Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Sorry forgot to add, they monitored my pregnancy as well. We had monthly ultrasounds. They wanted to do an amnio to test for certain disorders, but I thought it doesn't matter right now how he comes is how he comes, and he came out just perfect! The club feet is the only thing we have had to deal with. They talked about chromosome disorders and down's, scared me to death and like I said he came out just fine. Tyler's mommy bi lat cf 1/14/03 first set of casts, second round > Hello everyone! I am so glad I found this site, and was pointed in > this direction. My little boy will be born in late November, but I > am trying to get an early start finding information. We were told at > our 20 week ultrasound that he had club feet and were sent for > another 2 weeks later. Here we were told that the cerebellum was > measuring a little small. I can't find any information on this at > all, and wondered if anyone had heard of this before. I am hopeful > they are monitoring everything more closely because of his club > feet. Everything I have read seems to point to that. > > My question about his club feet is about a doctor. I emailed Dr. > Ponseti, for doctors in Indianapolis, Indiana. Currently, there are > none. Is anyone from this area, who has found a great doctor? We > may consider driving to Iowa, but that really won't be a fun trip at > the first of Dec. with our first newborn! > > Also, was anyone else's doctor very cautious before the baby was > born, and found out everything was ok when the child was born? > Thanks for your help in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Sorry forgot to add, they monitored my pregnancy as well. We had monthly ultrasounds. They wanted to do an amnio to test for certain disorders, but I thought it doesn't matter right now how he comes is how he comes, and he came out just perfect! The club feet is the only thing we have had to deal with. They talked about chromosome disorders and down's, scared me to death and like I said he came out just fine. Tyler's mommy bi lat cf 1/14/03 first set of casts, second round > Hello everyone! I am so glad I found this site, and was pointed in > this direction. My little boy will be born in late November, but I > am trying to get an early start finding information. We were told at > our 20 week ultrasound that he had club feet and were sent for > another 2 weeks later. Here we were told that the cerebellum was > measuring a little small. I can't find any information on this at > all, and wondered if anyone had heard of this before. I am hopeful > they are monitoring everything more closely because of his club > feet. Everything I have read seems to point to that. > > My question about his club feet is about a doctor. I emailed Dr. > Ponseti, for doctors in Indianapolis, Indiana. Currently, there are > none. Is anyone from this area, who has found a great doctor? We > may consider driving to Iowa, but that really won't be a fun trip at > the first of Dec. with our first newborn! > > Also, was anyone else's doctor very cautious before the baby was > born, and found out everything was ok when the child was born? > Thanks for your help in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Sorry forgot to add, they monitored my pregnancy as well. We had monthly ultrasounds. They wanted to do an amnio to test for certain disorders, but I thought it doesn't matter right now how he comes is how he comes, and he came out just perfect! The club feet is the only thing we have had to deal with. They talked about chromosome disorders and down's, scared me to death and like I said he came out just fine. Tyler's mommy bi lat cf 1/14/03 first set of casts, second round > Hello everyone! I am so glad I found this site, and was pointed in > this direction. My little boy will be born in late November, but I > am trying to get an early start finding information. We were told at > our 20 week ultrasound that he had club feet and were sent for > another 2 weeks later. Here we were told that the cerebellum was > measuring a little small. I can't find any information on this at > all, and wondered if anyone had heard of this before. I am hopeful > they are monitoring everything more closely because of his club > feet. Everything I have read seems to point to that. > > My question about his club feet is about a doctor. I emailed Dr. > Ponseti, for doctors in Indianapolis, Indiana. Currently, there are > none. Is anyone from this area, who has found a great doctor? We > may consider driving to Iowa, but that really won't be a fun trip at > the first of Dec. with our first newborn! > > Also, was anyone else's doctor very cautious before the baby was > born, and found out everything was ok when the child was born? > Thanks for your help in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Hello , Welcome to the group. My son was born with bilateral clubfeet. I had three ultrasounds, not including the one on the day I delivered. Not one time did the doctor or ultrasound techs say that my son had clubfeet. Although they were looking for a heart defect in which I thank god that he does not have. But I delivered my son at 33 weeks gestation and I was told all along that I was measuring right and come to find out when I delivered that I had interurine growth restriction. So in other words my son didn't have enough room to grow and my body couldn't take it any longer. So we didn't know that he had clubfeet until he came out and to tell you the truth I wasn't worried about his feet ( my father-in-law was) at that time I was worried about is he breathing on his own. He only weighed 3lbs and 8ozs at birth. I'll pray that everything will be okay and that the rest of your pregnancy and delivery will be okay. Christi 10/23/01 9/27/03 BCF DBB 12hrs/day jgoodin10 jgoodin10@...