didn't. My daughter has bilateral club foot. I just now discovered this message board. I wish I found it at the stage you are at. You are way ahead, good for you!!!! Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 - Congrats on your baby to come! I cannot lend any guidance in how cautious my dr was prior--because we didn't know until he got here! But we do drive from Ky to St Louis, MO to see Dr. Dobbs. He is a great doctor. I cannot say enough wonderful things about him. We drive about 225 miles to see him. According to mapquest it's 242 miles from Inianapolis to St. Louis. Let me tell you it's worth EVERY mile. He is very committed to the Ponseti method. He has been seeing since he was 2 weeks old. is will be 3 in August. He runs all over the place. He is still in the DBB (shoes and bar) 12 hours/day. Dr. Dobbs is very skillful and knowledgeble of the Ponseti method (he actually went to medical school at University of Iowa). He is also a great person very friendly and caring. He sees patients in his office and he also sees patients at Shriner's. We see him at Shriner's because our insurance would be out of network. His clubfoot clinic at Shriner's is on Thursday's (it's been on Thursday's for like a couple of years now) and it's in the afternoon. It used to be in the morning and we would have to spend the night if we didn't want to leave town in the middle of the night to get there! But now with it being in the afternoon we sometimes make the trip in one day or sometimes we stay the night and visit the zoo, or other attractions. Let me know if you have any questions for me. I would be glad to answer what I can. Is this your first baby? Pam and (8-12-01) > Hello everyone! I am so glad I found this site, and was pointed in > this direction. My little boy will be born in late November, but I > am trying to get an early start finding information. We were told at > our 20 week ultrasound that he had club feet and were sent for > another 2 weeks later. Here we were told that the cerebellum was > measuring a little small. I can't find any information on this at > all, and wondered if anyone had heard of this before. I am hopeful > they are monitoring everything more closely because of his club > feet. Everything I have read seems to point to that. > > My question about his club feet is about a doctor. I emailed Dr. > Ponseti, for doctors in Indianapolis, Indiana. Currently, there are > none. Is anyone from this area, who has found a great doctor? We > may consider driving to Iowa, but that really won't be a fun trip at > the first of Dec. with our first newborn! > > Also, was anyone else's doctor very cautious before the baby was > born, and found out everything was ok when the child was born? > Thanks for your help in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 , I am in Muncie Indiana. The closest Ponseti doctor I have found is in St. Louis. I took my son to a local ortho, but after 18 months of treatment with him I was not satisfied with the results. I take Tyler to Dr. Dobbs in St. Louis. Thankfully I found him through this site! He has had one casting with him so far and getting ready to go Tue. for his second set. I also found out about my son's cf when I was pregnant with him, but unfortunatly I didn't do the research I should have. It's good that you are getting the info early so that you may avoid the things that we have had to go through. If there is anything else I can help you with just let me know. The people in this group has helped me so much I am more then happy to pass some of my knowlege to someone else. Tyler's mommy bi lat cf 1/14/03 first set of casts, second round > Hello everyone! I am so glad I found this site, and was pointed in > this direction. My little boy will be born in late November, but I > am trying to get an early start finding information. We were told at > our 20 week ultrasound that he had club feet and were sent for > another 2 weeks later. Here we were told that the cerebellum was > measuring a little small. I can't find any information on this at > all, and wondered if anyone had heard of this before. I am hopeful > they are monitoring everything more closely because of his club > feet. Everything I have read seems to point to that. > > My question about his club feet is about a doctor. I emailed Dr. > Ponseti, for doctors in Indianapolis, Indiana. Currently, there are > none. Is anyone from this area, who has found a great doctor? We > may consider driving to Iowa, but that really won't be a fun trip at > the first of Dec. with our first newborn! > > Also, was anyone else's doctor very cautious before the baby was > born, and found out everything was ok when the child was born? > Thanks for your help in advance! > > Quote Link to comment Share on other sites More sharing options...
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