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hepaticojejunostomy info

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Severin and Penny

Thank you both for the info. It was very encouraging to read both your accounts.

At this point I clearly have no idea what the next step is, other than to likely

have another

go at an ERCP with a different doctor. It is a daunting thought, with the

unpleasantness of

Thursday so fresh in my mind. And I can readily admit that I expected everything

to go

swimmingly, so I was just so deflated by the news when I woke up. I had a

successful

dilation a few years ago (no more than 4, as it was since Anneke was born), so

it was

perfectly logical that it would go fine this time as well. Talk about a sucker

punch.

I have been guilty of thinking of my PSC as " indolent, " as the MDs describe it.

That may be

true, but clearly the dominant stricture changes the landscape completely.

Anyway, I'll be chugging Questran and keeping busy between now and the 22nd,

when I

see the hep again.

Colleen in MA

Severin wrote:

> In the end, the resection was the right thing to do for me. It was

> also an *easier* incrmental step before the transplant for my

> particular situation.

>

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