> wrote: Hello everyone! I am so glad I found this site, and was pointed in this direction. My little boy will be born in late November, but I am trying to get an early start finding information. We were told at our 20 week ultrasound that he had club feet and were sent for another 2 weeks later. Here we were told that the cerebellum was measuring a little small. I can't find any information on this at all, and wondered if anyone had heard of this before. I am hopeful they are monitoring everything more closely because of his club feet. Everything I have read seems to point to that. My question about his club feet is about a doctor. I emailed Dr. Ponseti, for doctors in Indianapolis, Indiana. Currently, there are none. Is anyone from this area, who has found a great doctor? We may consider driving to Iowa, but that really won't be a fun trip at the first of Dec. with our first newborn! Also, was anyone else's doctor very cautious before the baby was born, and found out everything was ok when the child was born? Thanks for your help in advance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Hello , Welcome to the group. My son was born with bilateral clubfeet. I had three ultrasounds, not including the one on the day I delivered. Not one time did the doctor or ultrasound techs say that my son had clubfeet. Although they were looking for a heart defect in which I thank god that he does not have. But I delivered my son at 33 weeks gestation and I was told all along that I was measuring right and come to find out when I delivered that I had interurine growth restriction. So in other words my son didn't have enough room to grow and my body couldn't take it any longer. So we didn't know that he had clubfeet until he came out and to tell you the truth I wasn't worried about his feet ( my father-in-law was) at that time I was worried about is he breathing on his own. He only weighed 3lbs and 8ozs at birth. I'll pray that everything will be okay and that the rest of your pregnancy and delivery will be okay. Christi 10/23/01 9/27/03 BCF DBB 12hrs/day jgoodin10 jgoodin10@...> wrote: Hello everyone! I am so glad I found this site, and was pointed in this direction. My little boy will be born in late November, but I am trying to get an early start finding information. We were told at our 20 week ultrasound that he had club feet and were sent for another 2 weeks later. Here we were told that the cerebellum was measuring a little small. I can't find any information on this at all, and wondered if anyone had heard of this before. I am hopeful they are monitoring everything more closely because of his club feet. Everything I have read seems to point to that. My question about his club feet is about a doctor. I emailed Dr. Ponseti, for doctors in Indianapolis, Indiana. Currently, there are none. Is anyone from this area, who has found a great doctor? We may consider driving to Iowa, but that really won't be a fun trip at the first of Dec. with our first newborn! Also, was anyone else's doctor very cautious before the baby was born, and found out everything was ok when the child was born? Thanks for your help in advance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Hello , Welcome to the group. My son was born with bilateral clubfeet. I had three ultrasounds, not including the one on the day I delivered. Not one time did the doctor or ultrasound techs say that my son had clubfeet. Although they were looking for a heart defect in which I thank god that he does not have. But I delivered my son at 33 weeks gestation and I was told all along that I was measuring right and come to find out when I delivered that I had interurine growth restriction. So in other words my son didn't have enough room to grow and my body couldn't take it any longer. So we didn't know that he had clubfeet until he came out and to tell you the truth I wasn't worried about his feet ( my father-in-law was) at that time I was worried about is he breathing on his own. He only weighed 3lbs and 8ozs at birth. I'll pray that everything will be okay and that the rest of your pregnancy and delivery will be okay. Christi 10/23/01 9/27/03 BCF DBB 12hrs/day jgoodin10 jgoodin10@...> wrote: Hello everyone! I am so glad I found this site, and was pointed in this direction. My little boy will be born in late November, but I am trying to get an early start finding information. We were told at our 20 week ultrasound that he had club feet and were sent for another 2 weeks later. Here we were told that the cerebellum was measuring a little small. I can't find any information on this at all, and wondered if anyone had heard of this before. I am hopeful they are monitoring everything more closely because of his club feet. Everything I have read seems to point to that. My question about his club feet is about a doctor. I emailed Dr. Ponseti, for doctors in Indianapolis, Indiana. Currently, there are none. Is anyone from this area, who has found a great doctor? We may consider driving to Iowa, but that really won't be a fun trip at the first of Dec. with our first newborn! Also, was anyone else's doctor very cautious before the baby was born, and found out everything was ok when the child was born? Thanks for your help in advance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 , Congratulations on your pregnancy! This is such an emotional time for you, I'm sure. I'm currently 37 weeks pregnant with my second son (who we've been told has straight feet) and I feel like I'm losing control more everyday. My first son was born February 9, 1998 with bilateral clubfoot. We didn't know about this until after Jakob was born. Our story has an interesting twist as we live in Iowa City (where Dr. Ponseti is). However, the first ortho to put casts on Jakob was NOT a ponseti doctor - even though the nurse in the nursery at the time told us that " everyone treats clubfoot the same around