Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Actually, I'm not sure yet. The doc has tested me twice and one indicated I did and one indicated I didn't. I don't remember what the blood work was that he did, but I do know that he'd like a tie-breaker. It's important to find out for sure before tx, because s can damage the new liver. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Does anyone here have 's Disease along with their PSC? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 > Actually, I'm not sure yet. The doc has tested me twice and one indicated I did and one indicated I didn't. I don't remember what the blood work was that he did, but I do know that he'd like a tie- breaker. My son's dr found elevated copper levels in the liver tissue from my son's liver biopsy (called this morning to tell me even though the biopsy was done nearly 2 wks ago) and is doing a 24hr copper-level urine test when we go in to see him again in 2 more wks. He mentioned another test, but I don't remember what it was -maybe the blood work like you've had done. Were both of your tests done via blood work? I wish you well with the tie-breaker test. Are you following the low- copper diet in the interim as precaution? >It's important to find out for sure before tx, because s can damage the new liver. If you take the meds (for 's) and follow the low-copper diet, won't that be enough to keep the copper levels normal in a new liver? Does 's mean you aren't a candidate for tx, make tx more complicated, or is it a non-issue if you've been on meds to keep the 's in check? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 > Actually, I'm not sure yet. The doc has tested me twice and one indicated I did and one indicated I didn't. I don't remember what the blood work was that he did, but I do know that he'd like a tie- breaker. My son's dr found elevated copper levels in the liver tissue from my son's liver biopsy (called this morning to tell me even though the biopsy was done nearly 2 wks ago) and is doing a 24hr copper-level urine test when we go in to see him again in 2 more wks. He mentioned another test, but I don't remember what it was -maybe the blood work like you've had done. Were both of your tests done via blood work? I wish you well with the tie-breaker test. Are you following the low- copper diet in the interim as precaution? >It's important to find out for sure before tx, because s can damage the new liver. If you take the meds (for 's) and follow the low-copper diet, won't that be enough to keep the copper levels normal in a new liver? Does 's mean you aren't a candidate for tx, make tx more complicated, or is it a non-issue if you've been on meds to keep the 's in check? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 > Both of my tests were blood labs. I'm not following a diet and it's never been suggested to me. I guess the doc wants to KNOW the answer, first. And, it could be that maybe a diet high in copper might show slight elevation for the one test that came back high? (Just a guess, but sounds plausible). It would be great news for the tie breaker to be normal range. I wish you well. >As far as tx goes, he never led me to believe that I would be eliminated as a tx candidate if I have 's. I think he just wants to know so he can put me on medication and make sure that no damage comes to the new liver. I didn't it was a concern, but was wondering if I'd missed something when I read the earlier post. From what I've read (and was told) it's completely treatable --thankfully. I am hoping to find out more, though, from others here who've been on the meds for it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 > Both of my tests were blood labs. I'm not following a diet and it's never been suggested to me. I guess the doc wants to KNOW the answer, first. And, it could be that maybe a diet high in copper might show slight elevation for the one test that came back high? (Just a guess, but sounds plausible). It would be great news for the tie breaker to be normal range. I wish you well. >As far as tx goes, he never led me to believe that I would be eliminated as a tx candidate if I have 's. I think he just wants to know so he can put me on medication and make sure that no damage comes to the new liver. I didn't it was a concern, but was wondering if I'd missed something when I read the earlier post. From what I've read (and was told) it's completely treatable --thankfully. I am hoping to find out more, though, from others here who've been on the meds for it. Quote Link to comment Share on other sites More sharing options...
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