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To (and !) 8/1/2001

From the archives of 2001

Message: 26952

Subject: Re: Eveyln and Phil

Hi everyone,

First I want to say THANKS TO ALL for your prayers and well wishes. I only

have a couple of minutes to try and give you some information on Phil. I just

drove in to Orlando to bring our daughters home they start school tomorrow. I

will be returning to Miami tomorrow afternoon after a few errands here.

I left Phil with his mother who is here from New York giving me a hand with

him. This was so fast, but I have to tell you I'm so happy that things turned

out the way they did. I know our prayers were heard.

He is doing great. He was in surgery for 13 hours and according to his

transplant team everything went smoothly. He only needed two pints of blood

which according to the doctors was a clean surgery. They said his liver took

on quickly and everything else seen to follow. When he was brought to ICU, I

spoke to him and asked him to open his eyes if he could hear me. He did and

was aware that I was there. I was prepare to find him so swollen, but he

looked good. The tubes and machines on him wasn't as bad as I pictured. Late

that night they removed the tube from his mouth and by the next day he was

sitting on the chair next to his bed when I walked in the nurse told me he

had walk a few steps and the doctors were amazed of his progress. By that

night he was moved to a room and had some more of his lines removed. By the

third day we got to walk with him for 10 minutes and was having conversations

with him like his old self. By the fourth day all he had was an IV line on

his hand to give him pain medications, but everything else was off. He was

back on solids in no time and was discharged Thursday the 9th. He still is

not sleeping well and has a lot of discomfort, but is taking his meds and

doing what the doctor ordered. They did his first labs on Thursday and all

his numbers are fine, they had to increase his prograf because they found

that a little low. I saw his recent ALk Phos and it was down to 166, I don't

have all his numbers in front of me now, but I remeber that one off the top

of my head. The doctors told Phil that if they get more recoverys like his

they will have to start doing transplant as an outpatient surgery. :)

He still isn't out of the woods yet, but it looks good so far. I told

his eyes look like light bulds.

Like I said I will try and update as soon as we get back home to stay. Again,

THANKS! I'm keeping you all in my prayers. Don't give up hope.

Love,

Wife of Philip DX 2/00 w/PSC, listed 9/00 and tx 8/01

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