here. " What a joke. This doctor's casts (which were put on in the nursery before he was 24 hours old) did more harm than good in my personal opinion. Jakob's first casts went to his knees, they were rough, the doctor tried to force his feet into a neutral position, and too many other things I can't recall right off. The next morning, one of the nurses said the ortho wanted to talk to me before we were discharged about the sores that were starting to form behind my son's knees (from the casts rubbing). I recall that he trimmed the casts down a bit and put moleskin over the edges, but that was all he did before we were discharged on that Wednesday morning. By Friday morning, the sores had been irritated so much, that they almost got infected. We had to go to this oath's office to see a cast tech (he was out of town and couldn't be bothered) who wrapped cotton from the top of the casts to his thighs (without bending his knees if I recall correctly). Those casts stayed on like that over the weekend until our scheduled appointment on Monday. I'll tell you, but the time Monday came around, I didn't want anything at all to do with this guy again. I had consulted our insurance company to see if I could switch orthos - even to another on within the same practice. However, I got a big surprise at the appointment when he told us that he was going to refer us to the University of Iowa Hospital (UIHC) " where they see this sort of thing every day. " I still say that's the best thing he ever did for us. We had our first appoint at UIHC on Wednesday. We didn't see Dr. Ponseti himself - in fact I didn't really find out about him until Jakob was nearly 2 years old. We have seen Dr. Weinstein and couldn't be happier. His feet were fully corrected by the time he was 8 weeks old. He wore the FAB (shoes with the bar attached) until he was 3 1/2 years old. That may seem like a long time now, but let me tell you, after almost 3 years of being done with it, the whole thing seems like a walk in the park. Jakob is now almost 6 1/2 and he runs, jumps, hops, and generally moves around like any normal 6 year old. I wish I knew where I put his end of year report from Kindergarten (pregnancy brain!) I do know that his gym teacher had wonderful things to say about him and the control he has with his movements. As for the drive, please don't make that your deciding factor. I know the weather can be tricky that time of year, but you wouldn't necessarily have to make the drive multiple times. There is a fantastic Mc House very close to the hospital. I know many of the members of this list have stayed there (a couple members have even spent Christmas there). I also know of a mother who drove from Muncie, IN, with newborn twins so the one with clubfoot could be treated by Dr. Ponseti (Tina Byrd are you still around?). As for the doctor being cautious because of the clubfoot diagnosis, I don't have experience with that. I do know our doctor is being somewhat cautious in this pregnancy (and we've been told he has straight feet) due to one instance of minor high blood pressure. Right now, I'm having twice weekly non stress tests, had an extra ultrasound a few days ago to check his size and position. I think the doctors might lean toward being a bit more cautious due to how " sue happy " some people seem to be these days. I hope this helps you at least a little. jgoodin10 wrote: > Hello everyone! I am so glad I found this site, and was pointed in > this direction. My little boy will be born in late November, but I > am trying to get an early start finding information. We were told at > our 20 week ultrasound that he had club feet and were sent for > another 2 weeks later. Here we were told that the cerebellum was > measuring a little small. I can't find any information on this at > all, and wondered if anyone had heard of this before. I am hopeful > they are monitoring everything more closely because of his club > feet. Everything I have read seems to point to that. > > My question about his club feet is about a doctor. I emailed Dr. > Ponseti, for doctors in Indianapolis, Indiana. Currently, there are > none. Is anyone from this area, who has found a great doctor? We > may consider driving to Iowa, but that really won't be a fun trip at > the first of Dec. with our first newborn! > > Also, was anyone else's doctor very cautious before the baby was > born, and found out everything was ok when the child was born? > Thanks for your help in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 , Congratulations on your pregnancy! This is such an emotional time for you, I'm sure. I'm currently 37 weeks pregnant with my second son (who we've been told has straight feet) and I feel like I'm losing control more everyday. My first son was born February 9, 1998 with bilateral clubfoot. We didn't know about this until after Jakob was born. Our story has an interesting twist as we live in Iowa City (where Dr. Ponseti is). However, the first ortho to put casts on Jakob was NOT a ponseti doctor - even though the nurse in the nursery at the time told us that " everyone treats clubfoot the same around here. " What a joke. This doctor's casts (which were put on in the nursery before he was 24 hours old) did more harm than good in my personal opinion. Jakob's first casts went to his knees, they were rough, the doctor tried to force his feet into a neutral position, and too many other things I can't recall right off. The next morning, one of the nurses said the ortho wanted to talk to me before we were discharged about the sores that were starting to form behind my son's knees (from the casts rubbing). I recall that he trimmed the casts down a bit and put moleskin over the edges, but that was all he did before we were discharged on that Wednesday morning. By Friday morning, the sores had been irritated so much, that they almost got infected. We had