newly diagnosed w psc... what do we expect

[Guest guest]

Hi guys. My name is and I was just diagnosed w psc about a

month ago. I am an RN but this is outta my league since I deliver

babies for a living. LOL. I had ulcerative colitis at age 16(will be 35

next month), had a total colectomy w ileoanal anastamosis at age 18 and

have been pretty healthy since. With both my pregnancies (98 and 02) I

had elevated liver enzymes and high blood pressure but they diagnosed

me w pre eclampsia. Few years later, i had routine labs and my LFTs

were up but they said it was fatty liver. Off and on for last 5-6 years

i have had intermittent itching but no one put any of this together

until June and July. The itching was so intense and lasted for the

whole month. I insisted on more LFTs and my PCP referred me to a GI

doc. I had an MRCP and then ERCP and was diagnosed w psc. Now i am

completely stunned and not sure what to expect. I have done the

research but i wanna know from real ppl what the next few months to

years hold. I just got remarried and have young children at home. I'm

trying to not get too down but uncertainty is killing me. Please help

Thnx

Tiff in Indiana