to go to this oath's office to see a cast tech (he was out of town and couldn't be bothered) who wrapped cotton from the top of the casts to his thighs (without bending his knees if I recall correctly). Those casts stayed on like that over the weekend until our scheduled appointment on Monday. I'll tell you, but the time Monday came around, I didn't want anything at all to do with this guy again. I had consulted our insurance company to see if I could switch orthos - even to another on within the same practice. However, I got a big surprise at the appointment when he told us that he was going to refer us to the University of Iowa Hospital (UIHC) " where they see this sort of thing every day. " I still say that's the best thing he ever did for us. We had our first appoint at UIHC on Wednesday. We didn't see Dr. Ponseti himself - in fact I didn't really find out about him until Jakob was nearly 2 years old. We have seen Dr. Weinstein and couldn't be happier. His feet were fully corrected by the time he was 8 weeks old. He wore the FAB (shoes with the bar attached) until he was 3 1/2 years old. That may seem like a long time now, but let me tell you, after almost 3 years of being done with it, the whole thing seems like a walk in the park. Jakob is now almost 6 1/2 and he runs, jumps, hops, and generally moves around like any normal 6 year old. I wish I knew where I put his end of year report from Kindergarten (pregnancy brain!) I do know that his gym teacher had wonderful things to say about him and the control he has with his movements. As for the drive, please don't make that your deciding factor. I know the weather can be tricky that time of year, but you wouldn't necessarily have to make the drive multiple times. There is a fantastic Mc House very close to the hospital. I know many of the members of this list have stayed there (a couple members have even spent Christmas there). I also know of a mother who drove from Muncie, IN, with newborn twins so the one with clubfoot could be treated by Dr. Ponseti (Tina Byrd are you still around?). As for the doctor being cautious because of the clubfoot diagnosis, I don't have experience with that. I do know our doctor is being somewhat cautious in this pregnancy (and we've been told he has straight feet) due to one instance of minor high blood pressure. Right now, I'm having twice weekly non stress tests, had an extra ultrasound a few days ago to check his size and position. I think the doctors might lean toward being a bit more cautious due to how " sue happy " some people seem to be these days. I hope this helps you at least a little. jgoodin10 wrote: > Hello everyone! I am so glad I found this site, and was pointed in > this direction. My little boy will be born in late November, but I > am trying to get an early start finding information. We were told at > our 20 week ultrasound that he had club feet and were sent for > another 2 weeks later. Here we were told that the cerebellum was > measuring a little small. I can't find any information on this at > all, and wondered if anyone had heard of this before. I am hopeful > they are monitoring everything more closely because of his club > feet. Everything I have read seems to point to that. > > My question about his club feet is about a doctor. I emailed Dr. > Ponseti, for doctors in Indianapolis, Indiana. Currently, there are > none. Is anyone from this area, who has found a great doctor? We > may consider driving to Iowa, but that really won't be a fun trip at > the first of Dec. with our first newborn! > > Also, was anyone else's doctor very cautious before the baby was > born, and found out everything was ok when the child was born? > Thanks for your help in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 , Congratulations on your pregnancy! This is such an emotional time for you, I'm sure. I'm currently 37 weeks pregnant with my second son (who we've been told has straight feet) and I feel like I'm losing control more everyday. My first son was born February 9, 1998 with bilateral clubfoot. We didn't know about this until after Jakob was born. Our story has an interesting twist as we live in Iowa City (where Dr. Ponseti is). However, the first ortho to put casts on Jakob was NOT a ponseti doctor - even though the nurse in the nursery at the time told us that " everyone treats clubfoot the same around here. " What a joke. This doctor's casts (which were put on in the nursery before he was 24 hours old) did more harm than good in my personal opinion. Jakob's first casts went to his knees, they were rough, the doctor tried to force his feet into a neutral position, and too many other things I can't recall right off. The next morning, one of the nurses said the ortho wanted to talk to me before we were discharged about the sores that were starting to form behind my son's knees (from the casts rubbing). I recall that he trimmed the casts down a bit and put moleskin over the edges, but that was all he did before we were discharged on that Wednesday morning. By Friday morning, the sores had been irritated so much, that they almost got infected. We had to go to this oath's office to see a cast tech (he was out of town and couldn't be bothered) who wrapped cotton from the top of the casts to his thighs (without bending his knees if I recall correctly). Those casts stayed on like that over the weekend until our scheduled appointment on Monday. I'll tell you, but the time Monday came around, I didn't want anything at all to do with this guy again. I had consulted our insurance company to see if I could switch orthos - even to another on within the same practice. However, I got a big surprise at the appointment when he told us that he was going to refer us to the University of Iowa Hospital (UIHC) " where they see this sort of thing every day. " I still say that's the best thing he ever did for us. We had our first appoint at UIHC on Wednesday. We didn't see Dr. Ponseti himself - in fact I didn't really find out about him until Jakob was nearly 2 years old. We have seen Dr. Weinstein and couldn't be happier. His feet were fully corrected by the time he was 8 weeks old. He wore the FAB (shoes with the bar attached) until he was 3 1/2 years old. That may seem like a long time now, but let me tell you, after almost 3 years of being done with it, the whole thing seems like a walk in the park. Jakob is now almost 6 1/2 and he runs, jumps, hops, and generally moves around like any normal 6 year old. I wish I knew where I put his end of year report from Kindergarten (pregnancy brain!) I do know that his gym teacher had wonderful things to say about him and the control he has with his movements. As for the drive, please don't make that your deciding factor. I know the weather can be tricky that time of year, but you wouldn't necessarily have to make the drive multiple times. There is a fantastic Mc House very close to the hospital. I know many of the members of this list have stayed there (a couple members have even spent Christmas there). I also know of a mother who drove from Muncie, IN, with newborn twins so the one with clubfoot could be treated by Dr. Ponseti (Tina Byrd are you still around?). As for the doctor being cautious because of the clubfoot diagnosis, I don't have experience with that. I do know our doctor is being somewhat cautious in this pregnancy (and we've been told he has straight feet) due to one instance of minor high blood pressure. Right now, I'm having twice weekly non stress tests, had an extra ultrasound a few days ago to check his size and position. I think the doctors might lean toward being a bit more cautious due to how " sue happy " some people seem to be these days. I hope this helps you at least a little. jgoodin10 wrote: > Hello everyone! I am so glad I found this site, and was pointed in > this direction. My little boy will be born in late November, but I > am trying to get an early start finding information. We were told at > our 20 week ultrasound that he had club feet and were sent for > another 2 weeks later. Here we were told that the cerebellum was > measuring a little small. I can't find any information on this at > all, and wondered if anyone had heard of this before. I am hopeful > they are monitoring everything more closely because of his club > feet. Everything I have read seems to point to that. > > My question about his club feet is about a doctor. I emailed Dr. > Ponseti, for doctors in Indianapolis, Indiana. Currently, there are > none. Is anyone from this area, who has found a great doctor? We > may consider driving to Iowa, but that really won't be a fun trip at > the first of Dec. with our first newborn! > > Also, was anyone else's doctor very cautious before the baby was > born, and found out everything was ok when the child was born? > Thanks for your help in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I also found out at 20wks that had a club foot. They monitored closely, and recommended amnio. I, too, declined the amnio (even though they scare you with every possible scenario). is a healthy 3.5 month old. After I did research on the Ponseti method and Doctors in the area, I decided to set my concerns aside and enjoy the pregnancy (which will probably be my last). I felt if I stayed relaxed and healthy my baby would be fine! As a side note, I have been using a Dr. in Chicago who says he follows the Ponseti method, but he modifies is way too much. has relapsed, and I have decided to take her to see Dr. Ponseti. She is in her 2 round of casts, and she sees Dr. P on monday for the first time. I should have gone much sooner and I could be half way finished with the first stage of the DBB! Good luck! Mollie and lcf 4/14/04 > > they are monitoring everything more closely > > the first of Dec. with our first newborn! > > > > Also, was anyone else's doctor very cautious before the baby was > > born, and found out everything was ok when the child was born? > > Thanks for your help in advance! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I also found out at 20wks that had a club foot. They monitored closely, and recommended amnio. I, too, declined the amnio (even though they scare you with every possible scenario). is a healthy 3.5 month old. After I did research on the Ponseti method and Doctors in the area, I decided to set my concerns aside and enjoy the pregnancy (which will probably be my last). I felt if I stayed relaxed and healthy my baby would be fine! As a side note, I have been using a Dr. in Chicago who says he follows the Ponseti method, but he modifies is way too much. has relapsed, and I have decided to take her to see Dr. Ponseti. She is in her 2 round of casts, and she sees Dr. P on monday for the first time. I should have gone much sooner and I could be half way finished with the first stage of the DBB! Good luck! Mollie and lcf 4/14/04 > > they are monitoring everything more closely > > the first of Dec. with our first newborn! > > > > Also, was anyone else's doctor very cautious before the baby was > > born, and found out everything was ok when the child was born? > > Thanks for your help in advance! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 You will LOVE Dr. Ponseti, he is so kind and so gentle. s. Re: New Here I also found out at 20wks that had a club foot. They monitored closely, and recommended amnio. I, too, declined the amnio (even though they scare you with every possible scenario). is a healthy 3.5 month old. After I did research on the Ponseti method and Doctors in the area, I decided to set my concerns aside and enjoy the pregnancy (which will probably be my last). I felt if I stayed relaxed and healthy my baby would be fine! As a side note, I have been using a Dr. in Chicago who says he follows the Ponseti method, but he modifies is way too much. has relapsed, and I have decided to take her to see Dr. Ponseti. She is in her 2 round of casts, and she sees Dr. P on monday for the first time. I should have gone much sooner and I could be half way finished with the first stage of the DBB! Good luck! Mollie and lcf 4/14/04 > > they are monitoring everything more closely > > the first of Dec. with our first newborn! > > > > Also, was anyone else's doctor very cautious before the baby was > > born, and found out everything was ok when the child was born? > > Thanks for your help in advance! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 You will LOVE Dr. Ponseti, he is so kind and so gentle. s. Re: New Here I also found out at 20wks that had a club foot. They monitored closely, and recommended amnio. I, too, declined the amnio (even though they scare you with every possible scenario). is a healthy 3.5 month old. After I did research on the Ponseti method and Doctors in the area, I decided to set my concerns aside and enjoy the pregnancy (which will probably be my last). I felt if I stayed relaxed and healthy my baby would be fine! As a side note, I have been using a Dr. in Chicago who says he follows the Ponseti method, but he modifies is way too much. has relapsed, and I have decided to take her to see Dr. Ponseti. She is in her 2 round of casts, and she sees Dr. P on monday for the first time. I should have gone much sooner and I could be half way finished with the first stage of the DBB! Good luck! Mollie and lcf 4/14/04 > > they are monitoring everything more closely > > the first of Dec. with our first newborn! > > > > Also, was anyone else's doctor very cautious before the baby was > > born, and found out everything was ok when the child was born? > > Thanks for your help in advance! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 You will LOVE Dr. Ponseti, he is so kind and so gentle. s. Re: New Here I also found out at 20wks that had a club foot. They monitored closely, and recommended amnio. I, too, declined the amnio (even though they scare you with every possible scenario). is a healthy 3.5 month old. After I did research on the Ponseti method and Doctors in the area, I decided to set my concerns aside and enjoy the pregnancy (which will probably be my last). I felt if I stayed relaxed and healthy my baby would be fine! As a side note, I have been using a Dr. in Chicago who says he follows the Ponseti method, but he modifies is way too much. has relapsed, and I have decided to take her to see Dr. Ponseti. She is in her 2 round of casts, and she sees Dr. P on monday for the first time. I should have gone much sooner and I could be half way finished with the first stage of the DBB! Good luck! Mollie and lcf 4/14/04 > > they are monitoring everything more closely > > the first of Dec. with our first newborn! > > > > Also, was anyone else's doctor very cautious before the baby was > > born, and found out everything was ok when the child was born? > > Thanks for your help in advance! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 My first son's feet were not caught on ultrasound; I only had the one, then delivered with a midwife so we were surprsied. Second pregnancy we checked more closely for the feet so we could plan for a trip to Iowa if necessary and there they were, plain as day on the picture, clubbed as pretty as you please! The tech then measured every imaginable body part they could measure, but after that my dr's didn't say a word to me about it. I was getting my pre=natal care at the Indian Clinic so I would see a different dr. or nurse or midwife at each visit and many of them didn't even realize I had a cf baby due. In any event, I guess no body took it very serious. I was 38 years old adn they didn't take that serious either - no special testing was done regarding my age ya know. then I delivered Everett in the truck on the way to the hospital and he didn't have any complications. He was tongue tied though. I don't know if that is cf related or not. s. Re: New Here Hello , Welcome to the group. My son was born with bilateral clubfeet. I had three ultrasounds, not including the one on the day I delivered. Not one time did the doctor or ultrasound techs say that my son had clubfeet. Although they were looking for a heart defect in which I thank god that he does not have. But I delivered my son at 33 weeks gestation and I was told all along that I was measuring right and come to find out when I delivered that I had interurine growth restriction. So in other words my son didn't have enough room to grow and my body couldn't take it any longer. So we didn't know that he had clubfeet until he came out and to tell you the truth I wasn't worried about his feet ( my father-in-law was) at that time I was worried about is he breathing on his own. He only weighed 3lbs and 8ozs at birth. I'll pray that everything will be okay and that the rest of your pregnancy and delivery will be okay. Christi 10/23/01 9/27/03 BCF DBB 12hrs/day jgoodin10 jgoodin10@...> wrote: Hello everyone! I am so glad I found this site, and was pointed in this direction. My little boy will be born in late November, but I am trying to get an early start finding information. We were told at our 20 week ultrasound that he had club feet and were sent for another 2 weeks later. Here we were told that the cerebellum was measuring a little small. I can't find any information on this at all, and wondered if anyone had heard of this before. I am hopeful they are monitoring everything more closely because of his club feet. Everything I have read seems to point to that. My question about his club feet is about a doctor. I emailed Dr. Ponseti, for doctors in Indianapolis, Indiana. Currently, there are none. Is anyone from this area, who has found a great doctor? We may consider driving to Iowa, but that really won't be a fun trip at the first of Dec. with our first newborn! Also, was anyone else's doctor very cautious before the baby was born, and found out everything was ok when the child was born? Thanks for your help in advance! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 , congratulations on the new baby! I'm so happy for you and Jakob! How sweet of Santa Clause to come though for him! s. Re: New Here , Congratulations on your pregnancy! This is such an emotional time for you, I'm sure. I'm currently 37 weeks pregnant with my second son (who we've been told has straight feet) and I feel like I'm losing control more everyday. My first son was born February 9, 1998 with bilateral clubfoot. We didn't know about this until after Jakob was born. Our story has an interesting twist as we live in Iowa City (where Dr. Ponseti is). However, the first ortho to put casts on Jakob was NOT a ponseti doctor - even though the nurse in the nursery at the time told us that " everyone treats clubfoot the same around here. " What a joke. This doctor's casts (which were put on in the nursery before he was 24 hours old) did more harm than good in my personal opinion. Jakob's first casts went to his knees, they were rough, the doctor tried to force his feet into a neutral position, and too many other things I can't recall right off. The next morning, one of the nurses said the ortho wanted to talk to me before we were discharged about the sores that were starting to form behind my son's knees (from the casts rubbing). I recall that he trimmed the casts down a bit and put moleskin over the edges, but that was all he did before we were discharged on that Wednesday morning. By Friday morning, the sores had been irritated so much, that they almost got infected. We had to go to this oath's office to see a cast tech (he was out of town and couldn't be bothered) who wrapped cotton from the top of the casts to his thighs (without bending his knees if I recall correctly). Those casts stayed on like that over the weekend until our scheduled appointment on Monday. I'll tell you, but the time Monday came around, I didn't want anything at all to do with this guy again. I had consulted our insurance company to see if I could switch orthos - even to another on within the same practice. However, I got a big surprise at the appointment when he told us that he was going to refer us to the University of Iowa Hospital (UIHC) " where they see this sort of thing every day. " I still say that's the best thing he ever did for us. We had our first appoint at UIHC on Wednesday. We didn't see Dr. Ponseti himself - in fact I didn't really find out about him until Jakob was nearly 2 years old. We have seen Dr. Weinstein and couldn't be happier. His feet were fully corrected by the time he was 8 weeks old. He wore the FAB (shoes with the bar attached) until he was 3 1/2 years old. That may seem like a long time now, but let me tell you, after almost 3 years of being done with it, the whole thing seems like a walk in the park. Jakob is now almost 6 1/2 and he runs, jumps, hops, and generally moves around like any normal 6 year old. I wish I knew where I put his end of year report from Kindergarten (pregnancy brain!) I do know that his gym teacher had wonderful things to say about him and the control he has with his movements. As for the drive, please don't make that your deciding factor. I know the weather can be tricky that time of year, but you wouldn't necessarily have to make the drive multiple times. There is a fantastic Mc House very close to the hospital. I know many of the members of this list have stayed there (a couple members have even spent Christmas there). I also know of a mother who drove from Muncie, IN, with newborn twins so the one with clubfoot could be treated by Dr. Ponseti (Tina Byrd are you still around?). As for the doctor being cautious because of the clubfoot diagnosis, I don't have experience with that. I do know our doctor is being somewhat cautious in this pregnancy (and we've been told he has straight feet) due to one instance of minor high blood pressure. Right now, I'm having twice weekly non stress tests, had an extra ultrasound a few days ago to check his size and position. I think the doctors might lean toward being a bit more cautious due to how " sue happy " some people seem to be these days. I hope this helps you at least a little. jgoodin10 wrote: > Hello everyone! I am so glad I found this site, and was pointed in > this direction. My little boy will be born in late November, but I > am trying to get an early start finding information. We were told at > our 20 week ultrasound that he had club feet and were sent for > another 2 weeks later. Here we were told that the cerebellum was > measuring a little small. I can't find any information on this at > all, and wondered if anyone had heard of this before. I am hopeful > they are monitoring everything more closely because of his club > feet. Everything I have read seems to point to that. > > My question about his club feet is about a doctor. I emailed Dr. > Ponseti, for doctors in Indianapolis, Indiana. Currently, there are > none. Is anyone from this area, who has found a great doctor? We > may consider driving to Iowa, but that really won't be a fun trip at > the first of Dec. with our first newborn! > > Also, was anyone else's doctor very cautious before the baby was > born, and found out everything was ok when the child was born? > Thanks for your help in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 > Hello All, > I was lurking for a long time on this list, reading whatever I could > read. I am expecting now anytime my little boy that will have right > (I think) clubfood (found out during US). After internet search we > decided to treat our son after Ponseti method and found a doctor in > Boston New England Medical Center that will do it (Dr Ponseti > recomended him). We are living in Maine and the baby will have > MaineCare Insurance. My question is if somebody of you know if this > will work out, I mean with this State Insurance. I know that they > are covering only doctors in Maine but would they do it when the > speciall doctor is not to find in Maine??? > Katharine > Sorry for my english but I am from germany living here only for 3 > years Katharine, I live in Maine too. I'm going to see Dr. Mack at Shriner's Hospital in Springfield, MA because they are free. It is a little farther than Boston, but I don't need to worry about whether my insurance will cover it or not. Perhaps you could go see Dr. Mack if your insurance won't cover you going out of state. Dr. Ponseti told me he is good too. If you want to e-mail me off-list maybe we can trade information. tristan2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 Hello. About a month ago, I was diagnosed with stage IV colon cancer with liver mets and had my colon removed. Next week I get to start chemo + Avastin (strangely looking forward to it). I just found this group on Yahoo and look forward to reading other people's stories. Anyway know anything about the side effects of chemo 5FU + Leucovorin and Avastin? I've been told that since I am relatively young (35 years old) that it may not be so bad. I'll find out soon enough. I look forward to reading through the messages here. Sincerely, Rodney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 Also wanted to tell you that the way that chemo is done now, you should not have severe side effects from it. The give you medicine before they even start your chemo to prevent you from getting sick. They have drugs to help with any side effects you may get. I got through my Folfox Chemo with very little illness. You will find that you will tire more easily. But you will find that having rest periods helps and you can still live a pretty normal life during the chemo. You will be fine. And you will make a lot of new friends at the chemo with other patients. I know I did. You will find that you are not alone and that everyone tries to help everyone else. Just do what you have to do to get rid of this cancer. There are alot of stage iv in this group and they can help you get through this. God Be with YOU!!! Ingrid > Hello. > > About a month ago, I was diagnosed with stage IV colon cancer with > liver mets and had my colon removed. Next week I get to start chemo + > Avastin (strangely looking forward to it). I just found this group on > Yahoo and look forward to reading other people's stories. > > Anyway know anything about the side effects of chemo 5FU + Leucovorin > and Avastin? I've been told that since I am relatively young (35 > years old) that it may not be so bad. I'll find out soon enough. > > I look forward to reading through the messages here. > > Sincerely, > Rodney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Hi Rodney Please go to our group site and click on files then read my husband Phil May's story. Also ask your oncologist abouut an infusion pump to treat the liver with FUDR it may be a choice for you. It has killed some tumor in my husband. The Avasin got rid of the colon tumor. Narice > > > Hello. > > > > About a month ago, I was diagnosed with stage IV colon cancer with > > liver mets and had my colon removed. Next week I get to start chemo > + > > Avastin (strangely looking forward to it). I just found this group > on > > Yahoo and look forward to reading other people's stories. > > > > Anyway know anything about the side effects of chemo 5FU + Leucovorin > > and Avastin? I've been told that since I am relatively young (35 > > years old) that it may not be so bad. I'll find out soon enough. > > > > I look forward to reading through the messages here. > > > > Sincerely, > > Rodney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Hi Rodney Please go to our group site and click on files then read my husband Phil May's story. Also ask your oncologist abouut an infusion pump to treat the liver with FUDR it may be a choice for you. It has killed some tumor in my husband. The Avasin got rid of the colon tumor. Narice > > > Hello. > > > > About a month ago, I was diagnosed with stage IV colon cancer with > > liver mets and had my colon removed. Next week I get to start chemo > + > > Avastin (strangely looking forward to it). I just found this group > on > > Yahoo and look forward to reading other people's stories. > > > > Anyway know anything about the side effects of chemo 5FU + Leucovorin > > and Avastin? I've been told that since I am relatively young (35 > > years old) that it may not be so bad. I'll find out soon enough. > > > > I look forward to reading through the messages here. > > > > Sincerely, > > Rodney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2005 Report Share Posted June 19, 2005 Hi Rodney Please go to our group site and click on files then read my husband Phil May's story. Also ask your oncologist abouut an infusion pump to treat the liver with FUDR it may be a choice for you. It has killed some tumor in my husband. The Avasin got rid of the colon tumor. Narice > > > Hello. > > > > About a month ago, I was diagnosed with stage IV colon cancer with > > liver mets and had my colon removed. Next week I get to start chemo > + > > Avastin (strangely looking forward to it). I just found this group > on > > Yahoo and look forward to reading other people's stories. > > > > Anyway know anything about the side effects of chemo 5FU + Leucovorin > > and Avastin? I've been told that since I am relatively young (35 > > years old) that it may not be so bad. I'll find out soon enough. > > > > I look forward to reading through the messages here. > > > > Sincerely, > > Rodney Quote Link to comment Share on other sites More sharing options...
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